Terrified: Soon to have open heart surgery, so many questions

Posted by mrsjaxx727 @mrsjaxx727, Nov 13, 2019

Soon to have open heart surgery and i am terrified aboit how much pain there will be of how long the ventalstor will be on me im terrified of it all..has anyone had this surgery and tell me expect or am i over thinking it ?

@jeanern01

Hello…I am schedule for open heart Tues. I am beyond terrified. I as a nurse, know that complications are rare and the surgeons keep telling me that small 1% chance of risk…. but I am scared. I fly to Rochester tonight and it’s going to take all my strength to board that flight with my husband and kids. I am not a cardiac nurse- mostly neuro- so I reached out to a few friends for advice but really best advice comes from those who have had surgery, felt the fears, and overcome the hurdles. I hope that I can help in the future once I do this! I want to really help those going through this. My surgery is from congenital heart disease- so it’s a day to day issue. Best of luck to everyone for a fast recovery! I hope you get some answers and advice!!

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@jeanern01– Welcome to Connect.I understand being beyond terrified. It's a horrible feeling to feel so out of control. Try thinking about how much better you will feel! Hopefully your shortness of breath and fatigue will be much less and you will be able to be more productive. You are going to the best hospital with doctors who are the best, who care deeply about their patients. You will be in great hands. Best of health and recovery. Please do get back to Connect so you can join our wonderful team on Connect.

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@gingerw

@cepatchwork1955 Welcome to Mayo Connect. It must be scary, and exciting to have helpful surgery just around the corner, isn't it? I haven't had heart surgery, but as you have read, following the instructions from your doctors will go a long way to have an uneventful recovery. Perhaps @lioness or @harriethodgson1 can answer your questions about normal behavior?
Ginger

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Thank you Ginger for inviting me here into this conversation as you know I did have a triple bypass and I can only tell you that yessi Patchwork that before I went in it was it's a hard decision to make but I was in so much pain I knew that it was the only thing that could relieve my pain so I went in with a good attitude and that is very important after it was over the pain was gone I can breathe better I did my own exercises at home / the doctor had which he told me I did not have to go to rehab but generally they send you to a rehab afterwards but mainly I did the exercises that according to him at home and I had no more pain wish I was out of so I was very happy that I had it done and you will be too once you can win just go in with a good attitude that and make plans for when you come back out of it okay thank you bye bye

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@lioness

Thank you Ginger for inviting me here into this conversation as you know I did have a triple bypass and I can only tell you that yessi Patchwork that before I went in it was it's a hard decision to make but I was in so much pain I knew that it was the only thing that could relieve my pain so I went in with a good attitude and that is very important after it was over the pain was gone I can breathe better I did my own exercises at home / the doctor had which he told me I did not have to go to rehab but generally they send you to a rehab afterwards but mainly I did the exercises that according to him at home and I had no more pain wish I was out of so I was very happy that I had it done and you will be too once you can win just go in with a good attitude that and make plans for when you come back out of it okay thank you bye bye

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Ty for saying these things i also am terrified but the pain gets worse. Ty for making me geel stronger about it

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@harriethodgson1

I had open heart surgery for acute heart failure on May 8th. My mitral valve was replaced with a pig valve. Like you, I was terrified before surgery. As I approached the operating room (not in it) I was given anesthesia. The next thing I remember is waking up on a hospital bed. I had little pain and was taught how to get out of bed with minimal pain and without disturbing any stitches. I followed recovery instructions to the letter. Today, I have enough breath, can walk longer distances, and continue to be my disabled husband's caregiver. Be of good cheer. You will be amazed at how much better you feel after surgery.

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Thank you for he encouragement.

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@pha2340840

Thank you for he encouragement.

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@pha2340840 Welcome to Mayo Connect. We are a very diverse group of patients, caregivers, and family members who offer support, and share our experiences with others. We are not medical doctors and cannot offer medical advice. What brings you to Mayo Connect? Are you experiencing medical issues that revolve around heart surgery? Or other medical issues? We would like to have a little bit more information so we can share our knowledge with you!
Ginger

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@gingerw

@pha2340840 Welcome to Mayo Connect. We are a very diverse group of patients, caregivers, and family members who offer support, and share our experiences with others. We are not medical doctors and cannot offer medical advice. What brings you to Mayo Connect? Are you experiencing medical issues that revolve around heart surgery? Or other medical issues? We would like to have a little bit more information so we can share our knowledge with you!
Ginger

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I had open heart surgery on May 5th to replace a failing mitral valve with a pig valve. Like you,I was terrified, so terrified I planned my memorial service, paid bills, and prepared for our daughter to come and care for her disabled father. To my surprise, there was a cancellation and my surgery was earlier than anticipated. The next thing I remember is waking up in a hospital bed. I had minimal pain and nurses showed me how to get out of bed safely. A nurse always accompanied me to the bathroom. The pain management was excellent. I was in rehab five days, was dismissed, went home, and followed the instructions I received to the letter. During the next few weeks my shortness of breath disappeared (I had been in acute heart failure) and my energy returned. Today, I'm back to being my husband's caregiver and back to my writing career. The biggest surprise is that I lost 20 pounds. According to my primary care physician, the build-up of fluid in my body was caused by my failing heart. I am thrilled with my recovery, grateful to my surgeon, and the health care team.

