Over active immune system attacking all good as well as bad in my body
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Your attitude is the one I referred to. It’s mind/body connection. My doctors only push for a colonoscopy every two years but the last one almost killed me with the aftermath. Two and a half years housebound and trying different medicines. Prednisone always works for me but, of course, it is a double edged sword. Good luck to you my friend and fellow traveler.
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I know how hard it is to be housebound and I resisted the biologics for a long time, until I was just so disgusted with my quality of life, I felt I had nothing to lose. I had been on every medication out there for UC and the flares just kept getting worse!! IF you consider a biologic, please feel free to ask me about Entyvio. I was absolutely terrified of it, but honestly, so far, so good! And you are monitored closely. I wish you the very best of luck and a good quality of life no matter what you decide. You’ve suffered for way too long! 😥🙏
Thank you but I have to listen to my body and it said no to the biologics But thank you for your offer and the one thing I can say for certain about the disorder is that not even TWO people have the exact same experience. That’s actually encouraging. The best to you and me too.
I’m so sorry you have UC! I was diagnosed less than two years ago and my life has been a living hell ever since. I have been on every drug for this debilitating disease and it continues to escalate! Mesalamine resulted in drug induced acute pancreatitis; remission lasted only 3 months. The budesonide (oral and rectal) did nothing! I have been on oral prednisone and just added the biologic, Entyvio, to the mix. GI doc has advised consult with a colorectal surgeon as removal of the colon and rectum would be the only other option if this doesn’t work. Right now, it is also affecting my eyes (uveitis). I am a 62 year old female that had been in excellent health before UC destroyed my quality of life! Never smoked; don’t drink, exercised since I was 14, and here I am, now – weak, frail and devastated at what my life has become. It kills me what it has done to my husband, too, who is my best friend on the planet and beyond supportive. There are days I literally cannot leave the house!!!I hope and pray that they can cure this disease or at least offer drugs that are more effective without all the horrible side effects. Before I had this, I had never even heard of it! What treatments or drugs have you been on and has anything been effective? Thanks for sharing….
So did the Mesalamine cause acute pancreatitis
Does ulcerative colitis cause pancreatitis?
Yes, the mesalamine did cause the pancreatitis. It has been several years and since then I have been on Entyvio, then Stelara, then Remicade and now Remicade every 4 weeks at a higher dose and finally have reached remission, and God willing, I will maintain it…
Did you get cysts on your pancreas due to the pancreatitis?
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