Controlling Tinnitus: What works for you?

Posted by scottk @scottk, Jul 1, 2019

Hello: Has anyone on this site had any luck with controlling tinnitus? I see certain things advertised but always sceptical. Any thoughts/ideas?

@lioness

@sites Hi Welcome to our group of caring people who give suggestion on what helps them . I have had tinnitus most of my life It is a terrible problem Mine is quieter when I don't do dairy products but hard aged cheese is alright . Skim milk seems to be o.k. but not lo fat. I have tried Lipo Flavanoid in the past that helped while on it but its expensive . For me also I found when I keep active I am not bothered with it as much. Sorry this is all I can tell you . Hopefully others will chime in .

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Hi, thank you for the suggestions it’s very much appreciated!
Stites

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@joangela

At this time I do not know of a cure. Wearing the hearing aids helps a bit. Stay away from loud noises and less stress are both helpful. A little noise helps to muffle it. Complete silence is hard if you are trying to muffle it. It’s all right there in front of you then.

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Hi, thank you for your suggestion! I avoid loud noises and crowds if possible.
Many thanks,
Stites

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@ethanmcconkey

Hi @stites I'd like to join @lioness in welcoming you to Connect. You may have noticed I moved your post to this existing discussion on controlling tinnitus symptoms so that you can Connect with others who have similar experiences. Simply click VIEW & REPLY in your email notification to get to you post.

That must be so frustrating to have to retire from a job you love due to this condition.

I'd like to introduce you to fellow Connect members @bobbyboomer @nurseheadakes and @scottk as they have experience with tinnitus and may be able to offer you support.

Back to you @stites what have been some of the suggestions give to you by doctors?

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Hi, my ENT did 2 surgeries on my inner ear and opened up my eustation tube. He than put a more permanent ear tube in for draining to help prevent further ear infections. My pain has been less but my hearing has not improved or the tinnitus. He also suggested Accupunture. I tried it for 6 sessions but again no improvements except my neck felt a little better. At this time the tinnitus is so loud it brings on headaches and lack of sleep. I have tried keeping track of food, meds, stress to figure out spikes but truly I cannot get a handle on this and it’s been six months now. Thank you for any other suggestions. I’m open to other ideas.
Sincerely,
Stites

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Try keeping a diary or calendar with each day colored to show the kind of day you've had (good, so-so, bad, awful). Note ANYTHING you did out of the ordinary–diet, stress, meds, weather, lack of sleep, allergens (esp. inhaled), exercise–again, ANYTHING unusual for you. You may see a pattern over time. Each of us has a trigger or triggers that make all our symptoms worse. Once we've learned what triggers bad days, we can work to eliminate or avoid the trigger(s). I have Meniere's (diagnosed for certain by Dr. F. Owen Black over 40 years ago) and all my symptoms including tinnitus are lessened if I increase the amount or frequency of hormone replacement meds (estrogen and progesterone). As I got older, I was able to reduce meds to a quarter of what I took almost 40 years ago every third day instead of every day. However, every time the Meniere's monster beats his way out of the closet, I need to temporarily increase meds. The first symptom is a big increase in tinnitus, from the usual background whooshing in concert with my pulse to noise so loud I can't sleep. The T usually begins to lessen within a couple of hours of taking hormones. For me, the only trigger is abnormally low hormone levels. And, yes, I have had breast cancer–which is a walk in the park compared to the hell of Meniere's. The other certainty is that, over time, you actually will become pretty accustomed to T. I know you don't want to hear that because it doesn't sound like a solution, but it is part of the solution, just as, with daily vestibular rehab (VRT) you will learn to function pretty normally with a compromised balance system.

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@joyces

Try keeping a diary or calendar with each day colored to show the kind of day you've had (good, so-so, bad, awful). Note ANYTHING you did out of the ordinary–diet, stress, meds, weather, lack of sleep, allergens (esp. inhaled), exercise–again, ANYTHING unusual for you. You may see a pattern over time. Each of us has a trigger or triggers that make all our symptoms worse. Once we've learned what triggers bad days, we can work to eliminate or avoid the trigger(s). I have Meniere's (diagnosed for certain by Dr. F. Owen Black over 40 years ago) and all my symptoms including tinnitus are lessened if I increase the amount or frequency of hormone replacement meds (estrogen and progesterone). As I got older, I was able to reduce meds to a quarter of what I took almost 40 years ago every third day instead of every day. However, every time the Meniere's monster beats his way out of the closet, I need to temporarily increase meds. The first symptom is a big increase in tinnitus, from the usual background whooshing in concert with my pulse to noise so loud I can't sleep. The T usually begins to lessen within a couple of hours of taking hormones. For me, the only trigger is abnormally low hormone levels. And, yes, I have had breast cancer–which is a walk in the park compared to the hell of Meniere's. The other certainty is that, over time, you actually will become pretty accustomed to T. I know you don't want to hear that because it doesn't sound like a solution, but it is part of the solution, just as, with daily vestibular rehab (VRT) you will learn to function pretty normally with a compromised balance system.

