Surgery concerns

Posted by kathyhg @kathyhg, Aug 24, 2020

I’m having unexpected surgery in September and the surgeon wants to use a general anesthetic. I’m not sure she knows much about Mac as she didn’t seem concerned when I asked her about it. I’m in the process of calling my respirologist to see if she has concerns but I want to be prepared for my conversations with her and with the surgeon.

I expect a number of people on this forum have had surgery while dealing with Mac and wonder if anyone has any suggestions re: concerns I should be sharing and sorting out with my doctors prior to having surgery.

Thanks so much.

I don’t have asthma.

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Hi again all thanks for your replys, I cough sometimes at night and was diagnosed with asthma, I wondered if it was the MAC damage, but hey maby I do have asthma then. Thanks Heather

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@heathert

Hi all you lovelys, just wondering if anybody on here has not been diagnosed with Asthma . Thanks Heather

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heathert. I have not been diagnosed with asthma… just bronchiectasis and Mac as far as the lungs go

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No asthma, MAC and Bronchiectasis…Deb

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I am a candidate for surgery and the doctor I saw in Rochester encouraged me to wait until after my MAC treatment. He indicated the only way he would proceed was with approval from my pulmonologist. I think you are asking all the right questions and I wish you the best of luck!

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@heathert

Hi all you lovelys, just wondering if anybody on here has not been diagnosed with Asthma . Thanks Heather

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Hi Heather, Yes, I was diagnosed with asthma along with bronchiectasis almost 5 years ago in my senior years. Had chronic bronchitis over and over and was always prescribed antibiotics about every 6 weeks or so, and doctors would ask me if I had asthma and I would always tell them to tell me if I did, and finally found an asthma and allergy lung specialist who tested me and said yes, I do have asthma! I nebulize with Brovana twice daily followed by Alvesco inhaler. Best wishes to you. BAZ

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@baz10

Hi Heather, Yes, I was diagnosed with asthma along with bronchiectasis almost 5 years ago in my senior years. Had chronic bronchitis over and over and was always prescribed antibiotics about every 6 weeks or so, and doctors would ask me if I had asthma and I would always tell them to tell me if I did, and finally found an asthma and allergy lung specialist who tested me and said yes, I do have asthma! I nebulize with Brovana twice daily followed by Alvesco inhaler. Best wishes to you. BAZ

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I had the same thing, always asked if I had been diagnosed with asthma but no one ever diagnosed me until MAI.

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@heathert

Hi all you lovelys, just wondering if anybody on here has not been diagnosed with Asthma . Thanks Heather

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@migizii no asthma here

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@baz10

Hi Heather, Yes, I was diagnosed with asthma along with bronchiectasis almost 5 years ago in my senior years. Had chronic bronchitis over and over and was always prescribed antibiotics about every 6 weeks or so, and doctors would ask me if I had asthma and I would always tell them to tell me if I did, and finally found an asthma and allergy lung specialist who tested me and said yes, I do have asthma! I nebulize with Brovana twice daily followed by Alvesco inhaler. Best wishes to you. BAZ

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Hello Baz. You were diagnosed five yrs ago with asthma and bronchiectasis. Did you ever test positive for mac?

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@heathert

Hi all you lovelys, just wondering if anybody on here has not been diagnosed with Asthma . Thanks Heather

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Hello Heather! I was diagnosed all of my adult life with asthma and put on inhalers. I have been going to the Mayo Clinic since 2013 and they have never mentioned me having asthma and it is not in my medical records either. So, I do not know if I do or not. I nebulize albuterol daily, so it really doesn't matter either way. I have a feeling that I went for many yrs with serious lung issues and it got blamed on asthma. I was treated short term for recurring pneumonia over the yrs, and I have a feeling it was mac or pseudo instead, My sputem was never tested back in the day; so, who knows??

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Hi Kathy. What date is your surgery in Sept?

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@alleycatkate

Hi Heather. No asthma here…just MAC and Bronchiectasis. Kate

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Hi Heather…..I also have asthma which we confirmed by pulmonologist after my MAC diagnosis. I have been treated for asthma for years, and he thought perhaps it was all MAC, but it is both.

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