Ty Pennington's Mother and Insmed

I was just sent this by a friend and posting it in case others have not heard this. This should help bring more awareness of BE.
All below is what was written regarding Ty and his Mom.

"TV personality and home designer Ty Pennington partnered with biopharmaceutical company Insmed to launch the Suspect Bronchiectasis (Suspect BE) educational initiative. Pennington is raising awareness for this chronic lung condition because he serves as the primary caregiver for his mother, Ivonne, who lived with the disease for nearly 20 years.

The Caregiver Experience
The Struggle: Pennington has shared that his mother lived with unresolved respiratory symptoms for over 40 years. She was originally misdiagnosed with asthma and COPD before finally receiving a correct bronchiectasis diagnosis two decades ago.

Daily Management: He describes living with the disease as a daily challenge due to severe coughing fits and excessive mucus buildup.

Home Adaptation: As a designer, Pennington has adapted his home to be a calming, safe space. He utilizes features like soft flooring to prevent falls from dizziness and baby monitors to keep track of her breathing at night.

The "Suspect BE" Campaign
The Metaphor: Pennington uses his home-renovation expertise to explain the disease. Just as you wouldn't just paint over a broken wall in a house—you check the foundation—you shouldn't just treat the surface symptoms of a chronic cough without finding the root cause.

Common Misdiagnoses: Bronchiectasis symptoms (including chronic coughing, frequent lung infections, and excess mucus) frequently overlap with COPD and asthma. This causes the disease to go undiagnosed for years. "

The Solution: The campaign encourages anyone with lingering respiratory symptoms to visit a pulmonologist to determine if a CT scan is needed. "
Barbara