Survivors?

Posted by rufus31 @rufus31, 3 days ago

When I opened my email and read topics the Mayo Clinic Daily Digest, the word Survivors from another support group caught my eye. 👀
I've never heard it used and wonder why we don't refer to ourselves as MDD, GAD, PTSD, etc Survivors?
I think this struck me today because I am having a very difficult time surviving today. Stuck in the downward spiral of hopelessness, misery and a general dislike of being alive 😢Feeling like nothing will ever be right again.
If (When?) I get out of this alive, I think I shall start referring to myself as a Survivor. An accomplishment that is so hard fought for and should not be ignored.

Interested in more discussions like this? Go to the Depression & Anxiety Support Group.

Profile picture for ashleyharris728 @ashleyharris728

@rufus31 have you tried any fast acting antidepressants that could help get you some relief while you wait for others to kick in? Spravato or IV ketamine?

Jump to this post

@ashleyharris728
I haven't. They are new options "on the market" since the last time I went through this. I will be sure to bring this up with the Dr.
Thank you for the suggestion 🙂

REPLY
Profile picture for ellesea01 @ellesea01

Certainly relate to what you're saying here. It is a battle & when it's not improving with the passage of time, yah ... ugh. That's a sign we need to Switch Gears & find a time out escape.

The ones that we can immediately implement & that are safest to reach for are obviously preferred.

Even small efforts can help. Think of what's worked in the past. What has someone else said helps them? Try a known or new one. Music, comedy, going outside, a call to a friend etc. breathing exercises are also very helpful. The Navy Seal Blue Dot 4 second ie slow inhale, 4 rest, 4 exhale, 4 rest while looking at that blue dot doing exactly that size/timewise is amazing. Science says even one round reduces heart rate.

It is important that we keep diverting ourselves from the overload we experience usually daily. I'm glad you posted what you experience here. Also appreciate your very honest description.

You know yourself best as to what helps you. I hope some of the people here replying reassures you that at least you're not alone. We never know when how one person describes something causes a shift in ourselves. The good kind. Feel for ya. ♡☆♡ !!!

Jump to this post

@ellesea01
Thank you so much for taking the time to answer and suggest....it means a lot to me. I think part of a Switch Gear for me was posting and admitting (to myself in writing) that the battle is very real and I need support/encouraging words from those who get it. I try as hard as I can to deal with as much of this as I can, so I don't effect the people around me, but WHACK! Sometimes it's just too much. Everything I have seen/read on this site is wonderful, as are the people. I so appreciate it. 🤗
I've never heard of The Navy Seal Blue Dot 4. That will be a visit to Google when I finish here🙂

REPLY
Profile picture for rufus31 @rufus31

@shmerdloff
You are so right. Brilliant thought 😊

Jump to this post

@rufus31 ,
Howdy, was going to reply to another message i saw you in earlier as not a victim but a survivor . I could write a book but that would not really help . what i can say from experience is that if you wait long enough and make little remarks here and there like with Mayo clinic connect. you have many hundreds of people that want to say something. Me i am a survivor and again must hide my feelings for now and play my part. What is that? fighter for so many reasons that i cant just start there. I have been fighting for my life now this time just over two years. what i have to do is find something in my life that is a constant like the love of a daughter that takes on her world a little chunk every day. she is my reason to make my feet hit the floor every morning. you need that too it sounds like. I wish you only the best and have a blessed evening. for now i have to reach deep and get ahold of that drive to stay alive again as i am being tested dearly this last few months. feel free to message me for ideas of things that help me besides trying to stay away from drugs Meds type.

REPLY

I totally agree with this and am so sorry you’re feeling this way. We definitely are survivors, every day we get up and make the choice to keep going, to be here. It isn’t easy and mental health is a disease, something not everyone understands. So thank you for your thoughtful post and I truly hope you stick around. It’s hard when our brains lie to us and our symptoms make it so hard, but you are worth it. ❤️

REPLY
Profile picture for rufus31 @rufus31

@lisalucier
Yes indeed, that was me. I'm still in the "waiting" period to see if this last increase is going to be effective. To date, it clearly has not. According to my Psych. and what I've read, the uptake period can take longer as we get older.
My next appointment with him is at the end of this month, that will have been almost 8 weeks since the increase. If there is no movement to the positive side, we will have to look into a Plan B.
I feel stuck in a purgatory of SO hoping the increase will take hold ( I try really, really not to give up on Hope, even when it is transient) and so afraid of what my next hell will be if it doesn't.

