Symptoms of PD, seeking answers. Anyone experiencing the same?

Posted by bobconfused @bobconfused, Sep 29, 2025

Just turned 65, been going through problems for some time, memory problems, tremors especially in hands / jaw , falling down, muscles stiff especially on right side and neck to jaw, through all kinds of test Mri, EEG , finally after 6 months of this my family doctor sent me to a neurologist he did some test, draw on a circle which wasn't pretty, walk, not good , right side not moving right when I walk, now sending me for a DATSCAN say he's 99 percent sure it PD, I'm so confused, anyone else go through this trying to get answers?

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saganjames | @saganjames | Jan 6 5:06pm

I have posted this before. Hope it helps.

A respected Doctor here in North Carolina recommends reaching out to Dr. Laurie Mischley at Seattle Integrative Medicine, as she specializes in this field. Apparently she also wrote a book called Natural Therapies for Parkinson's Disease, which might be worth checking out. I believe her work goes beyond PD.
Dr. Mischley works via telehealth.
Seattle Integrative Medicine: (206) 525-8012
https://seattleintegrativemedicine.com/
Believe me, I have no interest in SIM other than to help those with these miserable disorders.
Regards,
Sagan

emmit | @emmit | Jan 5 1:09pm

In reply to @bobconfused "Thank you so much ..." + (show)

@bobconfused
Not sure if you’re still posting but I am very new to all of this just had a dat scan 5 weeks ago and found your post helpful. I’m glad to know it’s not just me experiencing the confusion of scans and symptoms
I have some symptoms but not many of the others. So I don’t check all the boxes but it appears I might check enough of them
Still in the process of figuring out everything i’m scheduling an appt with another neurologist to get another opinion
Thanks to those who posted especially for us newcomers

tngirl103 | @tngirl103 | Dec 13, 2025

In reply to @foundryrat743 "@tngirl103 As a guy who waited a few years, to find a neurologist, and/or some kind..." + (show)

@foundryrat743
Thank you so much for sharing your experience.
Debbie

foundryrat743 | @foundryrat743 | Dec 13, 2025

In reply to @tngirl103 "@jatonlouise Would you be willing to share your symptoms? I feel my husband has Parkinson’s. He..." + (show)

@tngirl103 As a guy who waited a few years, to find a neurologist, and/or some kind of Doc, to help figure out my symptoms, I would advise your husband to seek privately a neurologist, so he can be tested! I wish I would have pursued my symptom problems, earlier! What did it, for me, was a freezing episode, where I froze in place, while walking my dog, and fell/face planted, on the sidewalk,

bmfoster | @bmfoster | Dec 13, 2025

Thank you to all who are willing to share their experience, strength and hope. I have had many similar symptoms for years, but only recently put the pieces of the puzzle together towards a more definitive diagnosis. The differential is narrower now with a dx of Primary Autonomic Nervous System Failure with REM sleep behavior disorder, but whether it continues to progress into something more damaging is the question.