Thumper Musing

Posted by thumperguy @thumperguy, Oct 6, 2020

A few minutes ago, probably about 8:58 p.m. CDT I resignedly uprighted the recliner and announced to my wife, “well I guess I’ll head for the rodeo in the spare bedroom.” “Rodeo,?” she said. “Yep,”says I. “Time to ride ole Thumper again.”
So here I sit. All hosed up to my snazzy, surely Super Deluxe Respirtech “Incourage” airway clearing system. Delivered a few years ago F.O.B. my home by a nice lady who even taught me how to use it. $1400. Bucks and change; that’s what Respirtech peddles it for. And get this: Medicare bought it for me. They must have discovered what good guy I am. Thanks for payin’ your tax.

Half an hour twice daily, often passing the time as my brain gets machine-scrambled by spinning whimsical yarns for fellow sufferers and habitués of the Mayo Connect Bronch/MAC forum. Thus it is this fine evening. Later, Don

OK, I get it now.

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@thumperguy

Hi gej, I’m likely to disappoint. I’m so happy to have logged 13 months without a fever or an antibiotic which I attribute to scrupulous adherence to 2-a-day half-hour “vest/7% saline nebulizer” sessions since I put up the earlier post I’ve become diffident about tinkering with success. Hope you can decipher my murderous sentence structure. Don

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Hi Don, Having been in this group for yrs and recommending the use of 7% saline; I have noticed a BIG reduction in exacerbations among our members. Not only that, but people recovering also.

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@windwalker

Hi Don, Having been in this group for yrs and recommending the use of 7% saline; I have noticed a BIG reduction in exacerbations among our members. Not only that, but people recovering also.

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Teri, Tell me, what does “recovery” involve beyond zero exascerbations?

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Good question! I also wondered what Terri meant by recovery.
I’m going for my annual CT and PFT in 3 weeks. I am looking forward to this, although with some apprehension. I’ve been so compliant with nebulizing, exercising, etc, etc. I’m hopeful that I’m on the recovery trajectory!

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@thumperguy

Teri, Tell me, what does “recovery” involve beyond zero exascerbations?

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Not sure about Terri, but here is my take:
Negative sputum culture
Improved chest xray/CT – pockets of infection shrinking or gone, no progression of bronchiectasis
Decreased coughing/congestion/shortness of breath
More energy, or at least less fatigue
Increased O2 sats, or at least no further decline since bronchiectasis is generally progressive
Sue

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@thumperguy

Teri, Tell me, what does “recovery” involve beyond zero exascerbations?

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Don and Kathy, recovery meaning testing negative for mac and pseudomonas. They are a scant few people who get mac without having bronchiectasis and beat the infection indefinitely. As we know, when most of us on here has bronchiectasis and/or other lung diseases; we can't say that we will be permanently 'cured', but we can recover some health and quality of life.

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@sueinmn

Not sure about Terri, but here is my take:
Negative sputum culture
Improved chest xray/CT – pockets of infection shrinking or gone, no progression of bronchiectasis
Decreased coughing/congestion/shortness of breath
More energy, or at least less fatigue
Increased O2 sats, or at least no further decline since bronchiectasis is generally progressive
Sue

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Spot on Sue!

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