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lohavi (@lohavi)

Ulcerative colitis and cirrhosis of the liver

Digestive Health | Last Active: Sep 11, 2019 | Replies (14)

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@victoria308

Your attitude is the one I referred to. It’s mind/body connection. My doctors only push for a colonoscopy every two years but the last one almost killed me with the aftermath. Two and a half years housebound and trying different medicines. Prednisone always works for me but, of course, it is a double edged sword. Good luck to you my friend and fellow traveler.

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Replies to "Your attitude is the one I referred to. It’s mind/body connection. My doctors only push for..."

I know how hard it is to be housebound and I resisted the biologics for a long time, until I was just so disgusted with my quality of life, I felt I had nothing to lose. I had been on every medication out there for UC and the flares just kept getting worse!! IF you consider a biologic, please feel free to ask me about Entyvio. I was absolutely terrified of it, but honestly, so far, so good! And you are monitored closely. I wish you the very best of luck and a good quality of life no matter what you decide. You’ve suffered for way too long! 😥🙏