This might help you in your recovery knowing you will recover

Posted by florabel @florabel, Apr 5 8:21am

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

I saw this on YouTube and it is excellent. It was worth another visit. Excellent information. Thank you for sharing.

Patience is the key with Long Covid.

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I am slightly concerned about the maculopapular rash on my lower legs that I got from Long Covid. It has not gone away at all. It has been over 2 years Here is a description:
https://www.health.com/maculopapular-rash-7104404#:~:text=A%20maculopapular%20rash%20is%20characterized,lasts—depends%20on%20the%20cause.
Is there a specialist that I should see for this?

Also, has anyone had brain fog/memory problems from LC that has gotten better?
Thanks for any advice.

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@kamander

I am slightly concerned about the maculopapular rash on my lower legs that I got from Long Covid. It has not gone away at all. It has been over 2 years Here is a description:
https://www.health.com/maculopapular-rash-7104404#:~:text=A%20maculopapular%20rash%20is%20characterized,lasts—depends%20on%20the%20cause.
Is there a specialist that I should see for this?

Also, has anyone had brain fog/memory problems from LC that has gotten better?
Thanks for any advice.

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Kamander, Please go see a Dermatologist about about your legs.

My skin issues were so minor compared to yours, but, I had eczema in my ears from COVID and went to a Dermatologist. She gave me some cream that cleared them up.

I still battle brain fog and memory problems. I have Long COVID since 2022. Some things have improved greatly....some have not. The exhaustion is still there.

Praying for you right now. Blessings....

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I still hold out hope for recovery. For me it has been two years. No recovery of my most persistent symptoms. (Muffled hearing, foggy vision, congested sinuses, constipation). I did regain taste and smell shortly after having Covid.

I wonder about recovery of a young man as compared to seniors. At this point I would be happy with a little improvement.

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@dloos

I still hold out hope for recovery. For me it has been two years. No recovery of my most persistent symptoms. (Muffled hearing, foggy vision, congested sinuses, constipation). I did regain taste and smell shortly after having Covid.

I wonder about recovery of a young man as compared to seniors. At this point I would be happy with a little improvement.

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@dloos I had the same reaction; although it's hopeful, he's a young guy with more resilience. I'm a senior+, and expect recovery to be slower, as in any illness, than when I was much younger However, I think his advice that after a certain point, it's better to try to move ahead with acceptance and try to shift one's attention to ... more pleasant things That's where I am, at 13 months in and having just been told my long-awaited 4/1 appointment at the LC clinic at NWMH in Chicago has been moved to ... September 11, because the neurologist is no longer seeing LC patients. Not cheery that even some doctors are giving up hope that they can actually help us get effective treatment. Positive reframing is a challenge, but I know it's the way to go, and I'M TRYING... plus his other ideas... eat well, sleep and rest more, and trying not to be so impatient with the process. Glad to have this group to turn to for support.

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@janeaddams

@dloos I had the same reaction; although it's hopeful, he's a young guy with more resilience. I'm a senior+, and expect recovery to be slower, as in any illness, than when I was much younger However, I think his advice that after a certain point, it's better to try to move ahead with acceptance and try to shift one's attention to ... more pleasant things That's where I am, at 13 months in and having just been told my long-awaited 4/1 appointment at the LC clinic at NWMH in Chicago has been moved to ... September 11, because the neurologist is no longer seeing LC patients. Not cheery that even some doctors are giving up hope that they can actually help us get effective treatment. Positive reframing is a challenge, but I know it's the way to go, and I'M TRYING... plus his other ideas... eat well, sleep and rest more, and trying not to be so impatient with the process. Glad to have this group to turn to for support.

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Yes, same with me. I feel I am trying to do all the things...eat, rest, stay positive. I went through stages where I could neither eat nor sleep! I’ve lost over thirty pounds. In that regard, I guess I am somewhat better. My weight has stabilized, and I am sleeping again. Yet, my symptoms continue and get worse.

I try to stay in a more positive frame of mind.....but, often fail.
I am under doctor’s care for LC, but so far none of the therapies offered have helped.

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I'm 69 and caught covid 13 months ago. It was a perfect storm with a 350 mi bike ride, little sleep, a cytokine storm from getting glutened (celiac), and a cyclist shared her covid with us. The long covid lasted 8 months (mostly cardiovascular and fatigue symptoms), but I still get a few LC twinges if I get really stressed. While recovering I exercised in bits followed by naps to avoid the PEM. My thyroid was also a bit sluggish so increasing my Synthroid helped with fatigue. Consider an elimination diet or keeping a food log in case covid resulted in any food intolerances. My celiac started 14 years ago; it was triggered by H1N1.

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@kayabbott

I'm 69 and caught covid 13 months ago. It was a perfect storm with a 350 mi bike ride, little sleep, a cytokine storm from getting glutened (celiac), and a cyclist shared her covid with us. The long covid lasted 8 months (mostly cardiovascular and fatigue symptoms), but I still get a few LC twinges if I get really stressed. While recovering I exercised in bits followed by naps to avoid the PEM. My thyroid was also a bit sluggish so increasing my Synthroid helped with fatigue. Consider an elimination diet or keeping a food log in case covid resulted in any food intolerances. My celiac started 14 years ago; it was triggered by H1N1.

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What did you do to recover in eight months?

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@florabel

What did you do to recover in eight months?

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LC hits everyone differently, but PEM recovery is mostly a long, slow process. I still biked, but 5 mi increments instead of 30, with naps and lots of breaks. I have a friend in his 70's that is quite robust, and his LC took 9 months of slowly coming back. I didn't change my diet because it is already strict (gluten free, minimal processed foods, due to celiac and colitis). Getting enough sleep, rest, and escape from stress is important.

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Its a long, slow process. I am still in phase 1.

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