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07ram
@07ram

Posts: 9
Joined: Jan 16, 2017

Meningioma, Grade 2 - Alternative treatments to stop growth?

Posted by @07ram, Jan 16, 2017

I had a cranotomy to remove tumor about size of ping-pong in apr. 2015. Neurosurgeon missed a small piece abt 7mm that is behind right eye next to optic nerve. When I had follow up mri 3 months later he said he wouldnt operate me again bcse it was too close to optic nerve he recommended radiation. I had 5 sessions/treatments with cyberknife on jan. 2016. I had mri on oct 2016 and tumor was same size, neurologist moved/change mri to every yr. Instead of every 6 months. I saw another neuro at MD Anderson and he said he would remove tumor without craneotomy, that he would get to it from the side of my eye next to my right temple. But that we could wait to see if cybrrknife would stop growth. Has any body had any experience with type 2 meningiomas? Have any body has tried alternative treatments or supplements to stop growth of meningiomas?

REPLY

Welcome to Connect, @07ram.
I see that you already connect with @pegorr on another discussion. I’d like to introduce you to additional members who have meningiomas, although I’m not sure what grade they have. Please meet @55soon @user_che69bc66 @kimf @lindajean and @debb2010.

07ram – you ask about alternatives therapies. Alternative therapies can be defined as treatments people use INSTEAD of conventional medical treatments. Complementary therapies or integrative therapies are treatments used along with conventional medical treatments, such as radiation, surgery etc. According to this Mayo Clinic article http://mayocl.in/2k10GYs “Little research has been done on complementary and alternative brain tumor treatments. No alternative treatments have been proved to cure brain tumors. However, complementary treatments may help you cope with your brain tumor and its treatment. Talk to your doctor about your options. Some complementary treatments that may help you cope include:
Acupuncture
Hypnosis
Meditation
Music therapy
Relaxation exercises”

Here is a research article from 2008 “Use of complementary and alternative medical therapy by patients with primary brain tumors” https://www.ncbi.nlm.nih.gov/pubmed/18541122 which indicates the need for further research.

Have you explored complementary therapies or lifestyle changes that help you?

Liked by Lindajean

@colleenyoung

Welcome to Connect, @07ram.
I see that you already connect with @pegorr on another discussion. I’d like to introduce you to additional members who have meningiomas, although I’m not sure what grade they have. Please meet @55soon @user_che69bc66 @kimf @lindajean and @debb2010.

07ram – you ask about alternatives therapies. Alternative therapies can be defined as treatments people use INSTEAD of conventional medical treatments. Complementary therapies or integrative therapies are treatments used along with conventional medical treatments, such as radiation, surgery etc. According to this Mayo Clinic article http://mayocl.in/2k10GYs “Little research has been done on complementary and alternative brain tumor treatments. No alternative treatments have been proved to cure brain tumors. However, complementary treatments may help you cope with your brain tumor and its treatment. Talk to your doctor about your options. Some complementary treatments that may help you cope include:
Acupuncture
Hypnosis
Meditation
Music therapy
Relaxation exercises”

Here is a research article from 2008 “Use of complementary and alternative medical therapy by patients with primary brain tumors” https://www.ncbi.nlm.nih.gov/pubmed/18541122 which indicates the need for further research.

Have you explored complementary therapies or lifestyle changes that help you?

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Miss Young, I have not explored complementary therapies. Thanks for responding
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I do not have any experience with your type of tumor however it does take time for cyberknife to shrink tumors. I think it’s a good sign that your tumor stayed the same. I can’t figure out why your doctor changed the MRIs to a year instead of every 6 months though. I would think s/he’d want to keep an eye on it to make sure it would not grow larger. Is there a possibility that your could have cyberknife again? I do know that any cancer loves sugar and if you cut that out of your diet, it might help. Here is a link for other ideas which may be helpful. https://thetruthaboutcancer.com/rebuild-health-cancer-surgery/ Best of luck and many blessing to you.

I agree that reducing sugar in one’s diet is healthy. However, according to this article from Mayo Clinic (http://mayocl.in/1AYw0Uw) sugar does not make cancer cells grow. Here is an excerpt:

– Myth: People with cancer shouldn’t eat sugar, since it can cause cancer to grow faster.
– Fact: Sugar doesn’t make cancer grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. But giving more sugar to cancer cells doesn’t speed their growth. Likewise, depriving cancer cells of sugar doesn’t slow their growth.

This misconception may be based in part on a misunderstanding of positron emission tomography (PET) scans, which use a small amount of radioactive tracer — typically a form of glucose. All tissues in your body absorb some of this tracer, but tissues that are using more energy — including cancer cells — absorb greater amounts. For this reason, some people have concluded that cancer cells grow faster on sugar. But this isn’t true.

However, there is some evidence that consuming large amounts of sugar is associated with an increased risk of certain cancers, including esophageal cancer. It can also lead to weight gain and increase the risk of obesity and diabetes, which may increase the risk of cancer.

Liked by grandmajan, ladycat

@amkaloha

I do not have any experience with your type of tumor however it does take time for cyberknife to shrink tumors. I think it’s a good sign that your tumor stayed the same. I can’t figure out why your doctor changed the MRIs to a year instead of every 6 months though. I would think s/he’d want to keep an eye on it to make sure it would not grow larger. Is there a possibility that your could have cyberknife again? I do know that any cancer loves sugar and if you cut that out of your diet, it might help. Here is a link for other ideas which may be helpful. https://thetruthaboutcancer.com/rebuild-health-cancer-surgery/ Best of luck and many blessing to you.

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Thanks for replying. I think d Dr. Moved d mris to 1 yr cause it didnt grow but I might give him a call n ask, I could also chdck with oncologist and ask about another round of cyberknife, again thanks for d info.
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