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Hi, Thanks for sharing your story. I hope learning to live with this nightmare isn't the end result for me and many others. I have been following Clinical trials ~ Frequency Therapeutics and a drug that has been developed called FX-322. You can google it and see what you think.
Thanks,
Stites

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Remain skeptical. Apart from mind training to distract from the annoying sounds I haven't heard of anything better than placebo. White sound etc is meant to help. I just pretend it's a sign of intelligence

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@nurseheadakes

Ah…tinnitus What a noisy little buzz that is always pestering us when we least want it but can't get rid of it. Did you know there are some 50 million plus people with this milady and there is no cure for it? But research is being conducted on it in earnest. https://www.ata.org/news/news There is an actual organization that is exclusively directed towards Tinnitus and all of the information and answers you may have about how you can take care of yourself to minimize the effects of the buzz in your head. https://www.ata.org/understanding-facts Since hearing loss may be a part of the tinnitus or even contributed to the tinnitus, we can't discount learning about this as well. So, surround yourself with information and try to understand what you have and how this all adds up to help you identify what needs to be treated and how you can feel well despite what may not be the best outcome. We can still exist with what we have using tools to help us hear, see, move and exist in our world. We need to discover what those tools are and how they will help us. These organizations and people are there to help us do that. We are here in this place to find what's out there and to bring that here and say, that they have helped me. I have had the buzzing for years because of toxic meds -so it will never go away. I have hearing aids that mask them. I try not to listen to them. I drown them out with background noise, music, TV and other noises so that I don't always know that they are here. If I am busy, I don't know that I am having them. If I talk about them – they become loud. But If I don't talk about them and am busy with activities – they aren't really noisy. Meds I take do influence their effect but I take less of the ones that cause the most side effects. I hydrate myself well so that my body has enough fluids on board. Migraines are also part of my life but I keep my stimuli under control so that my tinnitus are also under control since they seem to work in tandem.
Check out the websites and see what you can find that is applicable to you. Write down those items you have tried and what might work for you. Keep a diary so that you keep track of symptoms – this helps when working with your doctors as it does with my doctors. It provides proof. Eloise

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HI, I'm curious which hearing aids you use to mask tinnitus ?
Thanks,
Stites

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@lioness

@bobbyboomer Thanks I do European cheese but what is A2 milk ? Never heard of it

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Cows in the USA and Canada are A1 and A1 cows have a mutation in one of the amino acids.Instead of that AA being proline, it's histidine which turns to histamine in your digestive tract. Many people have reactions to that and the responses are different with different people. My wife gets black eyes, some get indigestion, some get headaches, the list goes on. I don't know if it aggravates tinnitus, but if domestic cheese does I'd give it a try.

Europe, Australia, and Africa have predominantly A2 cows, which have the proline AA. Canada is slowly phasing out A1 cows.

I found this by accident. My wife has had a problem with dairy for decades. Black eyes – looking like I beat her (something I would never do, she's my best buddy). We took a 5 week vacation in Australia, and she said "Damn the torpedoes, I'm going to eat cheese and if I have black eyes, these people will never see me again." She ate cheese, put cream in her coffee, and never-ever had the slightest reaction.

I guessed it was the fact that Australia doesn't give artificial growth hormones to their cows (rBGH) so back in the USA I got some organic cheese. Black eyes. Bad guess.

So Google and I became best friends for a few days, and that's when I found out about A1 and A2 milk. Now she can eat cheese as long as it's from Ireland, UK, Europe or Australia and never have a reaction. I'd try African but there is non available.

*** on another subject ***

The best thing that diminished my tinnitus is the amino acid Taurine. I take 3 grams per day.

It happens gradually and I didn't think it was working until I quit.

I bought about 3 months supply on the Internet to avoid shipping fees. When I ran out I didn't get more and in two days I noticed a big increase in the noise. That's when I realized it was gradually diminishing.

I've been taking the Taurine for over a year now, and my tinnitus is about 99% gone. I have more quiet days than tinnitus days (something I never had before taurine) and my occasional noisy days aren't bad at all.

