Today is Day 1

5 hours ago I learned that I have Stage 1 Invasive Lobular Carcinoma. My husband has Metastatic Prostate Cancer and Leukemia. We make quite the pair! I'm a little numb tonight and had a little brain fog teaching my class tonight. I'm looking forward to learning everything that I can from this special group of people.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@lisakinpa

I beg to disagree with your statement that more women diagnosed with lobular have mastectomies. This is not true.

A lot of variables come into play when discussing treatment plans, regardless of the lobular diagnosis.

Lobular is not always hard to detect. It’s not usually found in the other breast and there are many many of us who’ve chosen to have lumpectomies. ♥️

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@liskinpa you are right. I looked at a lot of studies just now and here is a typical conclusion: https://pubmed.ncbi.nlm.nih.gov/9367019/

"Conclusions: Invasive lobular carcinoma can be safely treated with breast conservation with no difference in local recurrence or survival. In the absence of a suspicious finding on clinical or radiologic examination, routine contralateral breast intervention is not recommended."

I was diagnosed with lobular and ductal 8 years ago and was told mastectomy would be better (and I wanted that). I was told lobular was "multicentric" and "marched in a line" without forming a mass, so it was hard to image. However studies do not show a worse outcome with lumpectomy for small low grade tumors and possibly others, depending on other factors like ER, proliferation, Oncotype etc.

I tend to write with a qualifying "I believe..." But appreciate the correction so that others get the right info! Apologies!

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Hello All,

I did not repost the video. Just shared the link. So, moving on to the original poster masterfuldogtrainer needs us now. I cannot express in words what you must be enduring right now. You most likely know more than we do about chemo, side effects etc. How may we help? I'm more than willing to do whatever I can to help thru this journey. When you have the time & energy please tell us about your choice of name masterfuldogtrainer. I bet there is a great story we would love you to share when/and If. Many Healing Prayers. xoxoxo

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@bcwarrior

Hello All,

I did not repost the video. Just shared the link. So, moving on to the original poster masterfuldogtrainer needs us now. I cannot express in words what you must be enduring right now. You most likely know more than we do about chemo, side effects etc. How may we help? I'm more than willing to do whatever I can to help thru this journey. When you have the time & energy please tell us about your choice of name masterfuldogtrainer. I bet there is a great story we would love you to share when/and If. Many Healing Prayers. xoxoxo

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@bcwarrior, YouTube videos play in a post when placed on their own line. I moved the link beside the text so that it appears as a link only again.

Thank you for bringing this conversation back to @masterfuldogtrainer. I've added the @symbol to the username so that @masterfuldogtrainer gets an email alerting her to your kind and thoughtful post.

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@masterfuldogtrainer

Thank you for your response. I have an appointment with a surgeon in a little more than a week. I'm going to ask around town about her. I love my husband's oncologist and I don't know this surgeon that I have been referred to. I will be investigating everything. I'm already happy to have joined this group.

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Hi , sorry you're facing this and for the rest of us who is there or have been there.

I know the feeling of fear and helplessness and being lost in all that.....at first!! Its overwhelming to say the least. However, you will
conquer all of that with your strength and determination, and with the help of this board!Do your research, ask lots of questions ...you will get through this!! Please stay strong!

gpigford I love your wife's saying. I'm sending all of us lots of prayers🙏🏼 and warm thoughs!!!

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