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Treatment of Mycobacterium Abscessus

Posted by Susiellen @susiellen, Apr 9, 2023

I have Abcessus, and recent test results show a positive Acid Fast Smear. My pulmonologist says because the AFS is positive, that means the bacteria is growing and it’s time to start treatment. My PFTs and CT are stable. My question: has anyone had the experience of starting treatment based on a positive AFB?

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Susiellen | @susiellen | Jun 5, 2023
In reply to @thielmann1 "Was diagnosed with mycobacterium absessus 2 years ago, I took Amikacin (infusions) for 2 months until..." + (show)
@thielmann1

Was diagnosed with mycobacterium absessus 2 years ago, I took Amikacin (infusions) for 2 months until tinnitus developed; then went to inhaled Amikacin as well as azithromycin and chlofazimine for a year, sputum cultures came back negative for an entire year. I came off the regimen only to have it back again in sputum after a few months; obviously, am quite discouraged. Anybody have experience with this type of Mac, what medications have you taken; what has been your success? I sure don’t want to start this regimen up again, but not sure I have a choice. Thanks for any of your input.

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I imagine that having it show up again was discouraging. However, I’d encourage you to speak to you doctor - if he/she is experienced in NTM treatment- because you may have options.

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