Jump to this post

@rufus31 so sorry it sounds like you’re still going through it with the dosage change. These meds can be tough to figure out. And some that worked before don’t work when you try them the second time around (my more recent experience). Our bodies definitely seem to change as we get older and hormones etc seem to play a role. I really hope you find the right dose/med soon and hope your symptoms get more manageable. I’ve thought about trying TMS possibly as an alternative if I need more support. The Lexapro did end up evening out for me. Please keep us updated on how things are going!

REPLY
Profile picture for depressedbutnotdead @depressedbutnotdead

As I do far too often here, I'm going long, but I want to offer a number of suggestions.

I went through a very deep depression that led to hospitalization following a near miss at taking my life. It proved to have been triggered by the antidepressant I was on (Effexor) , a rare but known complication. So definitely ask if any prescription you're on can possibly have this side effect. I was actually the one who discovered what was going on with online research, and since getting off the medication and switching to another one (Lamotrigine), have had essentially no serious depressive episodes for more than two years now, and the minor ones have passed quickly. A first for me, and I'm 62.

With online research, ONLY look to legitimate sources, NOT sites where some random person decided to attack doctors and the pharmaceutical industry. Those can be filled with disinformation, and thus detrimental. I found a peer reviewed paper on PubMed that described my symptoms and the potential for the medication to cause them, and subsequently after the medication switch found another study with the same findings on the British Medical Journal.

In the hospital I received a late middle aged bipolar 2 diagnosis, and given a lifetime of depression issues that fit the description perfectly, I believe it to be accurate. I'd never in my life gone a single year without several cycles of sometimes very deep depression, and in the three or four years prior to getting off Effexor was rapidly veering towards self-harm. So I know what it's like to feel so helpless. Again I want to stress, that's something that medication being the cause for the spiral is rare, so I'm not promising anything. But talk with your provider. If you're seeing a general practitioner, ask for a referral to a psychiatrist. They're far more aware of potential mental health medication complications than family doctors are.

Also, you don't mention if you're seeing a therapist, but that's been the other big piece of the recovery for me. And despite the successful medication switch, I'm still attending.

I did have a momentary suicidal thought while falling asleep one night last week, the first since changing meds. I sat up and said "NO! Not going back there," and it vanished, but I have no question that this was owing to the medication as much as any willpower. I immediately emailed my therapist, told my wife in the morning, and called my psychiatrist's office. At present both the doctor and therapist think, given how it emerged as I fell asleep and that I was able to chase it out without delay, that it was old patterned behavior from when I was in the pit, not an actual crisis. But we're all taking it seriously and monitoring to be sure.

So keep your provider, therapist if you're seeing one, and any trusted friends and/or family members updated. I have good friend who's my go to guy if anything goes awry and my wife is out of reach (she sometimes goes hiking in remote areas without cell coverage). I have a good circle of longtime friends who I've been fully open with about what happened and talking about it has been more helpful than I can say in words. If you have trusted friends, don't hide it. You won't feel so lost and alone.

One very useful tool for me has been eMoods. I started using it after getting off the Effexor. It's a daily mood tracker and I now I have two-and-a-half years worth of data on myself. It's a way of detecting any patterns and triggers that might be adding to the difficulties. Things I hadn't noticed before I now see. I highly suggest it.
https://insights.emoodtracker.com/login
Also, 988Hotline saved my life. If I hadn't finally reached out the day I hit the bottom, I wouldn't be here to write these words. File this away.
https://988lifeline.org
One thing I took away from several years of spiraling so deeply downward and then being successfully treated is that people like yourself are strong, not weak. People who are suffering as much as I was and who can still get out of bed in the morning, much less go through their daily lives, have power. Most people aren't as fortunate as I was, it was luck of the draw that my spiral was medication driven. But from the perspective I now have, I am in awe of people who can keep going. I nearly didn't. That extreme depression that life no longer seems to have any value is real. Take a few moments every day to reflect on the strength that has brought you this far despite your towering obstacles.

