Talking Frankly about Living with Advanced Cancer

Are you living with advanced cancer (sometimes referred to as stage 4 or metastatic cancer)?
This discussion is a safe space where you can connect with others to talk about the realities of living with limited time. It's not easy to find people who understand what it is like. For many reasons, you may not feel comfortable talking about your thoughts and emotions with friends or family. Perhaps you are alone. Even if you are surrounded by people who support you, you may experience intense loneliness.

Connect is a place where honest conversation can safely take place. You can speak frankly and be heard without judgement. I invite you to share your reality facing death and living now.

Interested in more discussions like this? Go to the Cancer Support Group.

@gingerw, Thank you for the added suggestion and for your kindness to me as well. Both are much appreciated.

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@fiesty76

@gingerw, Thank you so much for both your very kind words and your super suggestions. These two friends have been my rock and rudder during difficult periods in my life and i am thankful that they call me "friend".

Yes,we Do have a Meals on Wheels here! I delivered meals for them for years and that brought both wonderful and heart wrenching experiences...a daily lesson in what to be grateful for in my own life. However, at that time at least, a recipient had to meet a certain income level; if over that threshold, the request was denied. I will certainly call to ask what requirements have to be met. That service would be a godsend if possible. Thank you and Hugs.

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@fiesty76 If your friend does not meet the criteria for Meals on Wheels, they may be able to point you in a direction to check out. It seems there is usually a hidden network of information that is hard to find out about.

Be gentle on yourself.
Ginger

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@fiesty76

@colleenyoung, I'm not sure this is the best forum, or if there is one, for posting this. I have been integrally involved with caring for and providing meals for my closest friend of 40+ years. Recently her Stage 4 MBC returned with a vengeance and the new is very aggressive.

Since her recent release from the hospital, her daughter from out-of-state has been caring for her along with help from my friend's wonderful partner of over 20 yrs. After weeks of being here and a few very stressful situations because of daughter's determination to be the "ultimate and final" decision maker regarding home health care, medical choices and now financial matters, the daughter has been told to leave. The daughter does have medical power of attorney. The daughter has emotional problems and it was just a matter of time for this to occur. If my friends weren't so incredibly easy going and "not rock the boat types", this would have happened much sooner.

Almost immediately ff my friend's hospital release, we were struck with the covid-19 spread. Because I have compromised lung and other chronic health issues, I promised my daughter, who lives out-of-state, that I would self-quarantine which I have done. With the friend's daughter leaving, my want/desire to resume meal prep for my friend has returned full force. I have not been driving but could deliver the meals and hubby could take them from trunk without my going inside.

Because there are different health care people coming and going throughout the week and also because my friend has been going for wound treatment and infusions to our cancer center weekly, I fear being near her in person. Zoom is out because she no longer can work with her computer because of memory loss.

I've offered to help her guy order food delivery from a local source and he's agreed to that. I haven't yet offered the resumed meal preps but feel some trepidation because of the needed handling of dishes back and forth. Wish there were a professional meal prep service available or maybe even an individual who could be hired to prepare daily meals. Any suggestions or tips?

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@fiesty76- Good morning. I'm with Ginger, what an incredible friend you are. It's very tough not to be able to be close to people right now, especially when they need it most! I think that your friend knows how much you love her and how much you have helped. Sometimes I think that there comes a time when you have to say to yourself, enough and take a half-step back. Maybe this is the time for this?

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@gingerw, Thank you so much for both your very kind words and your super suggestions. These two friends have been my rock and rudder during difficult periods in my life and i am thankful that they call me "friend".

Yes,we Do have a Meals on Wheels here! I delivered meals for them for years and that brought both wonderful and heart wrenching experiences...a daily lesson in what to be grateful for in my own life. However, at that time at least, a recipient had to meet a certain income level; if over that threshold, the request was denied. I will certainly call to ask what requirements have to be met. That service would be a godsend if possible. Thank you and Hugs.

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@fiesty76

@colleenyoung, Thanks for your response. Yes, you make good points. Her partner endured this dreadful experience with the mother of his children many years ago. He is a wonderful man and so attentive. If he is busy when I call, leaving a message will at least let him know they are in my thoughts.

Not sure about the multi-day portions for less frequent deliveries because it seems a priority just to turn out one main meal each day for myself. Usually my previous meals were enough for more than one meal and I did sometimes use sealable baggies, which I'd forgotten about, and still have some multi-sized tin foil containers and can order more. Less for him to have to clean up would be helpful for him as well.

We've given him a hard time for years about his diet preferences and yet, he is in his 80's, is very active, takes no otc or prescriptions,and has had only one surgery, either gall or kidney stones. Luckily my friend and I share similar tastes so that helps tremendously. Thanks again for reminding me about using more disposables...my mind is in more of a fog these days but it can't be due to aging because I yam still the same age as a few months ago, right? Smiles.

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@fiesty76 What an awesome friend you are! I know that your closest friend and her partner are thrilled to have you in their lives.

Not sure where you live, but can you look in to Meals on Wheels perhaps, or contact a culinary college/group nearby that may be able to give you some ideas? Being in a rural community like i am, if I was faced with such an issue, letting people know would result in a chain of meals delivered, or access to a delivery system out of the county seat [an hour away].

And, what are you doing for yourself, knowing this Stage 4 MBC has returned to revisit her? This must be difficult for you, too.
Ginger

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@colleenyoung, Thanks for your response. Yes, you make good points. Her partner endured this dreadful experience with the mother of his children many years ago. He is a wonderful man and so attentive. If he is busy when I call, leaving a message will at least let him know they are in my thoughts.

