Traveling to see an expert

Posted by cavlover @cavlover, Dec 13, 2020

Hi everyone, I am very new to this site being diagnosed only 2 months ago. Your posts have taught me so much; so I thank you all.
I’m wondering if anyone travels to see an expert in treating Bronchiectasis. My husband and I are considering a move. This will be hard because I really like my pulmonologist and his hospital. If you do travel to see an expert out of state, do you also have a pulmonologist where you live in case you have to go to the hospital? Also how many times a year do you see an expert doctor if you travel?
I’m feeling like I have to stay where I am and just not follow my dreams. Hope I’m making sense!

Hi Cavlover, Your words convey just how addled we can feel when serious health issues decend on us. I suggest that you take a moment, or a minute, an hour or a day to let “the house is on fire” urgency diminish.
In the meantime, just so you don’t get bored, how about telling us why you can’t have your cake and eat too. For example, why move away from the doc you like? I think others on this forum will confirm that people travel to Mayo all the time for consultation and treatment without moving permanently to Rochester.
Now prepare to be awash in responses from some of the really savvy people who are reading this right along with you. Don

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BTW, I know I misspelled “descend.” Oh well…

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@thumperguy

Hi Cavlover, Your words convey just how addled we can feel when serious health issues decend on us. I suggest that you take a moment, or a minute, an hour or a day to let “the house is on fire” urgency diminish.
In the meantime, just so you don’t get bored, how about telling us why you can’t have your cake and eat too. For example, why move away from the doc you like? I think others on this forum will confirm that people travel to Mayo all the time for consultation and treatment without moving permanently to Rochester.
Now prepare to be awash in responses from some of the really savvy people who are reading this right along with you. Don

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Hi Don,
You are so right! I absolutely don’t need an answer today. It’s just like me to worry and want an answer now. 😂 So thank you for helping me keep it light and adding some humor to the situation!
I’l still do my research remotely because there are several reasons why we want to retire elsewhere than where we are now. I’m feeling positive that I will find a local pulmonologist and also be able to go to Mayo or Jewish National for a yearly checkup. I didn’t know it was possible to get treated (if you get sick) and live far away from the experts.

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I travel to see my pulmonologist about 6hr one way on a yearly basis, right now, as my condition is stable. There is no pulmonologist in the community in which I live and their affiliate, larger clinic was unable to diagnose my illness until I was seen at Mayo, Rochester. Thus, no matter where I live, I will always research respected clinics that can effectively manage this uncommon disease. Hope this helps you in your decision making journey about following a dream!

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@cavlover

Hi Don,
You are so right! I absolutely don’t need an answer today. It’s just like me to worry and want an answer now. 😂 So thank you for helping me keep it light and adding some humor to the situation!
I’l still do my research remotely because there are several reasons why we want to retire elsewhere than where we are now. I’m feeling positive that I will find a local pulmonologist and also be able to go to Mayo or Jewish National for a yearly checkup. I didn’t know it was possible to get treated (if you get sick) and live far away from the experts.

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On Retiring elsewhere. We did that. I had been traveling yearly to National Jewish. Required plane trip and 2 nights or three in a hotel. We retired to Cary, N C. The University of North Carolina opened. bronchiectasis/MAC Clinic in. Chapel Hill, a 40 minute drive. Plus, nice place to live.

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@woot

On Retiring elsewhere. We did that. I had been traveling yearly to National Jewish. Required plane trip and 2 nights or three in a hotel. We retired to Cary, N C. The University of North Carolina opened. bronchiectasis/MAC Clinic in. Chapel Hill, a 40 minute drive. Plus, nice place to live.

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Thank you! I will check it out!

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@woot

On Retiring elsewhere. We did that. I had been traveling yearly to National Jewish. Required plane trip and 2 nights or three in a hotel. We retired to Cary, N C. The University of North Carolina opened. bronchiectasis/MAC Clinic in. Chapel Hill, a 40 minute drive. Plus, nice place to live.

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I have MAC. Who did you see at Chapel Hill. Thanks

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Once upon a time a niece lived in that vicinity; Carrboro (sp?) Fond memories of dining alfresco on what seems (in memory) like the town square which wasn’t quite a square.

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I also live in the Raleigh/Wake Forest NC area and travel to National Jewish. Locally I see Dr Daniels who is great and very knowledgeable. I don't like the local labs so I always send my cultures to National Jewish.

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@pop55

I also live in the Raleigh/Wake Forest NC area and travel to National Jewish. Locally I see Dr Daniels who is great and very knowledgeable. I don't like the local labs so I always send my cultures to National Jewish.

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NJH has the best research and the best infectious disease team…..they have repeated found and successfully treated my serious lung issues local experts have missed.

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