1. < COPD: Chronic obstructive pulmonary disease

Questions about the Use of a Trelegy Machine

Posted by Errol, Alumni Mentor @duvie, Mar 2, 2018

Hello Everyone, Pt diagnosed with COPD and congestive heart failure this time last year. Has been readmitted 1/19/18 to 1/31/18 out for about 2 weeks and admitted again for 4 days for shortness of breath and slight fever. Went to the PCP Tues. for follow-up and there was talk of placing her on a triolgy machine. She currently uses an oxygen cannula during the day and a Bipap at night.

My questions are;
1)...Is this almost the same as a Bipap?
2)...How is it different?
3)...Do they prescribe this for end stage COPD?
4)...Does the use of a Triolgy machine mean permanent use?
5)...What are the pros and cons of use?
6)...How do patients feel about use it?
7)...Any questions to ask the pulmonary Dr next Friday?

Any help is greatly appreciated.

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

hellopam | @hellopam | May 16 8:20am
In reply to @hellopam "The Trilogy machine, specifically the Respironics Trilogy Ventilator, is a versatile ventilator designed for both invasive..." + (show)
@hellopam

The Trilogy machine, specifically the Respironics Trilogy Ventilator, is a versatile ventilator designed for both invasive and non-invasive ventilation. It is particularly effective for treating conditions like chronic obstructive pulmonary disease (COPD) and is portable, making it suitable for home use.

The Trilogy Ventilator is lightweight, weighing only 11 pounds, and features a large digital display for easy monitoring1.
It can provide both invasive and non-invasive ventilation, making it suitable for a wide range of patients2.
The device is equipped with advanced features, including a detachable battery and Bluetooth connectivity for remote monitoring6.
It is designed to be user-friendly and can be easily moved around, allowing patients to maintain their therapy at home3.
I googled it and this is what I learned. Never heard of it!

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And they are expensive - $3000 to $13000!

REPLY
hellopam | @hellopam | May 16 8:19am

The Trilogy machine, specifically the Respironics Trilogy Ventilator, is a versatile ventilator designed for both invasive and non-invasive ventilation. It is particularly effective for treating conditions like chronic obstructive pulmonary disease (COPD) and is portable, making it suitable for home use.

The Trilogy Ventilator is lightweight, weighing only 11 pounds, and features a large digital display for easy monitoring1.
It can provide both invasive and non-invasive ventilation, making it suitable for a wide range of patients2.
The device is equipped with advanced features, including a detachable battery and Bluetooth connectivity for remote monitoring6.
It is designed to be user-friendly and can be easily moved around, allowing patients to maintain their therapy at home3.
I googled it and this is what I learned. Never heard of it!

REPLY
1 reply
jkcannon | @jkcannon | May 15 9:37am
In reply to @jkcannon "Taking my first steps in this journey. Trying to find out what steps I should take..." + (show)
@jkcannon

Taking my first steps in this journey.
Trying to find out what steps I should take next.
Surgery may not be an option , That being said!
Would a trilogy machine help along with immunotherapy?
I’m not sure what to expect, however I am like the surgeon and concerned about my lungs ability to withstand the surgery n losing 15 percent of my lung.
Being on a ventilator is not something I do not want to do. So my question remains!
Would a trilogy machine be an option and would it help?

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I would like to know the answer as well

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kdalda75 | @kndaustin71 | May 3 9:45am

I've never heard of a Trilogy Machine.....what is it and its purpose in treatment of lung concerns?

REPLY
jkcannon | @jkcannon | May 3 12:48am
In reply to @ethanmcconkey "Hi @brucerhowell. Welcome to Connect! I don’t use the a breathing device myself, but I understand..." + (show)
@ethanmcconkey

Hi @brucerhowell. Welcome to Connect!

I don’t use the a breathing device myself, but I understand that the air exchange of the Trilogy machine works on a similar principle as BiPAP technology. The machines are equipped with an exhalation device or non rebreather valve that gets rid of the carbon dioxide. This study shows that that some CO2 rebreathing may occur, the amount depends on the exhalation aid used with the machine.
https://www.ncbi.nlm.nih.gov/pubmed/7697242
Bruce, this sounds like it would be a good question to talk to your pulmonary specialist about and make sure the device fits and works properly for you.

I’d be interested in hearing the experiences of @dawn_giacabazi @duvie and @waterboy about minimizing the rebreathing of carbon dioxide with the Triology or BiPAB machines.

