Traveling with Bronchiectasis/NTM
Can you travel with Bronchiectasis/MAC/NTM? The experts say YES.
For a long time, Connect members have asked this question, and gotten all sorts of answers, mostly based on our collective personal opinions. This is what the experts say on the subject. These are questions individuals in the European Bronchiectasis Registry asked, which were formulated into a questionnaire and presented to a group of lung experts around the world (including Mayo Clinic):
https://publications.ersnet.org/content/erjor/5/4/00113-2019
The experts' responses say "YES" and outline precautions to take, even to some things I thought impossible like scuba diving. And even if on antibiotics or oxygen. These are the same things my docs stressed, and what I follow when traveling, including a recent 3 week camping trip through the US and Canada, followed by a 3 week air and land trip in Europe. I manages to stay healthy throughout both, as did my traveling companion who also has bronchiectasis. Our new Pari Rapid eFlow nebulizer got a real workout, and we had a ready supply of masks.
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Connect

@westcottkm3040 3% alcohol won't kill MAC/NTM. You would need a 70% concentration, I am not sure of the soaking time required.
Sorry. 90% for 5 mins.
@sueinmn Sue, if one uses ten minute boiled distilled water with Dawn to clean and rinse....and then new boiled ten minute distilled water with the ratio of 3 cups distilled/1 cup Cleaning Vinegar....(soaking all for 30 minutes). Would that not demineralize and sterilize at the same time..... What are your thoughts?
I wonder if cleaning vinegar can be found in Europe??? Oh I just looked it up .....and AI, for what it is worth said yes???
Barbara
@blm1007blm1007 Barbara, I am curious why you would need to "demineralize" if you are boiling in distilled water?
Also, remember, by boiling in vinegar water, you are changing the chemistry - I have no idea whether boiling in acid would be tolerated by our equipment.
@sueinmn My perception and thought was the vinegar soak, after "cleaning" the parts in Dawn dish detergent, is to take the salts off of the nebulizing cup parts where the saline clings to and is still in it after the therapy session, doing this before the sterilization in the boiling water.
OK. I think I understand your reply about my thoughts of using boiling water with vinegar rather than room temperature water for the vinegar sterilization.
Do the sterilization with distilled boiling water, only, after the vinegar soak...... if I choose to do both..do it that way???
Does that sound like I'm getting it?
Barbara
@blm1007blm1007 As long as you rinse between the vinegar soak and boiling, it should be okay.
But...why? If you have washed it in Dawn, there shouldn't be any salt to remove. The detergent and a little agitation or a wash with a brush will remove it all. And even if a tiny bit remains, it should be removed by boiling.
I think life is complicated enough without adding extra steps.
-
Like -
Helpful -
Hug
2 Reactions@sueinmn Got it.. Yes.. thanks...... of course, dissolved and "removed by boiling." Barbara says to herself....Duh!
Again, yes...."life is complicated enough without adding extra steps."
Barbara
-
Like -
Helpful -
Hug
1 Reaction@scoop
Do you use the Grownsy to sterilize the eFlow? If so, do you also use the dry cycle?
@cayenne yes, the GROWNSY is my travel BBS (US). I set it on max which includes the drying cycle. I almost exclusively use distilled water in it. There have been times where I’ve been without distilled water and use previously boiled tapwater. It leaves behind some mineral residue, which is easy to clean up no issues. The erapid has held up well with this type of cleaning and drying. I use a Bololo at home and run it every night.
@scoop
Thanks for your reply. I just ordered the eRapid and also use the grownsy for domestic travel (with distilled water). My at home bbs does not have a drying cycle so I plan to let it air dry.