Post Covid Symptoms and what has helped me.

I have been missing in action… but happy to report significant success in my recovery.. I finished Mayo PRC program in June and In July began hyperbaric treatment at Aviv Clinics in the Villages. I am almost fully recovered. I intend to be healed by June 2023.

I was diagnosed with COVID September 2020.

I’ve decrease my inflammation with my diet.

I restored my sleep with strict sleep hygiene.

I have eliminated 13 medications I need after my initial.

I only take supplements.

I have advice if you all have questions..

I credit my success to the WHOOP, I reprogrammed my neurological system and symptoms. It allowed me to avoid the push and crash.

PRC with Dr Sletten taught me how to minimize my symptoms, supervised medication with drawl, increased my activity tolerance. Literally reprogrammed my brain.

Stop talking about your symptoms with people that can’t help you. They are only reinforcing them and creating stronger neurological symptom pathways.

Aviv clinics has a COVID protocol. Dr Elamir took care of me. He was in New Jersey when COVID hit. He is amazing my life line. I understand how depressing and anxious it can be thinking about the future. I have so much hope for the future.

The hyperbarics created a physiological pathway to begin healing my body and my brain. I couldn’t feel my feet and hands I couldn’t see. I struggled walking talking and anything else you can imagine.

I’ll post some links. Below. I wish you all well.

Most of my content and information is on Instagram from the beginning you can look up the content under #covidrecoverymama BE WELL.

Jump to this post

Thank you for your comments and suggestions . I too have long covid. I had covid in August of 2021. I lost ⅔of my hair. I now have asthma. My anxiety is heightened and much worse than it was. Another thing that happened is I have neuropathy. Both of my feet and I have numb spots in different places on my body. The worst is my feet because the nerve of pain is so so painful . My doc gave me gabapentin for it and it helps take the edge off because there's some days it feels like I have IcyHot from the tips of my toes up my legs almost to my knees. My taste and smell still comes and goes after all this time. I also have fibro and it's worse than it was ...my joints and aches and pains are much worse than they used to be. I may not have given suggestions but I'm just sharing what happened to me . I shudder to think what will happen next . We're in this together! God bless us all!

Jump to this post

Is gabapentin still working well for you by chance? My 2nd go around of covid much worse than first, and now the muscle pain is so intense when doing nothing buy carrying in a bag of groceries. It is as if I lifted weights for a week. I am searching for what are the known medications to date that are actually working. There is a good video on youtube with Dr Mobeen and Dr. Berkowitz on some things they use, but if you run across any new research to shut off this immune response in the body due to the viral remnants left in the body. They do not leave the body and if agitated the immune system does not know what to do. It is the heart of it all and hope the docs find the drug that stops the bad immune response. Thanks for sharing on the forum.

Jump to this post

Try hydroxychloroquine. It takes awhile to kick in but worth it. I had such awful muscle pain in my legs it was debilitating. This has saved me. I had no pre-existing conditions. It was mimicking lupus. So read about that. It made sense to me.

Jump to this post

My rheumatologist gave me hydroxy but I have not tried it yet. One of my other doctors said it is harder on the gut health. I tried Ivermectin on my first covid, as well as acyclovir for EBV, and seemed to work, but my new doctor does not want to try these again on me. I have never had such muscle pains. If you come across any other forum posts on medications for covid muscle issues, feel free to post them. My doctor said the spike proteins in the body from covid cause all the irritation and immune system does not know what to do. It is sad there is not just a medication that can treat the viral persistence in the body from covid. Thanks again for posting.

Jump to this post

Not sure if any hyperbaric chamber would work, verse the Aviv? THey do not have locations in Arizona. Just want something to help the immune system get regulated again. Covid has disregulated it, and so far doctor's just are not providing enough info to try to remedy some of this stuff for long haulers. Blood work is fine, yet mega brain fog and muscle pains all over, yet was super health before. Any blood tests, medications, etc. that you might recommend please post. Thank you.

Jump to this post