And please keep us updated. All of us are here to listen and offer suggestions. We care about you. You are a fellow human being. You aren't alone in this.

Jump to this post

@depressedbutnotdead
Thank you so much for sharing your story/experience so candidly. My doctor just prescribed me Lamotrigine for the first time. I’ve had trouble getting back on meds that worked for me the first time around. We tried adding Wellbutrin in recently and it made me more depressed very quickly and brought up some SI. I have had other ‘switches’ from meds in the past (like Celexa) which makes me consider the possibility that I too might have a ‘soft’ presentation of Bipolar 2 which has masked itself as anxiety/depression most of my life. It’s hopeful to hear you’ve had a positive experience on Lamotrigine. I’m nervous to try anything new at this point because of my recent experience. Would love to hear how it’s felt in your system if you feel like sharing. I’ve only ever tried more traditional antidepressants so far. Thanks so much. So glad to hear your success story. Glad you made it through that dark time and are still here! ❤️

REPLY
Profile picture for ClimbingMountains81 @climbingmountains81

@depressedbutnotdead
Thank you so much for sharing your story/experience so candidly. My doctor just prescribed me Lamotrigine for the first time. I’ve had trouble getting back on meds that worked for me the first time around. We tried adding Wellbutrin in recently and it made me more depressed very quickly and brought up some SI. I have had other ‘switches’ from meds in the past (like Celexa) which makes me consider the possibility that I too might have a ‘soft’ presentation of Bipolar 2 which has masked itself as anxiety/depression most of my life. It’s hopeful to hear you’ve had a positive experience on Lamotrigine. I’m nervous to try anything new at this point because of my recent experience. Would love to hear how it’s felt in your system if you feel like sharing. I’ve only ever tried more traditional antidepressants so far. Thanks so much. So glad to hear your success story. Glad you made it through that dark time and are still here! ❤️

Jump to this post

@climbingmountains81 Thanks. I'm quite well nowadays.

I can't make any promises about Lamotrigine, every single person has different responses to each medication. There's no magic bullet. But hopefully you'll have a similar experience to mine. Do keep an eye out for a rash. It's uncommon, but it can get serious, which I'm sure you've been told.

What I will say is this. I also have a heart arrhythmia. Hearts are simple organs. They're pumps. And it still took a couple of stabs after it set in during my 30s before the cardiologist got it right. Not his fault, just the imperfections of practicing medicine. It's always part guessing game. The point being that he did get it right in the end, and decades of mountain biking and marathon running later, it's still working (my hips ended my marathon days, not my heart).

Brains, meanwhile, are CPUs. They're so complex. Hearts are well understood, but researchers have barely scratched the surface of brains. And there's so much that can go awry. Far more than with a heart.

Nobody tells a heart patient to buck up and get over it. Yet the stigma of mental health still to this day prompts that response (much less so than when I was young, but still...). Ignore it. Mental health difficulties are far more challenging to resolve than cardiac issues. And far more excruciating to endure.

So it's like I said above. More than anything else, try to take a few moments each day and remind yourself that the simple fact that you get out of bed every morning tells you how strong you are. It's hard to think that sometimes, but it's true.

My thoughts as both a cardiac patient and a psychiatric patient.

REPLY
Profile picture for Lisa Lucier, Moderator @lisalucier

@rufus31- I think you mentioned something about a long-time prescription no longer working as well in another thread?

Please do be in touch with your provider or their nurse/receptionist today. I've found that providers do try to help on the double with any mental health/mental health medication issues that arise.

Is your provider aware of what a tough time you've had lately? If so, how did they respond?

Jump to this post

@lisalucier I always keep my PCP informed.

REPLY
Profile picture for depressedbutnotdead @depressedbutnotdead

As I do far too often here, I'm going long, but I want to offer a number of suggestions.

I went through a very deep depression that led to hospitalization following a near miss at taking my life. It proved to have been triggered by the antidepressant I was on (Effexor) , a rare but known complication. So definitely ask if any prescription you're on can possibly have this side effect. I was actually the one who discovered what was going on with online research, and since getting off the medication and switching to another one (Lamotrigine), have had essentially no serious depressive episodes for more than two years now, and the minor ones have passed quickly. A first for me, and I'm 62.

