Sudden Onset Severe COPD Inflammation only, no physical lung damage

Posted by tazmom @tazmom, Jul 9 8:13pm

At age 61, with no history of lung issues or smoking, I developed sudden onset severe COPD; literally overnight. The pulmonologist said there is no physical damage in my lungs, just severe inflammation , and put me on Breyna inhaler. Will be redoing pulmonary function testing in 2.5 months. There is no ready answer as to why this occurred, although doctor indicated could have been due to a virus such as Covid (never had it), but I did have bronchitis which lasted 6 weeks 5 months earlier than COPD onset. Due to a series of odd medical issues that befell me within a month of COPD onset, there is suspicion that I could have something autoimmune going on. Meeting with Rheumatologist to start down that rabbit hole.

If the inflammation is resolved, is it possible to be "cured" of the COPD? Or once I have it, its with me forever, although perhaps at a less severe level? I'm trying to set reasonable expectations....

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

Check out food allergies and environmental changes before you settle on COPD. I did and found that I was suddenly allergic to ginger. Off all meds now.
Regards,
Sagan

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If it's really copd, there is no cure. If you smoke stop, it's the best thing you could do for yourself.

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Profile picture for saganjames @saganjames

Check out food allergies and environmental changes before you settle on COPD. I did and found that I was suddenly allergic to ginger. Off all meds now.
Regards,
Sagan

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Thanks for responding. Did develop a sudden allergy to soy and high sensitivity to ginger but have been away from those for many months now.

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I'm new to this group and haven't had time to get into much of the historical dialogue , but I find it interesting that both these folks seem to indicate skepticism regarding COPD diagnosis. I had pulmonary function testing (and extensive review of recent CAT scan done for another purpose) as part of the diagnosis. Is pulmonary function testing not a reliable tool for diagnosis of COPD?

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I have had COPD for several years. But it was very mild. I was taking Albuterol about 1ce a week or as needed.

Last January I had a hospital stay with heart problem and a bad bacterial infection. Took a couple weeks to get those under control. Since then my COPD has gotten seriously worse. My pulm1nologist now has me on 2 inhalers, albuterol 2-3 times a day and she wants me to start Dupixient. Dupixent is also a very expensive drug.

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Once you are told you have it…. you will always have it… The idea is to control the flareups… Be aware of your environment, well ventilated kitchen and exercise…hope this helps

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Body and breathing exercises are of paramount importance. Additionally, staying out of trouble means avoiding crowded places, as they are often full of infectious bacteria and viruses. It also means refraining from smoking and avoiding places where people smoke. All these things will help you to maintain a stable level of low COPD symptoms for a while longer. This will not last forever, unfortunately, but will certainly prolong the tolerable level of the sickness. GL.

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If you qualify for Dupixent My Way card, you may have $0 copay for it. We qualify do I fortunately have no copay. Check the Dupixent website. Also if you qualify there is a patient assistance program. The discount card that eliminates the copay has very few requirements—mainly that you have private insurance.

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Profile picture for Retep51 @peter51f

I have had COPD for several years. But it was very mild. I was taking Albuterol about 1ce a week or as needed.

Last January I had a hospital stay with heart problem and a bad bacterial infection. Took a couple weeks to get those under control. Since then my COPD has gotten seriously worse. My pulm1nologist now has me on 2 inhalers, albuterol 2-3 times a day and she wants me to start Dupixient. Dupixent is also a very expensive drug.

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I hope you can get financial assistance with the Dupixent. I have Parkinsons Disease and there are a lot of meds involved. I was shocked how easy it was for me to obtain assistance from the pharma companies on several of them. Didn't even require proof of income, etc...

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Profile picture for jovankovacic1953 @jovankovacic1953

Body and breathing exercises are of paramount importance. Additionally, staying out of trouble means avoiding crowded places, as they are often full of infectious bacteria and viruses. It also means refraining from smoking and avoiding places where people smoke. All these things will help you to maintain a stable level of low COPD symptoms for a while longer. This will not last forever, unfortunately, but will certainly prolong the tolerable level of the sickness. GL.

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Thank you. When you refer to body exercises, am I correct in assuming that you mean general exercise- cardio, strength, flexibility? Breathing exercises meaning diaphramatic breathing?
In terms of staying out of trouble, I understand the risk of crowded places and of course, smoking and smokers around me. What I don't have resolved in my mind is the question of Is there a balance in terms of me engaging with the world outside my home. The thought of living in a bubble and not being able to go to certain cultural and community events, for example, is not a pretty one. I have 2 other chronic progressive medical conditions and,my world was already getting smaller before the COPD hit. This is a devastating blow.

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