Transition time is difficult
Hello,
I am so very thankful I found this group! Sometimes it seems like several people are further along on this horrible journey. Could I get some thoughts/advice on the transition time? We may now be in it. Up until our son was diagnosed with glioblastoma last fall, my husband was just a little forgetful (short-term memory). He has had 2 2-hour cognitive tests, 2 years apart which showed little change, but…I see it! We’ve seen 3 different neurologists, and a neuropsychologist. With my 49-year old son having a lousy prognosis, it feels like I will be doing “The Long Goodbye” with 2 people I love so very much -at the same time. It is so difficult to know what to do, how to help my husband, what to say, how MUCH to take on (bill-paying, dealing with heating and plumbing folks who come for repairs etc). Case in point: this morning the generator repairman came. I should have tagged along, but my husband usually handles these things (he owned a heating business) so out of respect, I stayed indoors. When he came back in, I asked what the issue was with the generator…he could not remember. Yesterday, he wanted steak for supper, and was going in to the store to buy it. I asked him to get potatoes also. I stayed in the car. He likes grocery shopping. He came out with almonds. I didn’t realize that was all that was in the bag until we got home. He doesn’t like it when I try to take over too much. It is like tight-rope walking. How do you handle this period? Still very capable in most ways, but…..and thank you.
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Hi @peggypierce, I'm just popping in to say welcome. I'm glad you found the supportive group here. How are you doing today?
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2 ReactionsHi Colleen I'm struggling. Grateful for the kindness, concern and support.
Peggy
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7 ReactionsPeggy, I know that things are always changing when caring for someone with dementia. Adjusting is a challenge. What is a particular struggle for you at the moment?
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