TABs Temporal Arterial biopsies - numbness, scalp & nerve pain.

Posted by wendy517 @wendy517, 1 day ago

Hi, ive got 3 & 2 inch incisions down my temples to side of my ears and biopsies were negative for GCA ( my Mom had GCA and PMR, both have been in remission for 9 or 10 years).

I was told it's totally normal to have numbness and nerve pain for months. It's been 3 months and could it really go on for up to 6 months or more?? Luckily the nerve pain has subsided a bit but still get bouts of nails/pins being stabbed into my head in the area, very focused on the left.

My pain in general for almost everything is left sided - is that a thing??

Anyone who can shed light on their experience with TABs, my Moms incisions were tiny, barely half inch on each side. I do understand the surgeon wanted to get multiple pieces of artery to test on each side but at what cost if this ends up permanent? I dont want to even think about that being the case.

I'm hoping to hear it got better at 6 months or even it got better at a year later.

I'm grateful the psychotic break I had with being put on 80mg prednisone only lasted a few weeks after I titrated down 60, then 40mg and it got SO bad I went off it cold turkey at that point. One ER visit 3 days later because it gave me an unbearable migraine or whatever kind of headache since I get different kinds. It was a nightmare, never again with high dose prednisone, I should have been given methotrexate with a much lower dose of the steroid. Another very bad call by a doc and I paid the price big-time. I'm losing a dear friendship over it, she just did not understand about what Psychosis does to someone, we aren't in our right minds. Horrible Horrible feeling I never ever want again. My mother had the same issue and she was on 40mg when it happened, we are the only ones in our family that understand each other's angst over the chaos we caused. It was not our faults but you feel at fault, damn women guilt syndrome strikes again.

Please share, thank you 🙏 ❤️

Be well and stay strong 💪 🤘 ❤️

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