1. < COPD: Chronic obstructive pulmonary disease

Questions about the Use of a Trelegy Machine

Posted by Errol, Alumni Mentor @duvie, Mar 2, 2018

Hello Everyone, Pt diagnosed with COPD and congestive heart failure this time last year. Has been readmitted 1/19/18 to 1/31/18 out for about 2 weeks and admitted again for 4 days for shortness of breath and slight fever. Went to the PCP Tues. for follow-up and there was talk of placing her on a triolgy machine. She currently uses an oxygen cannula during the day and a Bipap at night.

My questions are;
1)...Is this almost the same as a Bipap?
2)...How is it different?
3)...Do they prescribe this for end stage COPD?
4)...Does the use of a Triolgy machine mean permanent use?
5)...What are the pros and cons of use?
6)...How do patients feel about use it?
7)...Any questions to ask the pulmonary Dr next Friday?

Any help is greatly appreciated.

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

walkro9 | @walkro9 | Feb 21, 2019
In reply to @bowens "My sister has been on the trilogy for almost two years now, as I'm writing this..." + (show)
@bowens

My sister has been on the trilogy for almost two years now, as I'm writing this she is her last few hours of life. Her doctor have given her 6 months to live on at least 4 occasions. First started about 6 years ago. This machine has helped to keep her around far longer than anyone could have guessed. She is on 30lpm @90%. She has had to be on the trilogy or an airvo (which she use so she could eat). We have found this to be a wonderful machine. What we found when we were trying to get one is that they are very difficult to get for every day home use. You have to get them through a medical phacilialty. Nursing home, hospice or hospital. It is very much like a ventalor but is NON-invasive.

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I’m at a nursing home owed by the VA don’t know if they recognized or approved of that trilogy yet

REPLY
1 reply
walkro9 | @walkro9 | Feb 21, 2019
In reply to @cchristoph "If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there..." + (show)
@cchristoph

If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there any reason I should switch to the Trilogy machine...or is that the next step??

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I’ve heard good things bout trilogy

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walkro9 | @walkro9 | Feb 21, 2019
In reply to @cchristoph "If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there..." + (show)
@cchristoph

If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there any reason I should switch to the Trilogy machine...or is that the next step??

Jump to this post

If it works don’t mess with it

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cchristoph | @cchristoph | Feb 21, 2019

If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there any reason I should switch to the Trilogy machine...or is that the next step??

REPLY
3 replies
walkro9 | @walkro9 | Feb 16, 2019

Do you know if it’s VA approved?

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walkro9 | @walkro9 | Feb 16, 2019

I’m with the VA n I don’t know if they would approve of this

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walkro9 | @walkro9 | Feb 16, 2019
In reply to @copdwontbeatme "I was put on the Trilogy recently after using a CPAP for years. I was recently..." + (show)
@copdwontbeatme

I was put on the Trilogy recently after using a CPAP for years. I was recently diagnosed with COPD with CO2 retention. I almost passed into the afterlife after having kidney failure and septic shock. After two hospital stays in 2 months I started using the Trilogy. I found it easy to adjust to vs. CPAP. Because it most resembles your normal breathing pattern. The machine eliminates the CO2 build up by venting thru the upper mask. I also use oxygen hooked to it at night. I this machine will keep me alive and out of the hospital. That is worth the cost alone. It is pricey but I was able to get multiple cost breaks. I highly recommend it and advocate for its use. Every pulmonary dr. Has praised its technology.

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Wow

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 28, 2019
In reply to @bowens "My sister has been on the trilogy for almost two years now, as I'm writing this..." + (show)
@bowens

My sister has been on the trilogy for almost two years now, as I'm writing this she is her last few hours of life. Her doctor have given her 6 months to live on at least 4 occasions. First started about 6 years ago. This machine has helped to keep her around far longer than anyone could have guessed. She is on 30lpm @90%. She has had to be on the trilogy or an airvo (which she use so she could eat). We have found this to be a wonderful machine. What we found when we were trying to get one is that they are very difficult to get for every day home use. You have to get them through a medical phacilialty. Nursing home, hospice or hospital. It is very much like a ventalor but is NON-invasive.

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Welcome to Connect, @bowens. Thank you for sharing your insights on the Trilogy Machine as you accompany your sister in her final hours. Are you in a hospice setting or at home with her?

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bowens | @bowens | Jan 28, 2019

My sister has been on the trilogy for almost two years now, as I'm writing this she is her last few hours of life. Her doctor have given her 6 months to live on at least 4 occasions. First started about 6 years ago. This machine has helped to keep her around far longer than anyone could have guessed. She is on 30lpm @90%. She has had to be on the trilogy or an airvo (which she use so she could eat). We have found this to be a wonderful machine. What we found when we were trying to get one is that they are very difficult to get for every day home use. You have to get them through a medical phacilialty. Nursing home, hospice or hospital. It is very much like a ventalor but is NON-invasive.

REPLY
3 replies
bb729 | @bb729 | Nov 1, 2018

Thanks for the insight and recommendation. Greatly appreciated. Breathe easy!

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