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Share Your Brain Tumor type & Years since Diagnosis
Hey everyone I was diagnosed almost 7 years ago with a medulloblastoma in my right cerebellum. Completely removed followed by proton radiation. No reoccurrence since. Just curious what everyone else has and how many years and treatment
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I am 19 years post pituitary adenoma ping pong ball sized. I have diabetes insipidis, hypothyroidism, adrenal, insufficiency, and live on replacement hormones. I have pituitary adenoma apathy. I have a hard time showing any feelings. This is not depression. I have had cataract surgery twice on each eye. My immune system is compromised. I was very lucky that my vision came back sharp and clear because one eye was almost blind because the tumor was pressing on the optic nerve. Whenever I get sick, I have to double my steroid intake for several days. I try very hard to stay well. I had a superior surgeon, Dr. Charles Rosen. Pituitary gland was removed with the tumor. That is the cause of all the other things. The apathy is the one thing that I cannot control and I’m wondering if anyone else is having problems with this.