Trial for new epilepsy med
Shortly starting an open label clinical trial to evaluate a new epilepsy drug called vormatrigine, developed by Praxis Precison Meds. It's 14 weeks long, divided into extensive screening, and a number of visits with a great deal of assessments and procedures. Belive this is first phase, which I'm sure with no placebo, looking for side effects and adverse reactions to study drug. 50 or so participants, across the globe, who have focal onset or tonic-clonic seizures, all getting same dosage, are the first guinea pigs.
1. Anyone heard of this trial or study drug?
2. Anyone actually doing it?
3. Any other thoughts or comments?
Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.
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Hi @cathy5161
What you've been through sounds very scaring. If I understand correctly, this happened while you were still participating in the trial, correct?
I'm so happy to hear that you haven't experienced any withdrawal effects—that's truly a blessing. 🙏
I hope your appointment with your doctor next week goes well. Please keep me posted on how everything goes.
Chris
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