1. < Transplants

Transplant News and Events

Posted by Kristin Eggebraaten @keggebraaten, Feb 20, 2018

Hello everyone!
Many events are held each year and many news stories are published that may interest the transplant community. We thought it might be nice to let people know of some of these events and stories, even if they may not apply to everyone. In this discussion, feel free to post events and news stories that might be of interest to transplant patients, caregivers, or donors.

Of note, be sure that your posts don’t violate any of the rules of Connect – you can find those here: https://connect.mayoclinic.org/community-guidelines/.
Specifically, please be sure you don’t post commercial postings, advertisements or solicitations.

  • Postings such as advertisements for your business, get-rich-quick schemes or solicitations for a charity will be removed. Unfortunately, it is impossible to verify the validity of each and every organization that solicits donations; therefore, to protect you from fraud, we must prohibit solicitations for charities.

What events are you looking forward to?

Interested in more discussions like this? Go to the Transplants Support Group.

gratefulbob | @gratefulbob | Jan 16 10:07am
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

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Okay, using Chrome it does not work. I used Firefox and it worked. I have cookies blocked in Chrome as well as uBlock for security.

REPLY
1 reply
gratefulbob | @gratefulbob | Jan 16 10:03am
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

The meeting still does not work using either the link or launching zoom manually and entering the meeting ID and password.

REPLY
gratefulbob | @gratefulbob | Jan 13 11:41pm
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

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Use the link that @gperry posted. It worked for me. I have links for the Mayo Phoenix kidney and liver support groups. If you want those DM me and I will send them to you.

REPLY
jeanne1959 | @jeanne1959 | Jan 13 8:34pm
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

Hi there!

I am new to the Mayo Clinic Transplant program; but, I had both a liver and kidney transplant performed at UCLA in 2008.
I am having problems with the virtual Zoom meeting and Rachel, the coordinator of this group is only sending automatic replies to email.
I am trying to complete the pre-registration form before Tuesday’s meeting but I am not having any success.
Please let me know if I am missing a step.

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 10 2:21pm
In reply to @gratefulbob "I forgot to mention that Nicole's Mayo Phoenix zoom support meeting is every Thursday at 7..." + (show)
@gratefulbob

I forgot to mention that Nicole's Mayo Phoenix zoom support meeting is every Thursday at 7 pm Arizona time which is 9pm Florida time.

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Hi Bob,
I can coordinate with Nicole and Loren to add the Phoenix support meeting to the Events page. Thanks for the connection.
Colleen

REPLY
gratefulbob | @gratefulbob | Jan 10 2:16pm
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

I forgot to mention that Nicole's Mayo Phoenix zoom support meeting is every Thursday at 7 pm Arizona time which is 9pm Florida time.

REPLY
1 reply
gratefulbob | @gratefulbob | Jan 10 2:12pm
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

The Mayo Phoenix kidney transplant coordinator gave me permission to post information on their support group. It is open to everyone but most people are kidney transplant pre and post surgery patients. I am a dual liver/kidney transplant patient who had surgery at Mayo Phoenix. Note tomorrow their transplant support group should be very interesting since one of the Mayo Phoenix nephrologists (Dr. Sami Alasfar) will be answering questions from the members of the support group. The coordinators of the group are Nicole and Loren. Following is the zoom meeting info.

Meeting ID: 873 0014 4780

Passcode: 599315

I always login by launching zoom first and then entering the above info. The direct link I am unable to post since new members of connect Mayo Florida are blocked from posting links. Nicole encourages you to give her your contact information so she can add you to their Transplant Community Alliance email list. If you cantact me through DM I can message you the zoom link and Nicole's email address.

REPLY
gratefulbob | @gratefulbob | Jan 10 12:22pm
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

When I joined using the zoom app from my computer I would see the coordinators name and receive a message stating the meeting would start when the coordinator arrived. This was after 8am Pacific time.

The link @jerryp provided took me to the registration page. It looks like I have now successfully registered. I didn't get to the registration page using the zoom meeting ID and password on the events page yesterday.

IMHO, it would be great if all the Mayo centers would coordinate their support groups. Mayo Florida's connect web page is really fantastic. Mayo Phoenix has individual zoom coordinator support groups but not a site wide connect page for Phoenix patients that I know of. I don't want to post the individual support groups info here without their permission but the Phoenix transplant support groups are excellent. I believe Phoenix does the most transplants of al the Mayo centers.

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 10 10:51am
In reply to @gratefulbob "Thank you! I hope they update the link on the website. If any people from Florida..." + (show)
@gratefulbob

Thank you! I hope they update the link on the website. If any people from Florida wish to join the liver and kidney online zoom support groups in Phoenix I am happy to oblige.

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Thanks for confirming @gerryp. I also spoke with Rachael, @gratefulbob

The link posted on the Events page is correct. Can you tell me what error message you got when trying to login to the meeting? What happened?

REPLY
gratefulbob | @gratefulbob | Jan 10 8:53am
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

Thank you! I hope they update the link on the website. If any people from Florida wish to join the liver and kidney online zoom support groups in Phoenix I am happy to oblige.

REPLY
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