Trigeminal numbness

Posted by gregk @gregk, Aug 31, 2018

About 3 months ago I awoke with my tongue numb on the right side. The next day the numbness was all over the right side of my face. I've had a CT scan, MRI scan, blood work and I've met with a neurologist. No signs of palsy, MS…nothing. All my blood work is clean. The only symptom is that it feels like the trigeminal nerve on the right side of my face is numb. No pain, just numb.
I had some fatigue and dizzyiess for a bit. Then my PCP, with a consult from a neurologist, prescribe gabapentin. I feel that exacerbated my dizziness, fatigue and now double vision. After my visit with a neurologist he said that there's no reason to be on that so I weened myself off. I've been fine ever since. No fatigue, dizziness, or double vision anymore. But I still have the nerve numbness.
Anybody out there with the same? Any recommendations? Any doctors have a cure?

@denny2788

Any out there suffering from trigeminal neuralgia type 2

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Does anyone have bilateral trigeminal neuralgia type 2? Do you ever get any relief or are you always in pain? How fast does it progress?

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Any out there suffering from trigeminal neuralgia type 2

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Hi @denny2788
I am so sorry you are suffering from bilateral trigeminal neuralgia. I know that can cause severe pain that can feel like electrical shocks, which is terrible!
Just as Colleen did, I have moved your posts to the discussion that is already talking about trigeminal neuralgia. It's important in the connect community to keep like conversations together so that members can easily search and connect with you about your diagnosis without having to scroll through multiple posts. We always encourage new conversation, but it is necessary to link the groups together by what ails them.

That being said, can you give us a little more information about your diagnosis? How long have you had it? What kind of treatment ha been prescribed?

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