Questions about the Use of a Trelegy Machine

Posted by Errol, Alumni Mentor @duvie, Mar 2, 2018

Hello Everyone, Pt diagnosed with COPD and congestive heart failure this time last year. Has been readmitted 1/19/18 to 1/31/18 out for about 2 weeks and admitted again for 4 days for shortness of breath and slight fever. Went to the PCP Tues. for follow-up and there was talk of placing her on a triolgy machine. She currently uses an oxygen cannula during the day and a Bipap at night.

My questions are;
1)...Is this almost the same as a Bipap?
2)...How is it different?
3)...Do they prescribe this for end stage COPD?
4)...Does the use of a Triolgy machine mean permanent use?
5)...What are the pros and cons of use?
6)...How do patients feel about use it?
7)...Any questions to ask the pulmonary Dr next Friday?

Any help is greatly appreciated.

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

If your CO2 is at 51 or higher, the Trilogy 100 (or equivalent) VENT- is better than a CPAP to remove the CO2. I have high PCO2 54 (nor 35-45) – High PO2 142 (norm 75-100) – High CO3 33 (normal 22-26). My lungs are clear but oxygen stays low. I use the Trilogy 100 when sleeping, took me off the CPAP three months ago. I have Afib even after two ablations and two cardioversions. I have a Watchman in my heart to prevent blood clots / strokes from Afib. I have no heart blockage. I do have some pulmonary hypertension, never smoked. In my late 70's. I have specialists at UAB Birmingham, AL . We are all confused about what I should be doing differently. I am a nurse but don't understand my complicated symptoms. This is my first post here. Have any of you faced this type situation? I have major abdominal bloating, my doctors say my condition is serious. I don't know what else to do.

REPLY
@cchristoph

If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there any reason I should switch to the Trilogy machine...or is that the next step??

Jump to this post

What are your ABG's ? If your CO2 is at 51 or higher, the Trilogy 100 (or equivalent) VENT- is better than a CPAP to remove the CO2. I have high PCO2 54 (nor 35-45) - High PO2 142 (norm 75-100) - High CO3 33 (normal 22-26). My lungs are clear but oxygen stays low. I use the Trilogy 100 when sleeping, took me off the CPAP three months ago. I have Afib even after two ablations and two cardioversions. I have a Watchman in my heart to prevent blood clots / strokes from Afib. I have no heart blockage. I do have some pulmonary hypertension, never smoked. In my late 70's. I have specialists at UAB Birmingham, AL . We are all confused about what I should be doing differently. I am a nurse but don't understand my complicated symptoms. This is my first post here.

REPLY
@ann1415

Does anyone know if a trilogy machine tells you if someone isnt breathing and has passed and does machine keep working like they are breathing. Thanks

Jump to this post

Hi Ann, welcome to Mayo Clinic Connect. That is a very good question. Have you asked a pulmonologist? You could also contact the maker of the Trilogy machine https://www.usa.philips.com/healthcare/about/contact#!=

I'd be interested in what you learn.

Are you the caregiver for someone who uses a Trilogy machine?

REPLY

Does anyone know if a trilogy machine tells you if someone isnt breathing and has passed and does machine keep working like they are breathing. Thanks

REPLY
@robertjr

Sorry took so long to write in.Been in hos.with ankle surgery.Trilogy sounds like portable bipap with battery.useing mask seems ok ,but putting tube in me by someone other than nurse or doctormames me nervous,i ve been on ve tillator 5times.All at hospital.Infuture i most likely will need a trilogy,close toend stage now but right now bipap helps alot and can use during days..

Jump to this post

Why do you think you have to put a tube in for a trilogy machine?

REPLY
@bosabear20

Does the Trilogy vent make you feel tired after first use.

Jump to this post

Hello @bosabear20 and welcome to Mayo Clinic Connect. Members like @cepheid815 @stewie and @ess77 may be able to share their experiences with you.

Was this your experience? If so, how long have you been using the Trilogy?

REPLY

Does the Trilogy vent make you feel tired after first use.

REPLY
@stewie

I don't have a BiPaps machine Mine is a ventulator, I have stage 4 COPD, It has really helped a lot with my breathing during the day. I have no problem with the hose, Just the mask but I am working on a few things. Thanks so much for your input

Jump to this post

The latest nose pillow strap will help. I went from noisy to almost quiet with my last strap which is flat and stiff. I tolerate the pressure easier and it’s easier to adjust.

REPLY
@stewie

I don't have a BiPaps machine Mine is a ventulator, I have stage 4 COPD, It has really helped a lot with my breathing during the day. I have no problem with the hose, Just the mask but I am working on a few things. Thanks so much for your input

Jump to this post

Stewie, to learn more about how others have found solutions for a good mask fit, you might wish to review the discussions in the Sleep Health group https://connect.mayoclinic.org/group/sleep-health/

REPLY
@ess77

One other suggestion to you all....use the SoClean nightly. And. I had trouble setting it up correctly and understanding. YouTube has several good instructional videos that helped me so much. Worth a try! ess77

Jump to this post

I don't have a BiPaps machine Mine is a ventulator, I have stage 4 COPD, It has really helped a lot with my breathing during the day. I have no problem with the hose, Just the mask but I am working on a few things. Thanks so much for your input

REPLY
Please sign in or register to post a reply.