I'm no doctor and can't give medical advice so this is just my experience. Of course you should check with your medical pro before doing anything. I didn't, I read plenty of long term tests with 3g/day and no side effects were noted, so I self-experimented and I have no side effects except for greatly diminished tinnitus.

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@bobbyboomer

Cows in the USA and Canada are A1 and A1 cows have a mutation in one of the amino acids.Instead of that AA being proline, it's histidine which turns to histamine in your digestive tract. Many people have reactions to that and the responses are different with different people. My wife gets black eyes, some get indigestion, some get headaches, the list goes on. I don't know if it aggravates tinnitus, but if domestic cheese does I'd give it a try.

Europe, Australia, and Africa have predominantly A2 cows, which have the proline AA. Canada is slowly phasing out A1 cows.

I found this by accident. My wife has had a problem with dairy for decades. Black eyes – looking like I beat her (something I would never do, she's my best buddy). We took a 5 week vacation in Australia, and she said "Damn the torpedoes, I'm going to eat cheese and if I have black eyes, these people will never see me again." She ate cheese, put cream in her coffee, and never-ever had the slightest reaction.

I guessed it was the fact that Australia doesn't give artificial growth hormones to their cows (rBGH) so back in the USA I got some organic cheese. Black eyes. Bad guess.

So Google and I became best friends for a few days, and that's when I found out about A1 and A2 milk. Now she can eat cheese as long as it's from Ireland, UK, Europe or Australia and never have a reaction. I'd try African but there is non available.

*** on another subject ***

The best thing that diminished my tinnitus is the amino acid Taurine. I take 3 grams per day.

It happens gradually and I didn't think it was working until I quit.

I bought about 3 months supply on the Internet to avoid shipping fees. When I ran out I didn't get more and in two days I noticed a big increase in the noise. That's when I realized it was gradually diminishing.

I've been taking the Taurine for over a year now, and my tinnitus is about 99% gone. I have more quiet days than tinnitus days (something I never had before taurine) and my occasional noisy days aren't bad at all.

I'm no doctor and can't give medical advice so this is just my experience. Of course you should check with your medical pro before doing anything. I didn't, I read plenty of long term tests with 3g/day and no side effects were noted, so I self-experimented and I have no side effects except for greatly diminished tinnitus.

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@bobbyboomer That is so interesting . I do have butter from Ireland I love and will look at the cheeses more closely I don't think we have any milk from Europe here if so it would be expensive so I have turned to Almond milk. Thanks about tinnitus someone else suggested this but haven't gotten it yet but now with 2 suggestions and knowing it works I will order some .

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Does anyone know if tinnitus caused by medication will stop after the medication is stopped? Does this happen over time; it definitely doesn’t happen quickly…

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@stites

I'm looking for information that helps dealing with hearing loss but more so tinnitus. I have changed my diet, added supplements and the use of a hearing aide. The tinnitus is a life changer and forced me to retire at age 62 from my teaching job with special needs kids. I'm heartbroken and struggle daily to continue living a normal life. I have been to many doctor, acupuncture, meditation yet to find relief. Please if anybody can reach out here with suggestions it would be greatly appreciated. Thanks, D

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Hi @stites, I'm so sorry that you had to retire at age 62 from a position that you loved – and sad about your loss of income. Have you talked with a doctoral level audiologist (Ph.D. or Aud)? Someone who really knows their stuff? Not a hearing aid dealer as they can provide hearing aids but do not have the academic training of an fully qualified and licensed audiologist. I noticed my tinnitus got worse about 8 years ago, about the time my hearing loss started getting worse. I also noticed that my tinnitus was worse during times of high stress like during contract negotiations in my employment. I'd lie in bed in listen to the constant humming and worry. Not a good combination. I "qualified" for hearing aids (according to my insurance carrier) this time last year and I talked with the audiologist about masking the tinnitus with my hearing aids. I am seeing the audiologist today and will ask him if indeed that is the case as I've noticed far less tinnitus since getting the hearing aids. But then, my circumstances have changed, too. I went part-time 3 years ago and am now retired. I'm in a far better place in my mental health. I wish you all the best and blessing as you look for ways to treat your tinnitus.

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I have tinnitus all day but the pulsatile is horrible, I hear my heart beating in my ear 24/7 along with the other noises. Those I can cope with if I am busy but the pulsatile never stops and it is hard to sleep. I also have an acoustic neuroma on that side so maybe that is making it worse. They tell me there is nothing that can be done. Does anyone have this?

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