Third sputum culture rejected - frustrating

Posted by Jen_b @jenblalock, Nov 15, 2017

Arrrgh! Got my sputum culture results back again and once again it's unacceptable! I can't seem to cough up anything that they can culture. Maybe that means there is nothing there so that would be good. It's just frustrating because I haven't felt great lately and would like a culture at least cooking. At this point in my recovery (have been off MAC meds since April) I am supposed to submit one every 6 months. Not sure if I should just let it go at this point or request an order for another one be submitted. I should note that I was diagnosed with a bronchoscopy and since then all of my sputum cultures have been negative. - Jen

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Hi. I posted original question/issue. I am now not feeling well and feel some chest congestion but have no way of knowing what is going on since I can't get a sputum culture. I had a chest CT scan back in September that showed no changes in lesions or bronchiectasis and had been feeling quite well until recently. I have no fever and just a bit of a cough. One side of my chest feels more congested than the other. Has anyone else had this issue with one side of chest feeling congested but not the other?

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@jenblalock , Hello Jen. Sorry to hear you are feeling poorly. I was feeling like I had pneumonia coming on last week.I had a stabbing pain radiating out the backside of my right shoulder blade. I was already halfway thru my 28 Day cycle of tobramycin when that came on. My dr. phoned in a prescription for Levafloxacin. I am thinking it is a broad spectrum antibiotic and will kill any gram postive infection since I got sick while on the tobi which treats gram negative bacteriums. I am starting to feel better, but still coughing up green. Call your dr. and ask what you should do. Do you nebulize the 7% saline twice a day by any chance?

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@windwalker Thanks for your reply. I hope the Levafloxacin takes care of your problem and you feel good again soon. That's what I was put on last time I had pneumonia and it cleared it up. I do nebulize with 7% once a day and huff cough and nothing comes up except spit so it feels like a waste of time. I'll give this a week and see how I feel. I don't feel horrid and can still function. Just went out for a brisk walk/run to clear my lungs and did okay except some coughing so maybe I'm just paranoid. The problem is I'm not sure how I am *supposed to feel anymore. I did contact the doctor and asked for an RX for Dulera inhaler to see if that helps. Inhalers traditionally have done nothing for me but it's worth a try.

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@windwalker

@jenblalock , Hello Jen. Sorry to hear you are feeling poorly. I was feeling like I had pneumonia coming on last week.I had a stabbing pain radiating out the backside of my right shoulder blade. I was already halfway thru my 28 Day cycle of tobramycin when that came on. My dr. phoned in a prescription for Levafloxacin. I am thinking it is a broad spectrum antibiotic and will kill any gram postive infection since I got sick while on the tobi which treats gram negative bacteriums. I am starting to feel better, but still coughing up green. Call your dr. and ask what you should do. Do you nebulize the 7% saline twice a day by any chance?

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@windwalker I hope you are continually feeling better, please keep us updated.

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@jenblalock

Hi. I posted original question/issue. I am now not feeling well and feel some chest congestion but have no way of knowing what is going on since I can't get a sputum culture. I had a chest CT scan back in September that showed no changes in lesions or bronchiectasis and had been feeling quite well until recently. I have no fever and just a bit of a cough. One side of my chest feels more congested than the other. Has anyone else had this issue with one side of chest feeling congested but not the other?

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Hi @jenblalock I always felt more congested on the right side, know idea why, I would also get pain on that side. I hope you are feeling better soon.

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@jenblalock, I hear you, the inhalers didn't seem to help me much either. The corticosteroids. I mentioned that to my dr., he said I wouldn't be able to feel the difference, but that it helps with iflammation. I still don't use it, more out of bad habit than being obstinate. My dr has me nebulizing the saline twice a day. Some people do three. One thing it does is add moisture to the phlegm so that it is thinner and easier to get up. For a long while, it didn't irritate me into a wet cough, but now it does. Don't give up! Perhaps try twice a day. I pull double duty; I nebulize while mentoring this site. I too have been taking long walks, at least once a day. Today, I did two. Hope you are feeling better soon!

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@jenblalock

Hi. I posted original question/issue. I am now not feeling well and feel some chest congestion but have no way of knowing what is going on since I can't get a sputum culture. I had a chest CT scan back in September that showed no changes in lesions or bronchiectasis and had been feeling quite well until recently. I have no fever and just a bit of a cough. One side of my chest feels more congested than the other. Has anyone else had this issue with one side of chest feeling congested but not the other?

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Hi @heathert. Isn't that weird? I wonder if it's due to their actually being more congestion on that side? Thank you.

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@windwalker

@jenblalock, I hear you, the inhalers didn't seem to help me much either. The corticosteroids. I mentioned that to my dr., he said I wouldn't be able to feel the difference, but that it helps with iflammation. I still don't use it, more out of bad habit than being obstinate. My dr has me nebulizing the saline twice a day. Some people do three. One thing it does is add moisture to the phlegm so that it is thinner and easier to get up. For a long while, it didn't irritate me into a wet cough, but now it does. Don't give up! Perhaps try twice a day. I pull double duty; I nebulize while mentoring this site. I too have been taking long walks, at least once a day. Today, I did two. Hope you are feeling better soon!

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@windwalker Glad to hear you have the same inhaler issues! I have been pretty non-compliant with nebulizing lately. I felt better and treatment fell to the wayside. I'll get back to it and try twice a day then. Thanks.

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@windwalker

@jenblalock, I hear you, the inhalers didn't seem to help me much either. The corticosteroids. I mentioned that to my dr., he said I wouldn't be able to feel the difference, but that it helps with iflammation. I still don't use it, more out of bad habit than being obstinate. My dr has me nebulizing the saline twice a day. Some people do three. One thing it does is add moisture to the phlegm so that it is thinner and easier to get up. For a long while, it didn't irritate me into a wet cough, but now it does. Don't give up! Perhaps try twice a day. I pull double duty; I nebulize while mentoring this site. I too have been taking long walks, at least once a day. Today, I did two. Hope you are feeling better soon!

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Dr. Huitt's (NJH) nurse called me yesterday and said to nebulize in the morning and then use Aerobika again in the afternoon so I'll try that. Or maybe I'll nebulize twice a day. How do you mentor the site and nebulize. I find I can't type because I need my hand to hold the inhaler (trying it now - not going well).

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@windwalker

@jenblalock, I hear you, the inhalers didn't seem to help me much either. The corticosteroids. I mentioned that to my dr., he said I wouldn't be able to feel the difference, but that it helps with iflammation. I still don't use it, more out of bad habit than being obstinate. My dr has me nebulizing the saline twice a day. Some people do three. One thing it does is add moisture to the phlegm so that it is thinner and easier to get up. For a long while, it didn't irritate me into a wet cough, but now it does. Don't give up! Perhaps try twice a day. I pull double duty; I nebulize while mentoring this site. I too have been taking long walks, at least once a day. Today, I did two. Hope you are feeling better soon!

Jump to this post

@jenblalock Did Dr Huitts nurse say why she thinks you have more congestion? could it just be the bronchiectasis, were you left with scaring after your cavities closed, I was?

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