With online research, ONLY look to legitimate sources, NOT sites where some random person decided to attack doctors and the pharmaceutical industry. Those can be filled with disinformation, and thus detrimental. I found a peer reviewed paper on PubMed that described my symptoms and the potential for the medication to cause them, and subsequently after the medication switch found another study with the same findings on the British Medical Journal.

In the hospital I received a late middle aged bipolar 2 diagnosis, and given a lifetime of depression issues that fit the description perfectly, I believe it to be accurate. I'd never in my life gone a single year without several cycles of sometimes very deep depression, and in the three or four years prior to getting off Effexor was rapidly veering towards self-harm. So I know what it's like to feel so helpless. Again I want to stress, that's something that medication being the cause for the spiral is rare, so I'm not promising anything. But talk with your provider. If you're seeing a general practitioner, ask for a referral to a psychiatrist. They're far more aware of potential mental health medication complications than family doctors are.

Also, you don't mention if you're seeing a therapist, but that's been the other big piece of the recovery for me. And despite the successful medication switch, I'm still attending.

I did have a momentary suicidal thought while falling asleep one night last week, the first since changing meds. I sat up and said "NO! Not going back there," and it vanished, but I have no question that this was owing to the medication as much as any willpower. I immediately emailed my therapist, told my wife in the morning, and called my psychiatrist's office. At present both the doctor and therapist think, given how it emerged as I fell asleep and that I was able to chase it out without delay, that it was old patterned behavior from when I was in the pit, not an actual crisis. But we're all taking it seriously and monitoring to be sure.

So keep your provider, therapist if you're seeing one, and any trusted friends and/or family members updated. I have good friend who's my go to guy if anything goes awry and my wife is out of reach (she sometimes goes hiking in remote areas without cell coverage). I have a good circle of longtime friends who I've been fully open with about what happened and talking about it has been more helpful than I can say in words. If you have trusted friends, don't hide it. You won't feel so lost and alone.

One very useful tool for me has been eMoods. I started using it after getting off the Effexor. It's a daily mood tracker and I now I have two-and-a-half years worth of data on myself. It's a way of detecting any patterns and triggers that might be adding to the difficulties. Things I hadn't noticed before I now see. I highly suggest it.
https://insights.emoodtracker.com/login
Also, 988Hotline saved my life. If I hadn't finally reached out the day I hit the bottom, I wouldn't be here to write these words. File this away.
https://988lifeline.org
One thing I took away from several years of spiraling so deeply downward and then being successfully treated is that people like yourself are strong, not weak. People who are suffering as much as I was and who can still get out of bed in the morning, much less go through their daily lives, have power. Most people aren't as fortunate as I was, it was luck of the draw that my spiral was medication driven. But from the perspective I now have, I am in awe of people who can keep going. I nearly didn't. That extreme depression that life no longer seems to have any value is real. Take a few moments every day to reflect on the strength that has brought you this far despite your towering obstacles.

And please keep us updated. All of us are here to listen and offer suggestions. We care about you. You are a fellow human being. You aren't alone in this.

Jump to this post

@depressedbutnotdead
You went long, but it was worth the read and I was actually able to stay focused enough and absorb! You shared a lot of good information, I appreciate it. Your words about suffering, strength and the power to get through it mean a lot. There are many days I feel so weak, a complete wreck...I don't know how I am going to do it.... But looking back on how I've made it this far, will provide me with a dash of hope.
I do see a Psychiatrist ... not frequently (medical system shortages make them very hard to come by) in order to increase my meds, wait the 8 weeks, then see him again. It's not ideal, but it is something. I do see a Therapist weekly. She is helping me with aspects of trying to cope with the Depression. I do have a question about Therapy but I think I will put that in a separate post so I don't get things too confusing 🤪...at least for me!
Thank again for your response

REPLY

He's back. Survivor 1-1
You wake up and your feet hit the floor, you survived to meet a new day. Hopefully it will be better than yesterday 🙏 said a quiet prayer that I am still on the right side of living. Now to figure out how to make things work better today. Start with believing in myself and think before I act. It helps to try to plan a bit first. Then have a blessed day best I can. Hope you do also.

REPLY
Please sign in or register to post a reply.