Transplant evaluation coming soon!

Posted by Curses @kmlowe, May 26 4:25pm

Well, here I am, less than three months after meeting at Mayo Phoenix the first time … and in three weeks from today they will start my week long evaluation. So, barring anything unusual, I should know by 6/27 whether or not I will be listed. Not sure what I want the outcome to be, but send positive thoughts this way for the right one for me.

Kelly

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Congratulations! Sending positive vibes for a successful outcome.

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Wishing you the best with your transplant evaluation. My husband had his evaluation at the end of June last year for almost week and a half. Be transparent and ask as many questions as you can; they want to know if you are willing to take a good care of your organ if you are approved. Smile and believe that everything will work out for your good. Prayers helped me a lot; the also want to see if the patient has a caregiver to support you during the whole process. Tons of blessings !!! 😘🙏🏻😇🌹

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Mine was a year and a half back. Mayo AZ is great . Been there 4 times for issues that are now all doing well at this time. A great pizza place, Grimaldies (sic) in town if you are into that. I was not sure what I wanted but my local Dr. said it was by far the best option if I was added to the list and got a new liver. Testing was comprehensive for sure but truth be told less than what was done by my insurance company before that. Not that bad. I think if you have reached this point your odds are very good. I bet you get added ! Prayers up !!!

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Prayers for you and your family. As you might notice, this is really something that is not just the recipient that goes through all of this. Write down your questions. Many times you will think that you will remember, but then with all of the things going on, it is hard. Best wishes.

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Thanks so much to everyone for your advice and good thoughts. Once listed - how hard is the wait? Is it too of mind every minute? Instant panic each time the phone rings? I imagine this is super-hard as wait times can vary so much.

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@kmlowe

Thanks so much to everyone for your advice and good thoughts. Once listed - how hard is the wait? Is it too of mind every minute? Instant panic each time the phone rings? I imagine this is super-hard as wait times can vary so much.

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Best wishes as you move forward!

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Be sure to bring the name, address and phone numbers for your caregiver team to the evaluation. You also need to warn them they will be getting a call to confirm their dedication to being your caregivers either full time or part time. Also when you get to the psycologist test, read the questions very carefully and take your time. They will ask the same question in different ways throughout the test so answer carefully. I was lucky enough to get a psychologist that warned me ahead of time. Take a backpack with water that you can refill from the fountains, snacks, take some type of lightweight sweater or the like as some of those areas are really cold, a cool wet washcloth to wipe your face and arms with during the day because you're going to want a shower many times 🙂 It's not a fashion show, wear whatever you are comfortable in and good walking shoes as you will be going between buildings several times. There is a shuttle that runs through the parking lot, be sure to take that to save a lot of steps. My favorite providers to talk to were the surgeon and infectious disease. You'll find out all kinds of things from infectious disease you never knew you even were exposed to. My least favorite was the the social worker and them trying to get the 20+ vials of blood out of my tiny veins. If you do get a meal break, its much quietier and less hectic to go to the cafe in building three (the same building that hepatology and GI are in) at the very end of the building. It's not the same menu as the big cafeteria but it's so nice to just have some peace and quiet for a few minutes. I've been through these evaluations three times; Stanford, UCLA and Mayo AZ. They are all different but the Mayo was the most thorough. Take a map of what is which building because the appointments all run together when you get tired. Good luck and pace yourself.

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Hi all--I had to create an account just to tell you what a great question/community/supportive vibe is going on here! I'm the caregiver to my husband, who has just started his journey with Mayo (got the packet, have not had the 1st intake call yet), so I'm over here searching for every possible scrap of information on kidney transplants and Mayo Phoenix.
-- @kmlowe I am sending you so many positive thoughts they'll take 2 semi trucks to get to you! Good luck!!!!
-- to everybody else on this posting, thank you SO MUCH for the knowledge, experience, thoughts, and overwhelming positive attitude. I can't tell you how much it's helping me, the control freak. 😉

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Welcome, welcome! And thank you - sending positive energy right back at you!

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@azkellyw

Be sure to bring the name, address and phone numbers for your caregiver team to the evaluation. You also need to warn them they will be getting a call to confirm their dedication to being your caregivers either full time or part time. Also when you get to the psycologist test, read the questions very carefully and take your time. They will ask the same question in different ways throughout the test so answer carefully. I was lucky enough to get a psychologist that warned me ahead of time. Take a backpack with water that you can refill from the fountains, snacks, take some type of lightweight sweater or the like as some of those areas are really cold, a cool wet washcloth to wipe your face and arms with during the day because you're going to want a shower many times 🙂 It's not a fashion show, wear whatever you are comfortable in and good walking shoes as you will be going between buildings several times. There is a shuttle that runs through the parking lot, be sure to take that to save a lot of steps. My favorite providers to talk to were the surgeon and infectious disease. You'll find out all kinds of things from infectious disease you never knew you even were exposed to. My least favorite was the the social worker and them trying to get the 20+ vials of blood out of my tiny veins. If you do get a meal break, its much quietier and less hectic to go to the cafe in building three (the same building that hepatology and GI are in) at the very end of the building. It's not the same menu as the big cafeteria but it's so nice to just have some peace and quiet for a few minutes. I've been through these evaluations three times; Stanford, UCLA and Mayo AZ. They are all different but the Mayo was the most thorough. Take a map of what is which building because the appointments all run together when you get tired. Good luck and pace yourself.

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Thank you for all the detail, Kelly! So good to know.

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