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Tacrolimus and dizziness post liver transplant
I am 14 months post liver transplant and doing very well. In the last month I've been experiencing slight dizziness upon standing. I read where tacrolimus could be causing this. Anyone else experiencing this?
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@jtjourney, Congratulations of your 14 months with your new liver! And a special cheer to hear that you are doing very well.
Since dizziness does not sound like a 'normal' thing for you, and because you are on tacrolimus, this might be due to an elevated tacrolimus level. I'm speaking as a patient (liver/kidney transplant 2009). It has happened for me between routine 3 month labs.
I suggest that you contact your transplant coordinator and let them know about the dizziness. I expect they will have some questions and might have suggestions, or might want you to have an extra lab test to check your levels. It is best to be sure that all is okay! In my experience, my tacrolimus has been adjusted as I moved further out from my transplant date.
Do you get you labs drawn locally?
@rosemarya thank you for your response. My tac levels have been in normal range for some time and I get a lab draw every 2-3 weeks. One thing I forgot to add is that I had to add a statin 3 months ago but I didn't start to feel the dizziness until a month ago. My PCP lowered my statin, from 10mg to 5mg a week ago, so I'm also that helps. Thanks again for your response and congratulations on your transplant!
Hi. I had my liver transplant 18 months ago. I have been on tac the entire time. I was warned at the time I might get slight dizziness upon standing from a laying down position. But was told if it was minor and occasional that could be normal for me and was not a concern. It was not referenced as regarding to tac. I would take Rosemarys advice and check with your transplant team but would not be too concerned in the mean time. Congrats on 14 months !!