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Transplant News and Events
Hello everyone!
Many events are held each year and many news stories are published that may interest the transplant community. We thought it might be nice to let people know of some of these events and stories, even if they may not apply to everyone. In this discussion, feel free to post events and news stories that might be of interest to transplant patients, caregivers, or donors.
Of note, be sure that your posts don’t violate any of the rules of Connect – you can find those here: https://connect.mayoclinic.org/community-guidelines/.
Specifically, please be sure you don’t post commercial postings, advertisements or solicitations.
- Postings such as advertisements for your business, get-rich-quick schemes or solicitations for a charity will be removed. Unfortunately, it is impossible to verify the validity of each and every organization that solicits donations; therefore, to protect you from fraud, we must prohibit solicitations for charities.
What events are you looking forward to?
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@gratefulbob, This sounds like a very interesting and informative event.
I am guessing that it is for Mayo Phoenix patients, is that correct?
Do you plan to attend? Have you got a question for the Doctor?
This upcoming Thursday, July 18th at 12pm (AZ time) is the Phoenix Mayo Ask an MD support group event, with special guest, Dr. Elizabeth Carey. Dr. Carey is one of the transplant hepatologists, and she will be answering your questions about all things transplant and liver related.
Join Zoom Meeting
https://mchealth.zoom.us/j/523961121
Meeting ID: 523 961 121
**Passcode required: liver
This is a confidential space so please no recordings or pictures of the group. Please join the group in a quiet, private space.
MAYO (MAYO.pdf)
BIG NEWS! A groundbreaking achievement in organ transplant was released today. Mayo Clinic has performed the first known total larynx transplant on a patient with active cancer. Read more about this amazing surgery and the unique position of the patient that allowed him to proceed with a transplant with an active cancer. Medical Milestone: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-marks-medical-milestone-with-worlds-first-known-successful-total-larynx-transplant-performed-in-a-patient-with-an-active-cancer-as-part-of-a-clinical-trial/
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1 ReactionThanks for posting this, @gratefulbob. I moved your announcement to the discussion titled:
- Transplant News and Events https://connect.mayoclinic.org/discussion/transplant-events/
Can you tell people a bit more about the origins of the group? Who leads it? Is there a place to register for upcoming meetings? Do you have guest speakers or is it more like a coffee-hour exchanging experiences, tips and support?
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1 ReactionFYI
There is an informal zoom support group for all pre and post transplant patients (and caregivers and supporters) that meets every Wednesday at 6pm Pacific time (9pm Eastern time). It is patient led by post transplant patients who share their experiences and tips for dealing with issues affecting transplant recipients and donors. Info and link below
WEDNESDAY NIGHT SUPPORT GROUP
TOMORROW NIGHT
MAY 15TH AT 6:00pm
https://us06web.zoom.us/j/86563648331?pwd=lEwqdURY3jOvaJzeveqmx6r8aYYHXb.1
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1 ReactionAn event for kidney transplant patients, caregivers and family members! Learn how to start the transplant process, find out what to expect throughout the journey, and hear stories from recipients and living donors who have been there. This in-person event will be held April 28th in Minneapolis. We realize not everyone can attend in person - watch for further remote events with similar information coming in the future!
BABG Flyer 4 (BABG-Flyer-4.28-1.pdf)
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2 ReactionsWe found it so hopeful to your: “ yes it was worth it”, to us that’s very encouraging. Thank you.
Please don’t feel forgotten, we are just beginning the process and knowing you got thru the transplant alone is hopeful for us. Hope u keep sharing, Praying for u.
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2 Reactions@arty12856, I agree that chatting with others about how to manage health as we agecan be a positive and motivating experience with the personal reward that comes with learning from/and helping others.
I remember when you responded, "Yes it is" in the group discussion: Is a kidney transplant worth it?
https://connect.mayoclinic.org/discussion/is-a-kidney-transplant-worth-it/
The Transplant Support Group has many questions that are waiting for your experience:
https://connect.mayoclinic.org/group/transplants/
Did you have your transplant in Rochester and be able to attend the on-line group?
I am interested to connect you with other patients. What are your current health concerns that you feel are forgotten?
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4 ReactionsBeing a senior with a chronic (long-term kidneytransplant) illness and navigating a healthcare system that has seem to forgotten about us, i.e., not being abe to speak to my doctor when have an urgent matter, making decisions without much guidance, etc. thanks. love to chat with others!