Has anyone tried SYMPAZAN? If you have, did it help? What about side=effects? Thanks for any info.
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I’m very sorry to learn the Epidiolex is not as helpful for Caleb as hoped. Has the neurologist mentioned why this isn’t as helpful as the medical marijuana? Have you noticed that his seizures are any less severe than before starting the Epidiolex?
I believe he’s been on it nearly 8 months. What is his dose now?
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Hi, Jake and Everyone,
Caleb's current dose of Epidiolex is 4 ml. twice a day. He dozes off at times during the day. He seems pretty cheerful when he is awake. Last few days, no seizures.
Has his drowsiness increased with the dosage increase?
His drowsiness seems about the same.
Hello, @pamelastewart5 – Here is some Mayo Clinic information about the medication clobazam (Sympazan) https://www.mayoclinic.org/drugs-supplements/clobazam-oral-route/description/drg-20075333. Please note there is a section especially about side effects, which you asked about.
Hoping that @jakedduck1 @hopeful33250 @jenniferhunter @crstyday40 @patrassi may have some input on this medication.
Wondering if your son's doctor is looking at clobazam (Sympazan) for your son's treatment?
Clobazam is helpfull for anti-sezures.im using that its very good for sleeping too
Hi, @santhosh1000 – thanks for the input on the clobazam. Welcome to Mayo Clinic Connect.
Do you have a diagnosis of Lennox-Gastaut syndrome, or are you taking it for any other reason?
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