1. < Transplants

Transplant News and Events

Posted by Kristin Eggebraaten @keggebraaten, Feb 20, 2018

Hello everyone!
Many events are held each year and many news stories are published that may interest the transplant community. We thought it might be nice to let people know of some of these events and stories, even if they may not apply to everyone. In this discussion, feel free to post events and news stories that might be of interest to transplant patients, caregivers, or donors.

Of note, be sure that your posts don’t violate any of the rules of Connect – you can find those here: https://connect.mayoclinic.org/community-guidelines/.
Specifically, please be sure you don’t post commercial postings, advertisements or solicitations.

  • Postings such as advertisements for your business, get-rich-quick schemes or solicitations for a charity will be removed. Unfortunately, it is impossible to verify the validity of each and every organization that solicits donations; therefore, to protect you from fraud, we must prohibit solicitations for charities.

What events are you looking forward to?

Interested in more discussions like this? Go to the Transplants Support Group.

jolinda | @jolinda | Jan 18, 2021
In reply to @danab "@jolinda I did find out that Medicare part b also covers transplant meds but I'm guessing..." + (show)
@danab

@jolinda I did find out that Medicare part b also covers transplant meds but I'm guessing your saying anyone? Is that also for any transplant or just Kidney.
Dana

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It looks like kidney to me but the details are sparse in the article. I hesitated posting it because it could be too political for some but i was hoping someone in our community here would know more.

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jan 18, 2021
In reply to @contentandwell "@jolinda @danab have you not been getting your immunosuppressants paid for by Medicare B up until..." + (show)
@contentandwell

@jolinda @danab have you not been getting your immunosuppressants paid for by Medicare B up until now? Mine have always been covered.
J

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@contentandwell @danab -

The information that @jolinda posted is related to the immune suppression drug coverage for Kidney Transplant patients.

It does not relate to your drug coverage as liver or heart transplant patients. It can be confusing and so I am posting a link that gives a quick explanation -

Congress passes immunosuppressive drug coverage expansion for kidney transplant patients
by American Society of Nephrology
https://medicalxpress.com/news/2020-12-congress-immunosuppressive-drug-coverage-expansion.html

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1 reply
Mentor
Dana, Volunteer Mentor | @danab | Jan 18, 2021
In reply to @contentandwell "@jolinda @danab have you not been getting your immunosuppressants paid for by Medicare B up until..." + (show)
@contentandwell

@jolinda @danab have you not been getting your immunosuppressants paid for by Medicare B up until now? Mine have always been covered.
J

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@contentandwell No up to now it cost me 10.00 per 90 day order I just got my last order mid December so I'm.going to question it. I'll let you know what I find out.

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JK | @contentandwell | Jan 18, 2021
In reply to @danab "@jolinda I did find out that Medicare part b also covers transplant meds but I'm guessing..." + (show)
@danab

@jolinda I did find out that Medicare part b also covers transplant meds but I'm guessing your saying anyone? Is that also for any transplant or just Kidney.
Dana

Jump to this post

@jolinda @danab have you not been getting your immunosuppressants paid for by Medicare B up until now? Mine have always been covered.
J

REPLY
3 replies
Mentor
Dana, Volunteer Mentor | @danab | Jan 17, 2021
In reply to @jolinda "Immune suppression drugs fully covered for kidney transplant patients! If this is real it's amazing! I..." + (show)
@jolinda

Immune suppression drugs fully covered for kidney transplant patients! If this is real it's amazing! I don't know how I missed this but maybe it got buried in the news? Is anyone else seeing these news stories? - @jolinda

ROCKVILLE, MD / ACCESSWIRE / December 28, 2020 / The following statement may be attributed to LaVarne A. Burton, president and CEO of the American Kidney Fund:

“The American Kidney Fund (AKF) thanks President Donald J. Trump for signing a legislative package that includes giving kidney transplant recipients comprehensive immunosuppressive drug coverage for the life of their transplant. AKF and all Ambassadors in the AKF Advocacy Network have worked tirelessly for years on this life sustaining legislation which adds a new Medicare coverage option for immunosuppressive drugs-also known as antirejection drugs-relied on by kidney transplant patients for the life of their transplant.

