1. < Brain & Nervous System

TIA symptoms but ALL tests come back negative for anything

Posted by calanbrown @calanbrown, Mar 14 10:16am

I am looking for someone that has had a similar experience. TIA symptoms,was brought to the emergency room and admitted and treated as possible stroke patient. All tests come back negative for stroke related attack. Brain and heart and blood showed nothing indications of anything at all. Ruled out diabetic problems, medication problems, drinking or drug problems, physical or physical activity problems.

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cheyne | @cheyne | Mar 14 11:56am

Hi,
I had 15 TIA's over three days and not a shred of physical evidence could be found. Mine where diagnosed by my description of the events that occured. What did show up was an enlarged heart but unrelated to the TIA's. TIA's are usually considered a warning. Around the same time of my TIA's another local had one then subsequently died from a stroke within a week. I shook me to realise just how lucky I had been. I haven't had any more over the last year and have abandoned all related medication.
Cheers

REPLY
1 reply
llynst | @llynst | Mar 17 10:32am

Yes! Over and over. It’s been going on for over 4 years now.
He falls with no use of legs and has uncontrollable shakes and talks gibberish. By the time we get to the ER all symptoms are gone. At first they just sent him home. He’s been to many doctors and have had MANY tests.
About a year ago at ER they looked at his liver enzymes AGAIN. This time they were high enough for us to see a liver Dr. It’s been a Long journey but he now has been diagnosed with an auto immune disease called PSC.
He has liver cirrhosis because of this and now has aged out for a transplant! I had taken videos of when he was having his “episodes” but liver specialist says it’s not what caused this. He is getting weaker, loosing weight and I’m scared. There are no cures for this PSC but some drugs ( for PBC) that can help some symptoms.
He takes so many pills (13morning & 9 evening) and is having “brain fog” I have to do a lot of things for him. He also sleeps ALOT! This is not an answer for you but thought I’d give you a rundown of his journey!
P.S. he’ll be seeing another neurologist this week. He has essential tremors that are now debilitating. Hopefully, they can at least help with this.

REPLY
2 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 17 6:26pm
In reply to @llynst "Yes! Over and over. It’s been going on for over 4 years now. He falls with..." + (show)
@llynst

Yes! Over and over. It’s been going on for over 4 years now.
He falls with no use of legs and has uncontrollable shakes and talks gibberish. By the time we get to the ER all symptoms are gone. At first they just sent him home. He’s been to many doctors and have had MANY tests.
About a year ago at ER they looked at his liver enzymes AGAIN. This time they were high enough for us to see a liver Dr. It’s been a Long journey but he now has been diagnosed with an auto immune disease called PSC.
He has liver cirrhosis because of this and now has aged out for a transplant! I had taken videos of when he was having his “episodes” but liver specialist says it’s not what caused this. He is getting weaker, loosing weight and I’m scared. There are no cures for this PSC but some drugs ( for PBC) that can help some symptoms.
He takes so many pills (13morning & 9 evening) and is having “brain fog” I have to do a lot of things for him. He also sleeps ALOT! This is not an answer for you but thought I’d give you a rundown of his journey!
P.S. he’ll be seeing another neurologist this week. He has essential tremors that are now debilitating. Hopefully, they can at least help with this.

Jump to this post

Hello @llynst and welcome to Mayo Connect,

I am sorry to hear of all of your husband's health issues. It is good that he has a correct diagnosis, now. I would encourage you to read the posts in a Connect discussion about PSC. Here is a link to those discussions,
https://connect.mayoclinic.org/search/?search=Primary+Sclerosing+Cholangitis
I am glad that you will be consulting with another neurologist this week. I hope you will find some more answers or therapies that will help him.

What type of medications is he taking for PSC? Do they help control any of his symptoms?

REPLY
danny67 | @danny5 | Mar 23 1:36am
In reply to @cheyne "Hi, I had 15 TIA's over three days and not a shred of physical evidence could..." + (show)
@cheyne

Hi,
I had 15 TIA's over three days and not a shred of physical evidence could be found. Mine where diagnosed by my description of the events that occured. What did show up was an enlarged heart but unrelated to the TIA's. TIA's are usually considered a warning. Around the same time of my TIA's another local had one then subsequently died from a stroke within a week. I shook me to realise just how lucky I had been. I haven't had any more over the last year and have abandoned all related medication.
Cheers

Jump to this post

@cheyne and @calanbrown, i too have had 3 TIA(mini strokes). i've had CT scans, MRIs, even Ultrasounds looking for ruptured blood vessels. you name it, nothing found. to this day, 5 years later nothing has happened again. as far as we now. they don't leave any known signs. no clues. so far it's a mystery. ALL I CAN SAY IS GOOD LUCK. but don't take anything for granted. something don't seem right, get it checked out immediately. GET TO THE ER FAST. good luck, Daniel.

