What helped your seizures: Treatment Center? Neurologist? Home care?

@santosha Thank you for the information I will review each link with my healthcare professional to determine whats next after testing and a diagnosis as it is important to understand what occurred on 12/17/2025 that changes my life I keep you posted

@santosha I am currently being diagnosed for transient awareness since I fainted or passed out the hospital just treated me until I woke up basically gain consciousness. I was so combative inside I decided I would be fine 15days later I start noticing my spelling off my balance off I cant remember routines from high school 1999 a lot is just not registering. I usually don't have insurance so treatment and prescriptions are out. When insurance kicks I am asking what would be the fastest way to get my 11/6/2025 self anything after me not me I just kind of been consciousness 12/ 5/2025 I begin to recite what my life was when I fill the gaps its a struggle word searches, jeopardy, who wants to be a millionaire. I have to continue appointment with neurologist in the future there hopefully I can be and 11/16/2025 the memory picks up not my normal 1995 memory until its a struggled not drugs not on alcohol just cramming or toxicology would state if I had go poison thru a cigarettes I don't know waiting and pending

Hi @27angel again!
May I ask – are you the one with epilepsy, or are you caring for someone who has it?
Chris

Hi @27angel
Since my epilepsy diagnosis in 2019, several things have really helped me manage my seizures and epilepsy symptoms:
1. Finding the right doctor has been the most important step. I needed someone who not only seeks seizure freedom but truly cares about their patients' overall well-being – a doctor who welcomes questions and encourages you to learn about your condition.
2. Learning my seizure triggers has been enormously helpful. With the guidance of Dr. Andrews and her book "Taking Control of Your Seizures," along with keeping a daily diary (whether I had seizures or not), I've identified my major triggers and even learned to recognize my prodromes – those warning signs that can appear hours or even days before a seizure. Here are some resources if you're interested:
- Andrews-Reiter Website and Approach to Epilepsy
https://www.andrewsreiter.com/newbook.html
- Taking Control of Your Seizures: Workbook
https://www.amazon.com/Taking-Control-Your-Seizures-Treatments/dp/019933501X/ref=sr_1_1
3. Support from my neuropsychologist has been invaluable, especially in those first years after diagnosis. She helped me tremendously with accepting my epilepsy, navigating its challenges, and adapting my lifestyle. Learning to live with epilepsy instead of fighting against it has also helped me control my seizures better.
I have epilepsy, but I don't let epilepsy have me. I continue living my life through adaptations.
Chris

I know my answer here may not fall under the specific conditions you show, but in general for all, the thing that has helped me the most is being less stressful and getting better sleep, although my sleep starts and stops twice a night. I'll take it though if it helps me from having a seizure.

Seeing an epileptologist was the best thing I ever did! I went through three neurologists & the last one sent me to my epileptologist.

@27angel ,
The thing that helped the most with my son's seizures was being able to get in to Mayo Clinic in Phoenix, AZ. My son's neurologist, Dr. Noe, is absolutely amazing. Our initial visit was over 2 hours long and included blood work and a referral to genetics, to see if there was something in my son's genes that would be a contributing factor. I would definitely recommend getting in to see a neurologist at Mayo. They are absolutely amazing and some of the most wonderful people you'll ever meet.
Another thing that was extremely helpful was keeping a daily journal (activities, sleep, stress, food, etc. ) to see if we could find a trigger to my son's seizures, since he is non-verbal. Having a strong, dedicated support team is crucial. I am so happy you found this support group. The people here are amazing and were EXTREMELY helpful when my son was first diagnosed (my son had adult onset epilepsy and is diagnosed with Mesial Temporal Sclerosis). Lean on the support you'll find here and your family/friends.
Kerry

@methel I enjoy reading your reaction to my concern with how I will be treated during this forgetful stage my brain is in my extremities from time to time burn and tingle still on vitamins for the time until Medicaid turns I have no medicine for this pending I will check on the Cleveland clinic of OHIO

It's only five months since my hospitalization for my first seizure episode. Thanks to the hospital neurologist and my own neurologist, I have had no seizures since hospital discharge on June 28. Meds seem to be doing what they're supposed to do: combination of lacosamide and gabapentin.

@27angel

If I were in Ohio I would try to get to the Cleveland clinic. They treat many very complex neurological disorders. So far as what worked for me. The person who drew my blood once at a standard QUEST place, volunteered that she also had epilepsy and the AED that worked for her. I brought her suggestion back to my neurologist and he prescribed it and it has worked for almost 8 years now. Best wishes