Occipital Neuralgia Headache: Terrible pain lasting weeks, what helps?

@pierwell Sorry to hear that you had 2 ablations with minimal effects. And I thought the diagnosis of my small nerve fiber was weird. This diagnosis is different than anything I have ever known or heard about. I had head pressure and blurry vision Feb. 17th 2025 and no one could tell me anything after seeing different doctors. Then came head pressure every day. my regular doctor sent me to the pain management and I read they do more than that. First time in 11 months I finally feel like I am getting somewhere. I will be the bull in the china shop from now on when it comes to my health. NO more Mrs. Nice guy. I wish you well! @rnlorena

@rnlorena yep. one time a financial adviser told us "no one cares more about your money than
you do" this applies to our health, we need to take charge not a Dr. we are only #.
Yes, the Dr. that performed my ablation told me sometimes it helps other times it does not.
I saw no improvement. I might ask my new Dr. if I should try again? please let us know how you
do. At this point I am trying every possible aid, even ordered a new roll pillow, I believe my
precious down pillows are a thing of the past for me; too soft gives my neck O support. Best to you.
Mrs. Nice guy!!!!!

@pierwell same with me. I did have one, but they might give me a 2nd? just order a new roll
pillow, my days of using my precious down pillows are over. When my headacks begin I think
those pillows give my neck O support. Here goes another stab a help????

@sinyaale Hardest part for me is putting my daily Life on hold until my "Flair Up" is over.
I had them about 19yrs. however they seemed to be getting more servere. I have been taking
trigger shots, last about three months (sometimes;) My Pain Dr. wants me to have nerve block
three wks (more like Botox). my biggest 2nd issue there isn't anything to take to relieve pain
when my is flaring up. I have an appt. with Nueaglist today to see what they can do. If you have
reg Migranes their seems to be more help. I just ordered a rolled pillow to sleep on my precious
Down Pillows are being put away they are to soft, my neck needs more support. I love two sights
on hand massage: Kayla Duncan LMT I especially listen to her as she at one time suffered from ON. very iinteresting I just started doing them. Aslo a fellow from Cananda Dr. Jon Saunders "Magic Muscle Neck" He seems very good easy to understand. Never give up you will get some help, I love this sight, because We Do Understand What You Are Facing Sometimes for Weeks On End.

@lisalucier Well good for you your Drs. are helping you. Some folks get no relief from these
strong Meds. and usually Drs. hesitate to give us anything. One buringing of C-2, C-3 C-4 no
improvment. trigger shorts every 4months. Some times I can go without a Headachs but then
A #10 Flair Up lasting 17-20 days. They are benning in three wks giving me Nerve Blocks? have
you ever had them or Botox? Some folks get real relief. Ice packs for the #10 Ice Pick pain
both sides of my head, over top and into my eyes. This sight has been so helpful , the maine reminding me there are others who "know exactly how awful this pain can be"
Welcome

Suszy fr Northern Calif.

@rnlorena Keep us posted. Wonder what they will come up with? Have you had any MRI"s?

@suszy39 I had CT's and MRI's and nothing. I just started back with head pressure again. It started a short while ago. I had the nerve block on the 8th and the pressure started back up again. If I have to I will go to the ER. It is different today. It feels like someone put my head in a vice. I called and asked for a sooner appt with my pain Dr. The soonest is the 27th of this month. We will see. @rnlorena

@suszy39 I have been seeing since 2021 the changes in the medical field. It is not good. We have to be our own advocates for sure. I am not and have not ever been a mean person in any way but one can only take so much. I may have to say my piece one day and let it out. @rnlorena

@rnlorena I totally agree. I made appt. with my new PA @Neuaglist I laid it all out. I need some
help during my Flair Up's she did agree I will be starting on Ovloxeline soon? have no idea
I wanted to try combo of Valium/Medrol she said Oh Valium is addtive (so what) if it works!!!!
We will also do Botox when approved by my Ins. As the world turns. Another sleepless night
with pain.

@pierwell I was wondering myself. I had one ablation a few years ago (no improvment). Pain Dr.
said it usually isn't a good sign for a 2nd. But I think I will ask my new Pain Dr. Hoping our days
get better....