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@harriethodgson1

I had open heart surgery for acute heart failure on May 8th. My mitral valve was replaced with a pig valve. Like you, I was terrified before surgery. As I approached the operating room (not in it) I was given anesthesia. The next thing I remember is waking up on a hospital bed. I had little pain and was taught how to get out of bed with minimal pain and without disturbing any stitches. I followed recovery instructions to the letter. Today, I have enough breath, can walk longer distances, and continue to be my disabled husband's caregiver. Be of good cheer. You will be amazed at how much better you feel after surgery.

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I ditto " that

Liked by lioness

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@pha2340840

Thank you for he encouragement.

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Mine was almost 5 years ago. My doc claims (to my face anyway) I'm the healthiest patient he sees. I had a quad due to blockages.

The worst days are right afterward, but go to cardiac rehab, do NOT sit around after your procedure. Also, walk. If it's cold outside go to the grocery store and simply use the cart as your walker for steadiness and peruse ALL aisles, go slowly until you get your "sea legs" and can manage the entire store. Walmart, Big Lots, even the CVS is large enough to give you a great walkabout in an indoor locale.

Glad you are here, great advice found here and great encouragement.
Eileen

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@eileena

Mine was almost 5 years ago. My doc claims (to my face anyway) I'm the healthiest patient he sees. I had a quad due to blockages.

The worst days are right afterward, but go to cardiac rehab, do NOT sit around after your procedure. Also, walk. If it's cold outside go to the grocery store and simply use the cart as your walker for steadiness and peruse ALL aisles, go slowly until you get your "sea legs" and can manage the entire store. Walmart, Big Lots, even the CVS is large enough to give you a great walkabout in an indoor locale.

Glad you are here, great advice found here and great encouragement.
Eileen

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Eileen, thanks for reminding me about grocery store exercise. I walked every aisle several times and it helped.

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@eileena

Mine was almost 5 years ago. My doc claims (to my face anyway) I'm the healthiest patient he sees. I had a quad due to blockages.

The worst days are right afterward, but go to cardiac rehab, do NOT sit around after your procedure. Also, walk. If it's cold outside go to the grocery store and simply use the cart as your walker for steadiness and peruse ALL aisles, go slowly until you get your "sea legs" and can manage the entire store. Walmart, Big Lots, even the CVS is large enough to give you a great walkabout in an indoor locale.

Glad you are here, great advice found here and great encouragement.
Eileen

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Encouraging – my open heart surgery is on 2/3. Worrisome but confident that I’ll be ok

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@pha2340840

Encouraging – my open heart surgery is on 2/3. Worrisome but confident that I’ll be ok

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@pha2340840 I had my triple by pass in 1996 never had any pain after the surgery. That will be 23 yrs this Feb 18 2020

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@harriethodgson1

I had open heart surgery on May 5th to replace a failing mitral valve with a pig valve. Like you,I was terrified, so terrified I planned my memorial service, paid bills, and prepared for our daughter to come and care for her disabled father. To my surprise, there was a cancellation and my surgery was earlier than anticipated. The next thing I remember is waking up in a hospital bed. I had minimal pain and nurses showed me how to get out of bed safely. A nurse always accompanied me to the bathroom. The pain management was excellent. I was in rehab five days, was dismissed, went home, and followed the instructions I received to the letter. During the next few weeks my shortness of breath disappeared (I had been in acute heart failure) and my energy returned. Today, I'm back to being my husband's caregiver and back to my writing career. The biggest surprise is that I lost 20 pounds. According to my primary care physician, the build-up of fluid in my body was caused by my failing heart. I am thrilled with my recovery, grateful to my surgeon, and the health care team.

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@harriethodgson1– Harriet, so happy for you! Nice to read a good outcome. Jim@thankful

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@thankful

@harriethodgson1– Harriet, so happy for you! Nice to read a good outcome. Jim@thankful

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You give me courage – thank you!

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@eileena

Mine was almost 5 years ago. My doc claims (to my face anyway) I'm the healthiest patient he sees. I had a quad due to blockages.

The worst days are right afterward, but go to cardiac rehab, do NOT sit around after your procedure. Also, walk. If it's cold outside go to the grocery store and simply use the cart as your walker for steadiness and peruse ALL aisles, go slowly until you get your "sea legs" and can manage the entire store. Walmart, Big Lots, even the CVS is large enough to give you a great walkabout in an indoor locale.

Glad you are here, great advice found here and great encouragement.
Eileen

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Thanks for reassuring me. Mayo is the Best!

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