Heard of treatment using Pulsed Intermittent Gaussian Noise (PING)?

Posted by royanthony @royanthony, Aug 1 5:58pm

Has anyone heard of this new epilepsy non-intrusive treatment? PING stands for Pulsed Intermittent Gaussian Noise. It's being investigated as a potential treatment for drug resistant epilepsy.

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Leonard | @jakedduck1 | Aug 1 7:18pm

@royanthony
I've not heard of it, but it sounds like it would be irritating to me.
take care,
Jake

Chris Gautier, Volunteer Mentor | @santosha | Aug 2 7:18am

Hi @royanthony
That's interesting. I haven't heard about this either.
How did you learn about this type of treatment? Did your doctor recommend it to you?
If you could share any articles or scientific papers, I would love to read them to learn more about this treatment.
Chris

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royanthony | @royanthony | Aug 4 11:33am

I'll research an easy access article and reply

royanthony | @royanthony | Aug 4 11:36am

fusfoundation.org Tell me what you think. Note it seems to be in an infancy stage.

Dan Noyes | @dannoyes | Aug 4 1:22pm

@royanthony This is really interesting. Thanks for sharing.

Chris Gautier, Volunteer Mentor | @santosha | Aug 5 6:57am

In reply to @royanthony "fusfoundation.org Tell me what you think. Note it seems to be in an infancy stage." + (show)

Hi @royanthony
Thank you for sharing this exciting development. I hope this project continues to receive adequate funding to move toward human trials. This could offer real hope for those living with refractory epilepsy!
I'm sharing some related articles about PING from the FUS Foundation to make it easier for anyone interested in learning more:
- $2.5 Million Grant Will Fund Early Epilepsy Study
https://www.fusfoundation.org/posts/grant-will-fund-early-epilepsy-study/
- Innovative Focused Ultrasound Research for Neurological Disorders Featured in Journal of Neurosurgery
https://www.fusfoundation.org/posts/innovative-focused-ultrasound-research-for-neurological-disorders-featured-in-journal-of-neurosurgery/
Chris

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royanthony | @royanthony | Aug 5 2:18pm

In reply to @santosha "Hi @royanthony Thank you for sharing this exciting development. I hope this project continues to receive..." + (show)

Chris, you often follow up with good https references, so I thank you. The epilepsy community needs more than $2.5 mil in grants.

Chris Gautier, Volunteer Mentor | @santosha | Sep 2 6:39am

In reply to @royanthony "Chris, you often follow up with good https references, so I thank you. The epilepsy community..." + (show)

@royanthony
Thanks for saying that - I believe having good information makes such a difference in our journeys with epilepsy.
You're absolutely right about the funding needs for epilepsy research. Epilepsy affects so many people, but receives relatively little research support compared to other neurological conditions. Hopefully, as more people share their stories, we'll see those numbers grow. Every voice matters in pushing for increased research investment!
Recently, I came across a new procedure in the experimental phase called Regenerative Brain Cell Therapy. Unlike surgical resection (which removes brain tissue), this therapy aims to add healthy cells to restore normal brain function. While still in clinical trials, the early results are encouraging.
Here's more information about this groundbreaking research:
Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom
Cure Epilepsy
https://www.cureepilepsy.org/seizing-life/regenerative-brain-cell-therapy-one-womans-journey-to-seizure-freedom/
Chris

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