Trouble swallowing after stroke - Need advice, help please

Posted by musikbliss @musikbliss, Oct 11, 2021

I had a hemorrhagic stroke on August 27, 2020. I went into the hospital for a breast reduction and on the way from the pre-op room to the operating room I had my stroke. I don't remember it. I just remember waking up with a trachea two days later in another hospital wondering what happened and why was I a vegetable. I was in the hospital. It wasn't a great stay. I couldn't eat i had to get a Peg tube inserted but they couldn't wake me up so I got another trachea and woke up in the ICU 1hey1 days later. I'm now in chronic pain. That chronic pain is literally killing me. I want to take me own life every day. And the chronic pain is likely from the hospital stay. The pain started there and continued when I left getting worse and worse after I left. My mouth and throat are bone dry so eating bread is like eating sawdust. I can eat now but its not easy. And after I eat the pain begins again. It feels like someone is choking me, taking a knife down my throat and pouring acid down it. And it constantly pushes up but only a slight bit of saliva come up. Its like the muscles that you hawk a loogee with don't work at all. I write this because I need help. Does this sound familiar to anyone? How can I help this. Will it go away? Is therre a doctor who can help me? I have military insurance . Please Hlep. I was 38 When this happened. I'm 39 and am getting medboarded out of the air force. I need hep. I have to be able to work again. I can't live with this pain. Please help. Thank you.

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Profile picture for MelissaDawn @mdawn

My pcp sent me for a barium swallow study. I thought i would be having the modified swallow study with a speech therapist, but my pcp said that was only for stroke patients, etc.... I didn't agree with her on that, but she was adamant. I saw a speech therapist years ago when this started, and feel I need to see one again. I would need a referral, but again my dr sounded firm on this!

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@mdawn - wondering if you ended up going back to speech therapy? If so, how did it go?

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Profile picture for Lisa Lucier, Moderator @lisalucier

@mdawn - wondering if you ended up going back to speech therapy? If so, how did it go?

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@lisalucier Hi Lisa. I have been to speech therapy many times and multiple swallow studies. No answers..

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