Bruce, you also mentioned problems with the mask. Can you explain further? Is it uncomfortable?”

Jump to this post

Taking my first steps in this journey.
Trying to find out what steps I should take next.
Surgery may not be an option , That being said!
Would a trilogy machine help along with immunotherapy?
I’m not sure what to expect, however I am like the surgeon and concerned about my lungs ability to withstand the surgery n losing 15 percent of my lung.
Being on a ventilator is not something I do not want to do. So my question remains!
Would a trilogy machine be an option and would it help?

REPLY
1 reply
iblvtoo | @iblvtoo | Nov 12, 2024

ive been on the trilogy for about a year, nine months or so. a lot of things happened, ,my lifestyle changed, work changed, i went ahead and retired. got real sick in jan 24, came out of the hospital 3 weeks later with a trilogy, o clear expectation of when to wear it, how long to wear it, etc. i came home to wearing it at night and when i napped in bed in the day time, intermittently bleeding 02 into the trilogy. sleeping with it on for 3-4 hours. then back ob a cannula till sunrise.

REPLY
copdbarb | @copdbarb | Nov 16, 2023
In reply to @brucerhowell "I started using a trillogy machine about two weeks ago passively with a mask as I..." + (show)
@brucerhowell

I started using a trillogy machine about two weeks ago passively with a mask as I have End Stage COPD being clusticforbic (sp) I have problem with the mask at time. But my question is this if this helps you breathe and helps reduce your trapped carbon dioxide from your lungs don't you just reinhale it the next breath you take. Where does the expelled carbon dioxide go if your wearing your mask like you should

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That is something I have wondered about also. I have a Trilogy machine, hardly ever use it as I do not understand just what you asked here. Also, when wearing it (mask) I do not feel any type of "gentle pull" of carbon dioxide as I was first told would be the case. I'm confused as to keeping it or not. I see my Dr. this month to discuss it. Trying to find information.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 21, 2023
In reply to @arwen49 "A c pap forces you to breathe a timed and pressured way. Mine was to much..." + (show)
@arwen49

A c pap forces you to breathe a timed and pressured way. Mine was to much so I would start swallowing the rest causing awful belly aches. They are able to read your machine so it must be telling them something. If you get a bi pap your lucky. It’s hard to qualify for one. I had a chance to test one for two nights I am 74 it was so much calmer. If you see if you can try one out and see. It lets you breathe normally. It makes a big difference.

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@arwen49, are you now using a Trilogy machine or CPAP?

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kathleenshank68 | @kathleenshank68 | Oct 8, 2023
In reply to @copdwontbeatme "I was put on the Trilogy recently after using a CPAP for years. I was recently..." + (show)
@copdwontbeatme

I was put on the Trilogy recently after using a CPAP for years. I was recently diagnosed with COPD with CO2 retention. I almost passed into the afterlife after having kidney failure and septic shock. After two hospital stays in 2 months I started using the Trilogy. I found it easy to adjust to vs. CPAP. Because it most resembles your normal breathing pattern. The machine eliminates the CO2 build up by venting thru the upper mask. I also use oxygen hooked to it at night. I this machine will keep me alive and out of the hospital. That is worth the cost alone. It is pricey but I was able to get multiple cost breaks. I highly recommend it and advocate for its use. Every pulmonary dr. Has praised its technology.

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Totally agree with your comment. I had 3 sleep studies, and the final study result was the Trilogy, I have never had a problem with it. The only hospital stay in 2 years, the hospital Did Not have a Trilogy, and my Pulmonary Dr. Had it brought to the hospital!! They had CPap, & Bpap, I tried the Bpap, and hated it. Just did not feel secure enough for pulling the CO2, and the sleep apnea….that was me, Not my Dr.

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kathleenshank68 | @kathleenshank68 | Oct 6, 2023

I have end stage COPD, and retain CO2, and sleep apnea. Since I have been on the Trilogy, I have only been hospitalized 1 time, 2 weeks ago, before the Trilogy I averaged hospitalization every other month. I cannot imagine living without it. If I get tired in the afternoon, I take a nap, and put on my Trilogy. For me it has been a life saver. I have been on it for 19 months. My Pulmonary Dr. Has literally saved my life. I had 3 sleep studies, prior to the Trilogy, and the C pap, nor the B pap, did not accomplish what the Trilogy did.

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