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TIA symptoms but ALL tests come back negative for anything
Stroke & Cerebrovascular Diseases | Last Active: Sep 17 9:41pm | Replies (116)Comment receiving replies
Yes! Over and over. It’s been going on for over 4 years now.
He falls with no use of legs and has uncontrollable shakes and talks gibberish. By the time we get to the ER all symptoms are gone. At first they just sent him home. He’s been to many doctors and have had MANY tests.
About a year ago at ER they looked at his liver enzymes AGAIN. This time they were high enough for us to see a liver Dr. It’s been a Long journey but he now has been diagnosed with an auto immune disease called PSC.
He has liver cirrhosis because of this and now has aged out for a transplant! I had taken videos of when he was having his “episodes” but liver specialist says it’s not what caused this. He is getting weaker, loosing weight and I’m scared. There are no cures for this PSC but some drugs ( for PBC) that can help some symptoms.
He takes so many pills (13morning & 9 evening) and is having “brain fog” I have to do a lot of things for him. He also sleeps ALOT! This is not an answer for you but thought I’d give you a rundown of his journey!
P.S. he’ll be seeing another neurologist this week. He has essential tremors that are now debilitating. Hopefully, they can at least help with this.
Replies to "Yes! Over and over. It’s been going on for over 4 years now. He falls with..."
Thank you so much for sharing this story. It was very helpful to have a different explanation of possibilities. I hope things work out for you guys.
@llynst
Wow that sounds like me. All Doctors say I had a TIA stroke but all test come back normal. I have these flashed when I am driving and when home. My Primary doctor called it seizures. I am going to a Neurosurgeon next. I am confused.
Has he been tested for Parkinson’s? Has he been to a neurologist? Think this sounds like Parkinson’s as my husband has the same with early signs of dementia. Also with the weight loss ask his pcp to tested his adrenal system. My husband lost alot of weight in a short time and the PCP tested his adrenal. He is off the charts! We are now being referred to an endocrinologist.
Remember, you may not be looking for just one thing to be going on. It may be multiple things.
I would try to find a very experienced Neurologist and endocrinologist and see if any of these things could be a possibility for him. At least you would know what you are dealing with and could try to get him help with some of these issues. Wishing ya’ll all the best.
Connect
Hello @llynst and welcome to Mayo Connect,
I am sorry to hear of all of your husband's health issues. It is good that he has a correct diagnosis, now. I would encourage you to read the posts in a Connect discussion about PSC. Here is a link to those discussions,
https://connect.mayoclinic.org/search/
I am glad that you will be consulting with another neurologist this week. I hope you will find some more answers or therapies that will help him.
What type of medications is he taking for PSC? Do they help control any of his symptoms?