The Caregivers' Guilt Dumpster - Open for business

Posted by Scott, Volunteer Mentor @IndianaScott, Sep 4, 2016

I titled this discussion with tongue-in-cheek, but only part way. As this caregivers discussion group has begun I have been struck by the number of times the word 'guilt' is used by us caregivers. It is unfortunate, understandable, unnecessary, and, to me, more often than not, unwarranted!

I believe 99% of our guilt is so unwarranted we caregivers need a place to get rid of it. This gave me an idea....

So here is our Caregivers' Guilt Dumpster! Feel free to check in, and make a deposit anytime you want! The dumpster is big, it has no weight limit, 24/7/365 availability (since we as caregivers often live on that same 24/7/365 schedule), no fees, and the lid is now open! 🙂

I'll start.

More often than not, I believe a person is thrust into a caregiving role. It seems to just happen and we answer the call for some variety of reasons. Those who adopt the nickname of 'caregiver' obviously have accepted our call.

As we each know, caregiving comes with no employee handbook, no job description, no timesheet to clock in and out, and an awfully slim benefits package. I likened my initial feelings as a caregiver to those I had the first time I jumped into the deep end of a swimming pool. In over my head and trying my best to just not drown.

In the 14 years I was my wife's primary caregiver I had loads and loads of feelings of guilt. Heck, sometimes I would feel guilt before I even did something because I was unsure of my ability to do what she needed. But, thankfully, we always seemed to manage. Not always the smoothest of managing, but we did get to say 'mission accomplished'.

Yes, the 'mission' at hand would get accomplished and sometimes I would be repaid with a smile and sometimes with a snarl. While the 'mission' got done -- however my feelings of guilt often did not end. To fight the guilt, I finally began to use a mantra/image to help me through the guilt. Before I would start, I'd close my eyes for a brief moment. When I would reopen them I would say to myself "Well, Scott, no one appeared in this room to take my place for this task, so all I can do is give it my best."

This did help. I still had some, but at least less, of the guilt. My reality now is too much of those feelings of guilt still nag at me and hang on my shoulders like a weight. So I leave it here. Now. Today. In the guilt dumpster!

Feel free to have at it!

Peace and strength to all caregivers!

Interested in more discussions like this? Go to the Caregivers Support Group.

Profile picture for jeanadair123 @jeanadair123

@labrown
Luckily when I went this morning he seemed okay, no restraints but I called before I went. The doctor who was going to schedule the Lexascan came to talk to me before he did it, he was super nice and suggested that maybe it wasn’t such a good idea to do it with his dementia and he wanted to know I felt about it, I was totally on board since it was a stress test. He took me to a computer and went over all his tests with me. Super super nice. He said that he could go home then. But I have to say his wrists are black and blue from the restraints, I have not mentioned this to him since he is just happy to be home and is currently taking a nap in his recliner outside, it is 75. Lesson learned this will never happen again. I told my girlfriend and she said in the past she was told by some facilities that they do not use restraints that they are against the law. This I shall check into. Thanks for replying.

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@jeanadair123 oh my gosh! You have both been through so much! But, my dear, you are the one carrying the burden & brunt of all of it. I am sorry.
I understand your older statement of life passing you by and being tired…
I’m glad today was a better day for you and that you were able to salvage some useful information from your dreaded experience. Thank you for sharing it so that we can learn from it, as well. Peace be with you.

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Profile picture for jeanadair123 @jeanadair123

It’s so hard living though someone with dementia, I hate myself when I get angry and try and remember that he would take care of me and how many great years we had before this took over our lives? He is on Lupron also for his prostrate cancer 3rd recurrence, the Lupron will hopefully stop the progression but the cancer remains. I haven’t mentioned this to him what’s the point? His doctor said a year ago when he was diagnosed that his survival rate would be 1-3 years we have just passed a year but with the dementia which will come first? That sounds awful I know. Plus he also had 3 fractured disc in his back in a year. I feel my life is passing me by and know that I should do more to entertain him but I am so tired and find trips to the stores are enough? how do you tell a friend that you are living from day to day no one really understands. Enough whining for today, thanks for listening.

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@jeanadair123 there are more
And more days I feel as you do. Supermarkets are about all i can handle. I could meet a friend occasionally for a breakfast or lunch. What would I talk about? I don’t want to whine and complain. I wake up every day with intentions of going to the library for book discussion, or even shopping for some spring clothes. I don’t. Maybe tomorrow. I do understand if that is any comfort to you at all. I wish you well

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Profile picture for emteenest2 @emteenest2

@jeanadair123 there are more
And more days I feel as you do. Supermarkets are about all i can handle. I could meet a friend occasionally for a breakfast or lunch. What would I talk about? I don’t want to whine and complain. I wake up every day with intentions of going to the library for book discussion, or even shopping for some spring clothes. I don’t. Maybe tomorrow. I do understand if that is any comfort to you at all. I wish you well

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@emteenest2 I like this group because we all seem to relate and understand each other. Today was a decent day although we both were extremely tired although mine I think was exhaustion. Today I looked at his wrists and his hands and wrists were covered in bruises from the restraints. Again I will never allow that again as I said lesson learned. I do however use essential oils so I mixed a couple to help with the bruising. I don’t think that I will forget about this until the bruises as a reminder have gone. I am still so mad that I stood there and allowed this, since then I have been reading up on restraints and medication.
Thanks for your kind words. It’s to bad that connect Mayo doesn’t have a zoom we could all connect to?

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