Anyone have input on living with symptoms from cardiomyopathy?

I was actually looking for someone to share my experience with, and get information and insights from other HCM sufferers. Glad i found this site

That is so wonderful that you are keeping your mind positive and yourself busy! I can't think of a better approach 🙂
I noticed too, that alcohol, especially certain ones, would send me into tachycardia in no time at all. I thought it was all in my head, but I do believe there is a scientific correlation with HCM and alcohol. I have wine at night, and this doesn't seem to affect me negatively at all. In fact, I fear it would be the opposite! If I could not have my wine at night I would be cranky, grumpy and not at all happy.
I'm glad you found Mayo Connect. There is no place like it anywhere, and to be able to share, across the states, the Country and the World is a blessing! May I ask how you heard about Mayo Connect?

I am able to do weight and resistance band training. I can walk around shops etc. I find that I tire easily. Im keeping heart rate down and steady. I found that alcohol over 5% proof sets me into tachycardia. Its mid winter here now. Dry cold weather with mostly sunshine. Keeping myself busy and mind positive.

Well, @sueq447, it sure sounds like you are in good hands then. I'm sorry you have so many things going on. It's like we need a pill for this, and then that happens, so we need another pill for that and on it goes. I don't blame you for being reluctant to try yet another drug. Camzyos is not for everyone, but for those who have seen remarkable results, it has changed their lives. There are some things we have control over, like what we eat, how active we are and our attitude. But HCM isn't one we can control with diet or exercise.
How do all these issues affect your ability to be active? Are you able to get out and enjoy nature in or around Johannesburg? What is the weather like there this time of year?

I have blockages in veins around heart, no doubt caused by calcium and cholesterol. I am being treated with blood thinners, beta blocker, statin and hypertension medicine. I take a diuretic 2 to 3 times weekly. I doubt camzyos is available in my country, but it has too many risks for me. Im reluctant to try it. My Doctor is a cardiologist and she is in partnership with the professor of cardiology in Johannesburg.

Camazoye

What medication did you start?

Hi there @sueq447, and welcome to Mayo Connect. Boy! It sure sounds like you have had quite a time with HCM. I like that you say to have positive thoughts, that is so important for your mental health as well as physically. You offer good advice. One day at a time. Don't allow stress. Etc. I hope you take a look around the Hypertrophic Cardiomyopathy site. There is a lot of good information being shared by other members and you may find some interesting things you didn't know before. Learn as much as you can about HCM so you can be your own best advocate.
May I ask, do you know if you have Obstructive HCM?
Is your cardiologist specialized in treating HCM? Are they aware of Camzyos, the newly approved drug for treatment of HOCM?

Had various symptoms, even while on medication. I was diagnosed about 6 years ago. Have been hospitalised for arrythmia twice, had pneumonia plus tachycardia requiring cardio version once, had 3 angiograms so far. Very important to be calm. Think positive thoughts, take it one day at a time. Rest. Dont allow stress. Take your medication. Eat vegan if possible, keep cholesterol down. Move around as much as you are able. Watch heart rate, rather use weight training and resistance for mobility and muscle tone.

Hi group yesterday I had my blood pressure
Go up also had a few dull pains in neck area a litter short in breathing
I was concerned I call doctor they spoke to me twice
Yesterday had to monitor both things
It’s not easy living HCM
Good today I head out to exercise
I have to pick myself up and enjoying outside
Stay strong