Tacrolimus blood levels: Do yours vary?
Hi all, 😊
When you have your Tacronlimis blood level tests done, how much does your numbers vary? Have you seen your Tacronlimis blood level change up to 2 points higher or lower than your previous result?
I am a two year post kidney transplant patient. Since day one in the hospital, I have taken my Tacronlimis and Cellcept (MMF) with food to avoid stomach issues. I am starting to wonder if the food is making my results vary each time or if everyone that takes Tacronlimis sees their Tacronlimis blood level change a couple points. Is your blood level always a consistent number each time?
Thanks for your help everyone! 😊
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Thanks Rosemary. I went back and note that I have had 3 different manufacturers of my tac since transplant last Feb. The version I was on for about 6 months was from Strides – and my tac levels were fairly stable.
My nurse coordinator replied to me and said that it is important to let the team know if there has been a change in manufacturer, as this can impact tac blood levels. She said that when that happens, she will order a blood test to make sure the level is in target range. Good advice that we all need to keep in mind. I noticed the difference because the pills I received were a different color from the ones I had been taking and I immediately questioned CVS. I haven’t noticed any changes on how I feel on the increased dosage, but it’s only been about 4 days since the increase. Happy New Year and thanks for your advice.
Hi @katebw 😊
What an unbelievably kind message. I can't tell you how much your message means to me. I was really getting down on myself and you gave me a true gift. I have to remember that we are all human and doing the best we can. I start to drive myself nuts looking for the perfect numbers and trying to be perfect. Thank you for sharing that you struggle too with keeping the blood level in range. None of this is easy. And your afternoon coffee and muffin made me smile since that's my afternoon pick-me-up of choice too!
Thank you again @katebw ❤
You are wonderful to jump in to help me and I wish you a very happy and healthy new year! Congrats on your 14 month post liver transplant and please keep me posted on your progress on your new exercise program. That's another project that's on my list for 2023…getting back some muscle tone.