Not sure about the multi-day portions for less frequent deliveries because it seems a priority just to turn out one main meal each day for myself. Usually my previous meals were enough for more than one meal and I did sometimes use sealable baggies, which I'd forgotten about, and still have some multi-sized tin foil containers and can order more. Less for him to have to clean up would be helpful for him as well.

We've given him a hard time for years about his diet preferences and yet, he is in his 80's, is very active, takes no otc or prescriptions,and has had only one surgery, either gall or kidney stones. Luckily my friend and I share similar tastes so that helps tremendously. Thanks again for reminding me about using more disposables...my mind is in more of a fog these days but it can't be due to aging because I yam still the same age as a few months ago, right? Smiles.

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@fiesty76

@colleenyoung, I'm not sure this is the best forum, or if there is one, for posting this. I have been integrally involved with caring for and providing meals for my closest friend of 40+ years. Recently her Stage 4 MBC returned with a vengeance and the new is very aggressive.

Since her recent release from the hospital, her daughter from out-of-state has been caring for her along with help from my friend's wonderful partner of over 20 yrs. After weeks of being here and a few very stressful situations because of daughter's determination to be the "ultimate and final" decision maker regarding home health care, medical choices and now financial matters, the daughter has been told to leave. The daughter does have medical power of attorney. The daughter has emotional problems and it was just a matter of time for this to occur. If my friends weren't so incredibly easy going and "not rock the boat types", this would have happened much sooner.

Almost immediately ff my friend's hospital release, we were struck with the covid-19 spread. Because I have compromised lung and other chronic health issues, I promised my daughter, who lives out-of-state, that I would self-quarantine which I have done. With the friend's daughter leaving, my want/desire to resume meal prep for my friend has returned full force. I have not been driving but could deliver the meals and hubby could take them from trunk without my going inside.

Because there are different health care people coming and going throughout the week and also because my friend has been going for wound treatment and infusions to our cancer center weekly, I fear being near her in person. Zoom is out because she no longer can work with her computer because of memory loss.

I've offered to help her guy order food delivery from a local source and he's agreed to that. I haven't yet offered the resumed meal preps but feel some trepidation because of the needed handling of dishes back and forth. Wish there were a professional meal prep service available or maybe even an individual who could be hired to prepare daily meals. Any suggestions or tips?

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@fiesty76 this is a good place for your post to get ideas from other people who have advanced stage cancer.

This is such a difficult situation, especially in times of social isolation. Given your friend's state, it sound like your efforts will shift to helping her caregiver/partner. Even without COVID, the end stages of caregiving can feel very isolating. Do whatever you can do to support him and let him know he is not alone. That may simply be phone calls. Daily meals are a fantastic service, but I understand your trepidation with handling dishes etc. Might you consider less frequent deliveries and offering multi-day portions in throw-away containers that do not need to be returned?

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@colleenyoung, I'm not sure this is the best forum, or if there is one, for posting this. I have been integrally involved with caring for and providing meals for my closest friend of 40+ years. Recently her Stage 4 MBC returned with a vengeance and the new is very aggressive.

Since her recent release from the hospital, her daughter from out-of-state has been caring for her along with help from my friend's wonderful partner of over 20 yrs. After weeks of being here and a few very stressful situations because of daughter's determination to be the "ultimate and final" decision maker regarding home health care, medical choices and now financial matters, the daughter has been told to leave. The daughter does have medical power of attorney. The daughter has emotional problems and it was just a matter of time for this to occur. If my friends weren't so incredibly easy going and "not rock the boat types", this would have happened much sooner.

Almost immediately ff my friend's hospital release, we were struck with the covid-19 spread. Because I have compromised lung and other chronic health issues, I promised my daughter, who lives out-of-state, that I would self-quarantine which I have done. With the friend's daughter leaving, my want/desire to resume meal prep for my friend has returned full force. I have not been driving but could deliver the meals and hubby could take them from trunk without my going inside.

Because there are different health care people coming and going throughout the week and also because my friend has been going for wound treatment and infusions to our cancer center weekly, I fear being near her in person. Zoom is out because she no longer can work with her computer because of memory loss.

I've offered to help her guy order food delivery from a local source and he's agreed to that. I haven't yet offered the resumed meal preps but feel some trepidation because of the needed handling of dishes back and forth. Wish there were a professional meal prep service available or maybe even an individual who could be hired to prepare daily meals. Any suggestions or tips?

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@julie2018

Thank you, @marciakaye. I will check that out.

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Thanks for the recommendation, @marciakaye. Integrative medicine is becoming increasingly adopted by major cancer centers.

@julie2018, Mayo Clinic has an Integrative Medicine department at all 3 campuses: AZ, FL and MN. Here's more information: https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567

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@marciakaye

Dr. Sheba Roy is the Naturopathic MD. She's located in Michigan. Our oncologist at Henry Ford Hospital recommended her. Maybe your Mayo oncologist has a local recommendation. I'm not sure but maybe Dr. Roy would see patients remotely. If you're interested her web-site is https://www.aimnatural.org/.
Recently, I listened to a series put on by Hay House called Radical Remissions. Kelly Turner is the driving forced behind Radical Remissions. She has studied patients, most are cancer-related but not all, to determine what factors led to their surviving and thriving when the statistics aren't promising. When the patient has a low survival rate under 5 years. She found many factors including as you would expect exercise, diet, nutrition, and supplements to be important. But also other factors too. Maybe check that out for hope and inspiration. I'm always looking for that myself.

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Thank you, @marciakaye. I will check that out.

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