Controlling Tinnitus: What works for you?

Posted by scottk @scottk, Jul 1, 2019

Hello: Has anyone on this site had any luck with controlling tinnitus? I see certain things advertised but always sceptical. Any thoughts/ideas?

Interested in more discussions like this? Go to the Hearing Loss group.

Hi. I am new to this site so not sure how it all works. I suffer from pilsatile tinnitus – I hear my heart beat every second of every day in my right ear. I have had cat scans etc and no doctor can tell me what it is from or how to fix it. It is maddening! I did suffer from a sever case of facial shingles two months after the tinnitus started which made it worse but I'm not sure if it is related. Does any one else have this type of tinnitus? Do doctors ever weigh in on these discussion boards?

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Tinnitus is ol' Ma Nature's way of filling the silent void when hearing is lost. Some meds can cause it. I was "fortunate" in that the tinnitus moved in at the same time I was having a real battle with balance issues due to Meniere's. When you're having crises, i.e., pukefests, that last for hours as often as three times a week, tinnitus isn't bothersome in the least. Hearing loss on one side isn't, either. After nearly 30 years of having Meniere's in remission, doing vestibular rehab every day to maintain some balance, the monster roared back and struck my hearing ear. I was already used to pulsatile tinnitus in my dead ear and after three months of struggling to hear, I don't even notice the new tinnitus in my former hearing ear. It DOES become far less bothersome over time, which isn't much comfort to you right now. This group of HOH folks have lots of solutions; I've learned a lot about how to cope with severely compromised hearing by paying attention to the discussion here.

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There is a blog that is helpful I found a few years ago run by a doctor in Atlanta. He recently retired but kept his tinnitus site open. Google. Dr Nagler tinnitus. You should be able to view all the questions and answers he has posted on line. He was a true expert in tinnitus. Hope this helps.

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@rmblab323

Hi. I am new to this site so not sure how it all works. I suffer from pilsatile tinnitus – I hear my heart beat every second of every day in my right ear. I have had cat scans etc and no doctor can tell me what it is from or how to fix it. It is maddening! I did suffer from a sever case of facial shingles two months after the tinnitus started which made it worse but I'm not sure if it is related. Does any one else have this type of tinnitus? Do doctors ever weigh in on these discussion boards?

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Hi @rmblab323, welcome to Mayo Clinic Connect. Connect is an online community where people can share experiences and ask each other questions about any health issue. Mayo specialists provide expertise through blogs and Video Q&A topics here: https://connect.mayoclinic.org/webinars/

You may also be interested in this discussion where members are talking about pulsatile tinnitus
– Pulsatile tinnitus https://connect.mayoclinic.org/discussion/pulsatile-tinnitus-1/

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I've had tinnitus for more years than I can remember. It's part of my life and I've learned to mostly ignore it. I have a high pitched ringing. I had Pulsatile Tinnitus for a few days though and it was truly scary as I thought I'd now have to endure pounding in addition to the ringing. It was more than disconcerting and made me fearful that I had a new medical condition. Then it went away leaving me with the familiar ringing!
Maybe information you can find on this site could be helpful.
The American Tinnitus Association – https://www.ata.org/managing-your-tinnitus

Change Your Mind About Tinnitus, By Paul D'Arezzo M.D.

Pulsatile Tinnitus – UCSF University of California, San Francisco
https://radiology.ucsf.edu/pulsatile-tinnitus

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Hi everyone, I have buzzing in my hread since my second Moderna jab. Read Dr Poland had tinnitus too after the jab.
Was wondering if gabapantin has worked for anyone?

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@stemilio

Hi everyone, I have buzzing in my hread since my second Moderna jab. Read Dr Poland had tinnitus too after the jab.
Was wondering if gabapantin has worked for anyone?

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Hi Stemilio, please see the resources shared in this discussion:
– Tininitus caused by gabapentin https://connect.mayoclinic.org/discussion/tininitus-caused-by-gabapentin/

@tjadam @judysmayo @scottk or @julio4 may have further input.

Was gabapentin suggested by your doctor?

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@colleenyoung

Hi Stemilio, please see the resources shared in this discussion:
– Tininitus caused by gabapentin https://connect.mayoclinic.org/discussion/tininitus-caused-by-gabapentin/

@tjadam @judysmayo @scottk or @julio4 may have further input.

Was gabapentin suggested by your doctor?

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No it's Dr Poland who mentioned in an email to me that some people say they find relief (but no trials)

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Just wondering if you have used Tinnitus Retraining Therapy or CBT, and is haw was your experience? Thanks

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@velaschopen

Just wondering if you have used Tinnitus Retraining Therapy or CBT, and is haw was your experience? Thanks

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I have pulsatilla tinnitus and made peace with it (rationalized it?) because it lets me know when my heart rate is too high. It’s a form of CBT; I don’t view it the way I once did, which was with horror and despair. Podcasts help too!🤓

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@mslw

I have pulsatilla tinnitus and made peace with it (rationalized it?) because it lets me know when my heart rate is too high. It’s a form of CBT; I don’t view it the way I once did, which was with horror and despair. Podcasts help too!🤓

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Thanks. Any Podcasts you would recommend? does it interfere with your sleep or can you relax at night?

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