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UCTD

Posted by cfwood2022 @cfwood2022, Apr 24 12:36pm

New here, hello everyone! I've been diagnosed with UCTD for about 1 1/2 years. I am also diagnosed with Reynauds and Sjogren's. I've been on DMARD since Nov. It helps but not enough. This disorder presents a lot like progressive RA. In a short period of time, joint damage and deformity has caused need for knee replacement and spinal fusion. Doctors won't touch my musculoskeletal system until the medical condition is under control and it's not even close to under control. Any suggestions or insight are much appreciated, thanks!

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Apr 24 9:34pm

@cfwood2022 Welcome to Mayo Clinic Connect! I’m so glad you found the site. Everyone is very helpful and willing to share.
I added a link to another discussion on UCTD that you may find helpful.
https://connect.mayoclinic.org/discussion/uctd/
May I ask how you found Mayo Connect?

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cfwood2022 | @cfwood2022 | Apr 25 12:59pm
In reply to @becsbuddy "@cfwood2022 Welcome to Mayo Clinic Connect! I’m so glad you found the site. Everyone is very..." + (show)
@becsbuddy

@cfwood2022 Welcome to Mayo Clinic Connect! I’m so glad you found the site. Everyone is very helpful and willing to share.
I added a link to another discussion on UCTD that you may find helpful.
https://connect.mayoclinic.org/discussion/uctd/
May I ask how you found Mayo Connect?

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Thank you so much for the info! One of my Dr's suggested the Mayo Clinic for further testing and treatment. In my process of getting my initial appt set up, I came across this chat.

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