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Trigeminal Neuralgia & Tinnitus
I was diagnosed with trigeminal neuralgia 11 years ago. I've been treating it with Toprimate and it's worked well. 3 years ago after having a hip replacement, I came down with tinnitus. This isn't normal tinnitus where you hear a buzz, ring, etc. This is a high pitched excruciating whistle in my head that is constant. It never stops. I want to jab a screwdriver in my ear but it's not in my ear. It never stops. It doesn't get better, it just gets louder. I have hearing aids to try and take some of the noise away. They don't work. I have pressure on the right side of my head. I've tried neuropressure-the pressure on the left side of my head bent the needles. Didn't work. Behavioral therapy. Didn't work. I have a therapist. Somedays it's so bad I've contemplated suicide because I can't imagine living with this for the rest of my life. I have migraines because of it. No one seems to understand how loud or constant this is. Does anyone else have any experience with this? Any help would be appreciated!!!
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I understand and I’m so sorry you have this. I shattered my eardrum as a child and have had tinnitus for 55 years non-stop in that ear since on top of hearing loss. Mine kind of sounds like the bathroom or stove fan going right in my ear. Sooo loud. I hear it above everything else 24/7. Your high pitched noise would be even worse. I can only dream about quiet. I wish I had a solution for you. The only thing that would mask my noise is an airplane engine.
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1 ReactionI can feel your pain!!!! I lost hearing in my left ear 3 months ago and since then I have had constant ringing. Sometimes it is louder than other times. But, it is always there and always disgusting!!! When at the lower pitches, I try to treat the ringing like 'White Noise'. It helps as a distraction, but not a cure.
I am now going thru the testing stage of different CROS HA's because my right ear is fine. Fine except for the freakin ringing, ugh!!! The 1st pair didn't work for me and next week I'll try a different manufacturer.
I have read that Cochlear Implants can help to reduce the ringing. I hope things work out for you. Funny/Sad how modern medicine sometimes has zero explanations for human health problems!!!