Jump to this post

@jolinda I did find out that Medicare part b also covers transplant meds but I'm guessing your saying anyone? Is that also for any transplant or just Kidney.
Dana

REPLY
2 replies
jolinda | @jolinda | Jan 16, 2021

Immune suppression drugs fully covered for kidney transplant patients! If this is real it's amazing! I don't know how I missed this but maybe it got buried in the news? Is anyone else seeing these news stories? - @jolinda

ROCKVILLE, MD / ACCESSWIRE / December 28, 2020 / The following statement may be attributed to LaVarne A. Burton, president and CEO of the American Kidney Fund:

“The American Kidney Fund (AKF) thanks President Donald J. Trump for signing a legislative package that includes giving kidney transplant recipients comprehensive immunosuppressive drug coverage for the life of their transplant. AKF and all Ambassadors in the AKF Advocacy Network have worked tirelessly for years on this life sustaining legislation which adds a new Medicare coverage option for immunosuppressive drugs-also known as antirejection drugs-relied on by kidney transplant patients for the life of their transplant.

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2 replies
jolinda | @jolinda | Oct 14, 2020

@tasher3433

Congratulations to you and your family! What a blessing that both donor and recipient are doing well. It is the best news ever. We are so fortunate to be given a second lease on life...now you're bringing tears to my eyes!

Hugs,
@jolinda

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cmael | @cmael | Oct 12, 2020
In reply to @tasher3433 "This brings tears to my eyes! My husband just had his 4 month successful post kidney..." + (show)
@tasher3433

This brings tears to my eyes! My husband just had his 4 month successful post kidney transplant checkup at Mayo Scottsdale last week. We are indescribably thankful to our daughter for her gift of life. Both of my Beaners are doing well! There have been some hard days, but more good ones. The Mayo Team and All of you have helped me more than I can say. Jolinda, I will find a way to share your story even if I have to stand on rooftops! That would be a sight! Thanks to you, to Dawn, to your Mayo team and to the newscasters for sharing your story. Stay well.

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I too, am so grateful for my successful transplant done by Dr Prieto. It’s been two + years since my daughter donated one of her kidneys to me. We are both doing well. Whenever there’s a story on the news about a kidney donor and recipient, I’m totally drawn to it and it can be emotional, remembering how fortunate I am.

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tasher3433 | @tasher3433 | Oct 12, 2020
In reply to @jolinda "This 2 minute video only tells a fraction of the story. The publication of this Mayo..." + (show)
@jolinda

This 2 minute video only tells a fraction of the story. The publication of this Mayo Clinic Study marks the most significant advancement in surgical technique for Polycystic Kidney Disease patients that I know of in my lifetime. Kudos to Dr. Prieto and the other brilliant individuals who made this happen. Big call out too to Lynette my Transplant Coordinator who ensured everything aligned behind the scenes.

God Bless Dawn, my living donor for gifting me a second chance at life.

Jump to this post

This brings tears to my eyes! My husband just had his 4 month successful post kidney transplant checkup at Mayo Scottsdale last week. We are indescribably thankful to our daughter for her gift of life. Both of my Beaners are doing well! There have been some hard days, but more good ones. The Mayo Team and All of you have helped me more than I can say. Jolinda, I will find a way to share your story even if I have to stand on rooftops! That would be a sight! Thanks to you, to Dawn, to your Mayo team and to the newscasters for sharing your story. Stay well.

REPLY
1 reply
jolinda | @jolinda | Oct 12, 2020

This 2 minute video only tells a fraction of the story. The publication of this Mayo Clinic Study marks the most significant advancement in surgical technique for Polycystic Kidney Disease patients that I know of in my lifetime. Kudos to Dr. Prieto and the other brilliant individuals who made this happen. Big call out too to Lynette my Transplant Coordinator who ensured everything aligned behind the scenes.

God Bless Dawn, my living donor for gifting me a second chance at life.

REPLY
1 reply
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