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Suggestions how prepare for 1st Evenity injection prevent side effects

Posted by wili22 @wili22, Jan 21 8:42pm

Hi, I have been diagnosed with severe osteoporosis based on 2 Dexa scans. I have had an autoimmune condition, ITP. I will receive my first Evenity shot and would like to decrease possible side effects. Any positive suggestions would be greatly appreciated. Thank you!

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oopsiedaisy | @oopsiedaisy | Jan 27 5:10pm
In reply to @basslakegirl "Wow! I'm so glad I stumbled across this community group this morning when i was doing..." + (show)
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Wow! I'm so glad I stumbled across this community group this morning when i was doing some random searching about some other symptoms related to a shoulder injury.

I was diagnosed with severe osteoporosis after a broken shoulder failed to heal - as in ZERO bone growth - over the course of 4 months... I'm now recovering from a total reverse total shoulder replacement 14 weeks ago... and am scheduled for my first shot of EVENITY this Friday.

I am taking all of the above to heart...
I won't get the injection until late(r) in the day;
Will have heat and cold at the ready;
My husband will be driving;
I've told my husband that Saturday is a "me" day - for recovery;
I use electrolyte replacement drinks (Hydralyte tabs) already for another condition - so will make sure I have lots cold and ready to drink;

What is the (perceived?) benefit of Claritin (or will any antihistamine do)?

What about insomnia? Anything work? I have used melatonin supplements in the past but I' ve been off it entirely since before my surgery... my body has enough hormone "issues" between stress (cortisol) and hypothyroidism I don't want to be messing around with supplementing with more hormones...

Also - the reference to Aleve.... Will Tylenol (regular, extra strength or for arthritis) not work?
I was prescribed Naproxen (Aleve) as pain control after my initial injury. I stopped cold turkey after it became undeniably apparent - at Week 6 - that there was no bone growth... The research I did - trying to understand my lack of healing - showed that NSAID's - like Naproxen - can impair/compromise bone growth. I wasn't taking much Naproxen by that time but I have vowed never to use it again... which is sad because it has been my drug of choice for years when an old knee injury flares up.

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@basslakegirl The choice of an antihistamine doesn't matter. I use Claritin but any of them will do. I tried not using it on my last dose and noticed a difference in how sore my arms were afterwards. I also get itchy after a dose (as others here have also reported) and it seems to help.

I also use Tylenol after my dose. I rarely take any pain relievers except for an occasional ibuprofen. I like ibuprofen for joint pain and Tylenol for the sore arms I get after a dose.

Good luck with your first treatment.

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isabella5 | @isabella5 | Jan 28 10:48am
In reply to @dianat "@gravity3 what did you follow up with?" + (show)
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@gravity3 what did you follow up with?

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@dianat, I don’t know what gravity3 is taking to lock in her Evenity gains, but my doctor has recommended Reclast for me.

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dianat | @dianat | Jan 28 5:33pm
In reply to @isabella5 "@dianat, I don’t know what gravity3 is taking to lock in her Evenity gains, but my..." + (show)
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@dianat, I don’t know what gravity3 is taking to lock in her Evenity gains, but my doctor has recommended Reclast for me.

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@isabella5 I hate the thought of having to take something for the rest of my life.

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wili22 | @wili22 | Jan 28 6:44pm

I believe by increasing bone density with bone density exercise (yoga, hiking, light weight lifting) and a year’s worth of Evenity my bone density will have increased!

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isabella5 | @isabella5 | Jan 28 8:23pm
In reply to @dianat "@isabella5 I hate the thought of having to take something for the rest of my life." + (show)
Profile picture for dianat @dianat

@isabella5 I hate the thought of having to take something for the rest of my life.

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@dianat, I hear you. I hate the idea, too, especially since I’ve never been on any long-term meds. Reclast treatment lasts on average 3-6 years. I just read that it does a good job of protecting bone, so there’s a chance of stopping all bone meds after the treatment, for a while at least. I plan on continuing with natural supplements all through treatments (AlgaeCal, collagen with Fortibone, NAD, and circumen), so I’m hoping for good results! 🙏

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gravity3 | @gravity3 | Jan 29 3:37am
In reply to @dianat "@isabella5 I hate the thought of having to take something for the rest of my life." + (show)
Profile picture for dianat @dianat

@isabella5 I hate the thought of having to take something for the rest of my life.

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@dianat

May I ask how old you are? Are you taking other drugs?

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gravity3 | @gravity3 | Jan 29 3:39am
In reply to @isabella5 "@dianat, I don’t know what gravity3 is taking to lock in her Evenity gains, but my..." + (show)
Profile picture for isabella5 @isabella5

@dianat, I don’t know what gravity3 is taking to lock in her Evenity gains, but my doctor has recommended Reclast for me.

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@isabella5

Prolia but may discontinue with a smaller dose of reclast then who knows.

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wili22 | @wili22 | Jan 29 6:30am
In reply to @gravity3 "@dianat May I ask how old you are? Are you taking other drugs?" + (show)
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@dianat

May I ask how old you are? Are you taking other drugs?

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@gravity3 Hi, I’m 60 and no other drugs. Genetic💜

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gravity3 | @gravity3 | Jan 29 7:35am
In reply to @wili22 "@gravity3 Hi, I’m 60 and no other drugs. Genetic💜" + (show)
Profile picture for wili22 @wili22

@gravity3 Hi, I’m 60 and no other drugs. Genetic💜

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I can understand why someone who has never had a long term medication would be reluctant to start.

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gravity3 | @gravity3 | Jan 29 7:40am
In reply to @wili22 "I believe by increasing bone density with bone density exercise (yoga, hiking, light weight lifting) and..." + (show)
Profile picture for wili22 @wili22

I believe by increasing bone density with bone density exercise (yoga, hiking, light weight lifting) and a year’s worth of Evenity my bone density will have increased!

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@wili22

What will you take to protect the gains from Evenity?

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