Uncontrollable high blood sugars in tacro patients
Hi. I have a daughter who was born with biliary atresia. She had the Kasai procedure done at 9 weeks old and it eventually failed a few years later. She received a liver transplant at the age of 5 along with all types of complications (Epstein-Barr Virus, CMV, and a cancer called PTLD, rejection, etc). We made it through all of that and now she’s 11. Puberty starting to hit her and she’s taking Tacrolimus to help preventing rejection. She’s tried Sirolimus and Cellcept but those meds only worked for short time before her liver numbers began to increase again. Her great team of liver specialists at Childrens Hospital of Wisconsin decided to start her back on Tacro and now her blood sugars are out of control! Unfortunately Tacro is the only thing that keeps her liver “happy” but I fear her going into DKA due to blood sugars in 500’s. Is there any preteens parents that have experienced high blood sugars that insulin was not helping for their child?