Trigeminal numbness

Posted by gregk @gregk, Aug 31, 2018

About 3 months ago I awoke with my tongue numb on the right side. The next day the numbness was all over the right side of my face. I've had a CT scan, MRI scan, blood work and I've met with a neurologist. No signs of palsy, MS…nothing. All my blood work is clean. The only symptom is that it feels like the trigeminal nerve on the right side of my face is numb. No pain, just numb.
I had some fatigue and dizzyiess for a bit. Then my PCP, with a consult from a neurologist, prescribe gabapentin. I feel that exacerbated my dizziness, fatigue and now double vision. After my visit with a neurologist he said that there's no reason to be on that so I weened myself off. I've been fine ever since. No fatigue, dizziness, or double vision anymore. But I still have the nerve numbness.
Anybody out there with the same? Any recommendations? Any doctors have a cure?

Liked by gregk

Yes, I have severe numbness on the right side of my nose, forehead, my tongue and right side inside my mouth. It's been 16 months since surgery. I am on 600 mg of gabapentin 2 X's a day – the gabapentin does nothing for me.

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Hi @kraison1979, I agree the gabapentin helps with pain. I have neuropathy on the left side of my body from my forehead to my toes. Unlike you, I don’t have the uncomfortable feeling in my mouth. Since the gabapentin is not working, I would contact the physician prescribing the medication to try another method or medication. Talk about how you would prefer to handle the pain.

Liked by Hank

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@avmcbellar

Hi @kraison1979, I agree the gabapentin helps with pain. I have neuropathy on the left side of my body from my forehead to my toes. Unlike you, I don’t have the uncomfortable feeling in my mouth. Since the gabapentin is not working, I would contact the physician prescribing the medication to try another method or medication. Talk about how you would prefer to handle the pain.

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I wold just as soon not take anything. The most disturbing thing is the terrible numbness in my mouth and the majority of my tongue. i have lost much of my taste senses along with the numbing in the roof of my mouth; needless to say, I have burned the roof of my mouth numerous times while eating as I could not tell how hot some food was.

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@kraison1979

I wold just as soon not take anything. The most disturbing thing is the terrible numbness in my mouth and the majority of my tongue. i have lost much of my taste senses along with the numbing in the roof of my mouth; needless to say, I have burned the roof of my mouth numerous times while eating as I could not tell how hot some food was.

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Hi @kraison1979, awful to deal with in your mouth. My heart goes out to you. You have to remember your brain does not get the proper signals to deal with the temperature changes in your mouth so be extra careful with burns. Without thinking, I used my left hand predominately and suffered both cold and hot burns. Since then I have been more cautious and have not gotten burns again. @kraison1979 perhaps going to an ENT(ear, nose, throat) doctor may further help. Some specialize in throat. See what is available in your area.

Liked by Hank

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