Transplant list

Posted by ginal @ginal, Apr 11, 2018

Hi, I started Hemo Dialysis 3 weeks ago. My question is when do you usually start all the tests and get put on a transplant list?

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

@kanaazpereira

Hello @ginal,

Welcome to Connect; I'm so glad you've joined us. We have so many incredibly informative conversations taking place about kidney transplant. To begin, I've listed a few below:

– Getting Listed for Transplant https://connect.mayoclinic.org/newsfeed-post/getting-listed-for-transplant/
– Kidney transplant https://connect.mayoclinic.org/discussion/kidney-transplant-1/
– It's been too long,but surely here and finally on the waiting list https://connect.mayoclinic.org/discussion/its-been-too-longbut-surely-here-and-finally-on-the-waiting-list/

I’m tagging @contentandwell @IWantToBelieve @cmael @dshaver @2011panc @sevkira @mlmcg @coastalgirl @ters1993 @bszychow @scottb32 @wmoser2613 @hardaway3 @katieslost @karis @jtannen1 and Mentor @rosemarya, as they may be able to share their transplant stories with you.

@ginal, we look forward to getting to know you and supporting you on your transplant journey; would you share a few more details about yourself?

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Please do tag her. I actually work with the veterans in the hospital, but regularly meet and talk with transplant patients as well. I enjoy sharing stories.

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@kanaazpereira

Hello @ginal,

Welcome to Connect; I'm so glad you've joined us. We have so many incredibly informative conversations taking place about kidney transplant. To begin, I've listed a few below:

– Getting Listed for Transplant https://connect.mayoclinic.org/newsfeed-post/getting-listed-for-transplant/
– Kidney transplant https://connect.mayoclinic.org/discussion/kidney-transplant-1/
– It's been too long,but surely here and finally on the waiting list https://connect.mayoclinic.org/discussion/its-been-too-longbut-surely-here-and-finally-on-the-waiting-list/

I’m tagging @contentandwell @IWantToBelieve @cmael @dshaver @2011panc @sevkira @mlmcg @coastalgirl @ters1993 @bszychow @scottb32 @wmoser2613 @hardaway3 @katieslost @karis @jtannen1 and Mentor @rosemarya, as they may be able to share their transplant stories with you.

@ginal, we look forward to getting to know you and supporting you on your transplant journey; would you share a few more details about yourself?

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@wmoser2613, She will get it because I used her @name. That is how you can address a message to a particular individual and they will get an email notification. That is why I used @wmoser2613 at the beginning of this reply.

If you ever have any spare time, You are invited to share your stories here in the transplant discussions!
Rosemary

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I'm thrilled to share this spotlight about our Mentor Rosemary @rosemaryahttps://connect.mayoclinic.org/newsfeed-post/a-passion-for-transplant-patients-meet-rosemarya-1/
I know you will enjoy reading it and getting to know Rosemary, as much as I have!

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How careful? Wonder how often peritonitis happens with peritoneal dialysis?
My husband is getting ready to do the peritoneal and I will help him make sure it is done carefully. What happens if you have to skip one or two nights of treatment?
Thank you for anytime you give to my questions.

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@ca426

I have done both, and peritoneal dialysis is easier but you have to be very carful because you can get peritonitis, which is very painful and you get very sick.

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My husband did dialysis for six weeks two years ago and now, his numbers indicate that he needs to have dialysis again. He is preparing to go on peritoneal dialysis and I plan to help him. I wonder how frequently peritonitis happens and what special precautions one should take to prevent this from happening?
What happens if you have to miss a night of treatment? Did you have any aftereffects from this dialysis like you did from the other? How long did it take for you to feel better? Thank you so much for any time you give to my queries.

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@lpw

My husband did dialysis for six weeks two years ago and now, his numbers indicate that he needs to have dialysis again. He is preparing to go on peritoneal dialysis and I plan to help him. I wonder how frequently peritonitis happens and what special precautions one should take to prevent this from happening?
What happens if you have to miss a night of treatment? Did you have any aftereffects from this dialysis like you did from the other? How long did it take for you to feel better? Thank you so much for any time you give to my queries.

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@lpw Good questions, and definitely worthy of answers.

I have answered your questions within the discussion in the Kidney and Bladder Support Group titled "Dialysis - Stories and Questions" https://connect.mayoclinic.org/discussion/dialysis-stories-and-questions/

See you there!
Ginger

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@lpw

My husband did dialysis for six weeks two years ago and now, his numbers indicate that he needs to have dialysis again. He is preparing to go on peritoneal dialysis and I plan to help him. I wonder how frequently peritonitis happens and what special precautions one should take to prevent this from happening?
What happens if you have to miss a night of treatment? Did you have any aftereffects from this dialysis like you did from the other? How long did it take for you to feel better? Thank you so much for any time you give to my queries.

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My husband is doing peritoneal dialysis at home while he sleeps. It's working quite well and you should receive very detailed instructions on what to do to prevent infections. I will say that my husband is an electrical engineer and readily understood how the machine functions. Still, we've had a couple of power outages or other situations where he had to call the company and be walked through the procedure to get it going again - I'm not sure I could do it. If you do it at home, be prepared for lots and lots of boxes. I think they brought us 101 in the beginning. The other surprise to us was that he couldn't take a shower for a very long time and will never be able to swim in a pool, river or lake. They said he could go in the ocean. I wish you the very best. Vicki

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Thank you so much for your kind words. We are retired and so hopefully! Thank you again.

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