REPLY
2 replies
cheyne | @cheyne | Mar 23 6:21am
In reply to @danny5 "@cheyne and @calanbrown, i too have had 3 TIA(mini strokes). i've had CT scans, MRIs, even..." + (show)
@danny5

@cheyne and @calanbrown, i too have had 3 TIA(mini strokes). i've had CT scans, MRIs, even Ultrasounds looking for ruptured blood vessels. you name it, nothing found. to this day, 5 years later nothing has happened again. as far as we now. they don't leave any known signs. no clues. so far it's a mystery. ALL I CAN SAY IS GOOD LUCK. but don't take anything for granted. something don't seem right, get it checked out immediately. GET TO THE ER FAST. good luck, Daniel.

Jump to this post

Hi,
I just took mine as a warning not to be stupid and heed the advice.
Cheers

REPLY
kdalda75 | @kndaustin71 | Mar 23 2:28pm

Has anyone having these TIA symptoms with negative tests and evaluations be placed on any blood thinners or at least aspirin? Just curious.

REPLY
3 replies
danny67 | @danny5 | Mar 23 6:17pm
In reply to @kndaustin71 "Has anyone having these TIA symptoms with negative tests and evaluations be placed on any blood..." + (show)
@kndaustin71

Has anyone having these TIA symptoms with negative tests and evaluations be placed on any blood thinners or at least aspirin? Just curious.

Jump to this post

no. just be cautious and pay attention to your body. @danny5

REPLY
1 reply
kdalda75 | @kndaustin71 | Mar 24 10:49am
In reply to @danny5 "no. just be cautious and pay attention to your body. @danny5" + (show)
@danny5

no. just be cautious and pay attention to your body. @danny5

Jump to this post

Paying attention to your body.......your body already has alerted you. I feel if the PCP is willing to diagnose TIA then they should be proactive in the prevention of another occurrence. Low dose ASA at the very least... Just my two-cents. I was placed on warfarin after a declared TIA but questionable TEE results years ago. Perhaps a little overboard with the medication but at least proactive. Could probably come off it but after my history no physician has the appetite to take the chance!

REPLY
calanbrown | @calanbrown | Mar 24 12:40pm
In reply to @llynst "Yes! Over and over. It’s been going on for over 4 years now. He falls with..." + (show)
@llynst

Yes! Over and over. It’s been going on for over 4 years now.
He falls with no use of legs and has uncontrollable shakes and talks gibberish. By the time we get to the ER all symptoms are gone. At first they just sent him home. He’s been to many doctors and have had MANY tests.
About a year ago at ER they looked at his liver enzymes AGAIN. This time they were high enough for us to see a liver Dr. It’s been a Long journey but he now has been diagnosed with an auto immune disease called PSC.
He has liver cirrhosis because of this and now has aged out for a transplant! I had taken videos of when he was having his “episodes” but liver specialist says it’s not what caused this. He is getting weaker, loosing weight and I’m scared. There are no cures for this PSC but some drugs ( for PBC) that can help some symptoms.
He takes so many pills (13morning & 9 evening) and is having “brain fog” I have to do a lot of things for him. He also sleeps ALOT! This is not an answer for you but thought I’d give you a rundown of his journey!
P.S. he’ll be seeing another neurologist this week. He has essential tremors that are now debilitating. Hopefully, they can at least help with this.

Jump to this post

Thank you so much for sharing this story. It was very helpful to have a different explanation of possibilities. I hope things work out for you guys.

REPLY
calanbrown | @calanbrown | Mar 24 12:43pm
In reply to @danny5 "@cheyne and @calanbrown, i too have had 3 TIA(mini strokes). i've had CT scans, MRIs, even..." + (show)
@danny5

@cheyne and @calanbrown, i too have had 3 TIA(mini strokes). i've had CT scans, MRIs, even Ultrasounds looking for ruptured blood vessels. you name it, nothing found. to this day, 5 years later nothing has happened again. as far as we now. they don't leave any known signs. no clues. so far it's a mystery. ALL I CAN SAY IS GOOD LUCK. but don't take anything for granted. something don't seem right, get it checked out immediately. GET TO THE ER FAST. good luck, Daniel.

Jump to this post

Daniel, thank you for sharing. It was a positive outlook for me to look forward too.

REPLY
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