Trigeminal Neuralgia & Covid-19 shots

Posted by dandl48 Dave @dandl48, Mar 5, 2021

My wife suffers from Trigeminal Neuralgia and is concerned that having it would stop her from getting the Covid shot since she has read that with the Pizer shot people with Neurological disorders are advised not to get the injection. Thoughts?

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Hi, Dave. I have TN (dormant at this point), and had the C-19 vax last month without any related issues. I was given the Moderna vaccine, but haven't heard anything linking the Pfizer (or J&J) shot with TN.

Suggest you do the research, and if you find any connection to TN with a particular vax, avoid registering your wife for it, and simply choose one of the others. Fortunately, she has options which are becoming more and more available.

Good luck!

/LarryG

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@larryg333

Hi, Dave. I have TN (dormant at this point), and had the C-19 vax last month without any related issues. I was given the Moderna vaccine, but haven't heard anything linking the Pfizer (or J&J) shot with TN.

Suggest you do the research, and if you find any connection to TN with a particular vax, avoid registering your wife for it, and simply choose one of the others. Fortunately, she has options which are becoming more and more available.

Good luck!

/LarryG

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larryg333 @larryg333 Thanks for the response. She is going to have the Moderna shot on Monday.

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@dandl48

larryg333 @larryg333 Thanks for the response. She is going to have the Moderna shot on Monday.

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Hi Dave. My wife had a TN crisis 1 month after the 2nd dose of moderna, luckily it improved with gabapentin. How was your wife after the shot? I didn't know that it could trigger a neuralgia. Do you have any information or link about it? Thank you.

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@larryg333 My wife was fine after her Moderna shot. No triggering of TN

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@dandl48

@larryg333 My wife was fine after her Moderna shot. No triggering of TN

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Cool! Happy to hear that.

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@larryg333

Cool! Happy to hear that.

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must depend on a certain individuls under lying health issues

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I have TN for the last 4 years and took the first 3 moderna vaccinations. Even if I am always sick, I didn't see and worsening due to the vaccinations.
By the way, I have heard that mayo has great teams of specialists that treat TN, has anyone treated by them and got well?

Thanks
Andre

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I spent a week at Mayo and no help just said sorry Trigeminal nerve pain is the worst and it will be 3 years soon

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@janeamartin

I spent a week at Mayo and no help just said sorry Trigeminal nerve pain is the worst and it will be 3 years soon

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Thank you @jaeneamartin, how are doing now? What medication are you taking?
I am taking 800mg Tegretol and 300mg Lyrica and the pain is about 6/10. The side effects are bad. I have tried several other medications since the start of this condition in 2018

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Been googling links between the Moderna shots and TN. Never had TN before, about 2 weeks after the 3rd Moderna shots, I started having severe headaches on the right side of the head (I already was on Gabapentin for nerve pain in my leg which might have delayed the debilitating head pains)

Went through several doctors, ER visits and diagnostics methods, only to end up with a diagnosis of TN, likely type 1 and 2 as there always is head pain 6/10 with episodes of 9/10. On Gabapentin (300mg) and Carbamezipine (800-1,000mg) which makes the pain manageable, but pain is now moving to the left side of the head as well.

Has anybody had TN which was caused by the vaccines?

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I developed TN on the left side of my face last February and have also been vaccinated with Moderna but until I see some scientific explanation of a connection between the two I would consider it simply a coincidence. TN is an overreaction by the trigeminal nerve to a stimulus which, as I can attest, is horribly painful and frightening.
It is frequently attributable to damage to the myelin sheath covering the nerve and is sometimes idiopathic which simply means that all of the causes are not understood. I have had good success taking 200mg of gabapentin at bedtime and 100mg in the morning and 100mg at noon. I think that the theory is that gabapentin reduces nerve excitability but, unfortunately, the exact reason it frequently succeeds with TN is poorly understood. That makes me very uncomfortable but so far so good.

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We must believe in Science.. and that includes statistics.. Have you corresponded directly with Moderna..?

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